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Son had a testes removed

47 replies

iamsosad · 30/05/2019 18:53

My son had one of his testicle removed last week. He is nearly a year old - it had never descended and was twisted and shrivelled in the groin.

He is otherwise very healthy.

Everyone is upbeat about this, my husband does not care. The main thing is that he is healthy and will be fine.

I have no idea why but I am absolutely heartbroken about it - I can’t verbalise what it is which makes me so unbearably sad for him and I have no where else to express it because everyone is just smiling and saying it’s ok! It’s ok but it’s not ok!

I suppose I just wanted to get that out of me

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iamsosad · 31/05/2019 06:32

FenellaMaxwell

I am sorry about your son - I’m sure that that must be beyond frightening. But what a beautiful way of looking at it, that it’s what makes them them. It’s funny because my immediate response to your comment was to think “of course it’s nothing you’ve done!”, but I can’t seem to
Apply that thinking to myself.

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FenellaMaxwell · 31/05/2019 06:34

You won’t ever be able to really. I still can’t apply
It properly to myself and I’ve had 2 years to try!

The one thing I will say is that this has to stay just your thing. You can’t ever let your DS feel like any of this is even remotely an issue.

SinkGirl · 31/05/2019 06:39

My twin boys have had health issues from birth, one particularly - two months in NICU, more tests than I can count, general anaesthetics, medications etc etc. Now they’ve both been diagnosed with autism, one also has optic nerves that didn’t fully develop and other issues.

The emotional rollercoaster of all these things has been epic. I think a lot of it is the trauma and shock, as well as sadness. I suspect in time you won’t ever think about it and will have a split second of surprise when you remember - it may not be your normal right now, but it will be. And remember it will always be his normal, he won’t know any different.

Interested in this thread?

Then you might like threads about these subjects:

iamsosad · 31/05/2019 06:42

I suspect in time you won’t ever think about it and will have a split second of surprise when you remember - it may not be your normal right now, but it will be. And remember it will always be his normal, he won’t know any different.

I think that all of the above is true. Very sage.

I am so sorry about everything you have been through / can’t even imagine that, and with two. 🌷

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iamsosad · 31/05/2019 06:44

I also regret telling people in real life as I don’t want anyone to know for his sake. I feel like I told them selfishly for support and didn’t think about his privacy (and the support didn’t help anyway because I just said everything is ok - this thread has been much more helpful). But then by the time he is old enough to know I don’t think anyone will really remember/care and I doubt they think about it at all even now as it’s not their son.

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ThunderR0ad78 · 31/05/2019 06:53

HIya, I completely resonate with how you feel - your feelings are very valid and almost what I expect any parent to feel.

What would I do in this situation? I know it sounds a little patronising but I would try to focus on the positives - namely how much worse it could be!

In the grand scheme of things, your son is 100% healthy, and will live a full, happy life surrounded by a loving family! Honestly, he has no worries, if this is the worst it gets - I'd take it, wouldn't you???

And honestly, regarding an implant, think of the advances that will be made in this area over the next 16years and generally how acceptable any form of cosmetic surgery is now days, it's run of the mill! He will be fine, just enjoy him, it's a minor issue, although I know it doesn't feel like it!

I say this as a mum who's 8yr dd old lost both front teeth (big teeth) in an accident at school and whilst this is nothing compared to your situation, I cried for weeks and was devastated so I can only imagine how you feel, especially given how tiny he is! He's healthy, beautiful - just thank your lucky stars - he's perfect! x

SinkGirl · 31/05/2019 07:09

I promise you, they will either forget or won’t care. You’ll anonymously be one of the positive stories above (“my friend’s little boy had one removed and he’s absolutely fine” etc) that reassure others in your position.

It’s honestly no good thinking “x has it worse, could be y which is more serious” etc - you’re in shock, seeing your child go through GA and procedures is traumatic etc. One day I am sure you will think thank goodness we caught it early (as I believe if it’s left the consequences can be very serious), thank goodness it’s not something that causes ongoing health issues etc - but don’t expect to feel like that now.

Honestly I coped well with all the medical stuff but when my boys were diagnosed with ASD I thought my world was ending. I was absolutely terrified. Months on it’s our new normal and we are fine - some days are really hard but most are just normal days, some days are fantastic.

Might be worth seeking some help if you do feel you’re experiencing trauma - I didn’t after the nicu experience and wish I had

PlatoAteMyHamster · 31/05/2019 07:13

It’s totally understandable. When they say he is fine, he is fine in a medical sense and it’s all okay. Obviously you feel very sad because you see for your perfect son a lifetime of being a bit different and an obstacle you know he will have to deal with later in life. It’s doesn’t feel fair, or fine. It will just take time for you to get used to it, the more you live with it, the more normal
It will become. It is also a fairly minor issue in the scheme of things and he will no doubt deal with it well.

The point about medical advances is a good one. By the time it will be an issue for him, they will no doubt be able to insert a very realistic implant with minimal fuss, should it bother him.

SinkGirl · 31/05/2019 07:27

In terms of cosmetic implants, this is such a personal thing and it will come down to his own personality as to whether it’s something he wants to do or not. Fortunately it’s something that no one will know about unless they’re intimate with him and even then they probably won’t realise (I had a partner with one testicle and took me several months to realise).

My son with the visual impairment has a severe squint which alternates - we have to decide whether to have surgery to correct this which I’m finding really difficult. It would be mostly cosmetic but I know he has enough difficulties with social interaction and eye contact, I don’t want anything to make that more difficult for him. It’s so difficult.

In your case, you really didn’t have a choice but to have the surgery so you always know you did the right thing

FrecklyArmedBoy · 31/05/2019 07:33

My son had an orchidectomy just before he turned 1, he had torsion of the testicle and so that one was removed and the other was stitched in place to reduce the chance of twisting.

He is now 16, and sat next to me as I type this. He has never been bothered about the appearance, there is no lopsided look to it (it has been a long time since I have personally seen this Grin ) but he went through puberty fine. Started when he was about 9-10.

He doesn't want an implant, he doesn't want an unnecessary surgery, the skin isn't excessively baggy where the testicle is missing. I mean, it isn't like you see it every day in public. It is hidden in his pants!

We were told he could have an implant from age 15 as then they would have an idea as to the size of his adult testicle. We discussed it, it isn't something I would want for him. He may change his mind, but knowing how squeamish he is, I doubt he would voluntarily get the surgery.

Right now obviously for you this feels awful, we felt the same. But your son is fine and he will be fine in the future.

ElfishBiatch · 31/05/2019 07:49

After my oldest had his operation as a tiny baby, my husband said ‘but we were supposed to take care of him’. I felt exactly the same, like we had failed and let him down, and also that he was no longer perfect and untouched. He is absolutely fine now though. The scars which seemed so huge when he was tiny are now just part of him. And he is totally perfect still, of course! 💐

We have chosen not to tell anyone beyond our parents and nanny about our second son’s minor issue. I find that quite isolating though, I may have to start my own thread but because of the nature of the problem I think I might be accused of trolling.

iamsosad · 31/05/2019 08:12

FrecklyArmedBoy

Thank you for this - very positive message and I am pleased to hear your son is well and unphased. Pretty perfect really.

sinkgirl

Your point about us being one of the anonymous stories really helped me, thank you!

elfishbiatch

I highly recommend starting a thread. I can’t even describe what the amount of validation of my feelings and kindness on this thread has done for me.

Thank you everyone ❤️

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OhForkItThen · 31/05/2019 08:17

I’ve dated someone long term with only one, as an adult I think it’s not at all obvious, the scrotum is baggy and always a bit hidden. The man may feel self conscious but I thought the visible difference was unremarkable. Hopefully it helps to hear that as a grown up, I remember him sitting down and telling me then thinking I probably wouldn’t have noticed...

iamsosad · 31/05/2019 09:29

ohforkitthen

Why did he feel the need to tell you? Was he embarrassed by it?

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MummyBear2352 · 31/05/2019 10:16

It's disappointing to have happened to such a young boy but as long as the other one is healthy there should be no impact on his ability to have kids himself when he's older as far as I'm aware

It's safer for him to have had the other removed than risk it causing him health issues later in life and as long as you raise him to be aware and accepting of it then he'll have no issues

RoseDog · 31/05/2019 11:53

My DS is 14 and he one of his testicles must have twisted not long before he born, it was quite a shock, it took a few weeks to get scans etc, he was 9 weeks when he was scanned and we were told what was wrong, he was just over 1 when we went back for a follow up and the consultant said they wouldn't operate to remove the pea sized testicle it would just be absorbed by the body.

We had the option to start him having prosthetic as a toddler and then every few years to keep up with the size but we refused and we were told if he did want one as an adult to go to the GP and get referred.

As a teen its fine, we are very open about body parts and functions, we started telling him from about age 6 or 7 as he had to be aware that if he ever had any pain down there it was quite urgent and he has played football from that age which is quite physical!

He has no desire to get another one put in yet but he may change his mind.

It took me along time to come to terms with it though, I felt like I failed as he was born like that, but the reality is he doesn't care!

LarryGreysonsDoor · 31/05/2019 11:58

A friend of mine had the same op as a boy.

He has two children and had no trouble conceiving.
25 years in the army and he never felt self conscious about it or wanted a false one.

FrecklyArmedBoy · 31/05/2019 14:53

@RoseDog I am surprised that they didn't operate, it isn't just to remove the twisted one, they also stitch the other one into place to prevent it twisting too. Plus they biopsy the one they remove as a precaution.

If they lose both testicles then they cannot go through puberty hence why surgery is seen as necessary on young children who present with testicular torsion.

Obviously your son has as you said he is now a teen but this is mainly for anyone else reading this. As I said Ds is now 16 and is happy just to have one. It has never bothered him but we are a body positive family anyway.

bobisbored · 31/05/2019 18:40

@iamsosad
Sorry for the delay!

None of his friends know about it and he is worried about someone noticing during after PE showers. Also now he's interested in girls and no matter how much I try to explain that a) a girl probably wouldn't notice and b) the right girl won't care, he won't have it!
I haven't seen it for a while 🙈 but DH says it does look odd, he's a bit lopsided now he's developed.
He spoke to his dad about how he was feeling and he went to the GP who referred him.
There are risks but he's adamant it's what he wants.

user1498572889 · 31/05/2019 19:51

Of course you will feel sad and guilty that’s what mums do. You made him perfect and he is still perfect. If he wants an implant when he is older then he can get one. The way you react or don’t react to this as his parents will go a long way to deciding how he reacts to it as a teen/ adult. Be happy and love him lots don’t let this spoil this wonderful time. 💙🥰

QueenofmyPrinces · 31/05/2019 21:15

When my first son was born I was told he had a hydrocele in one of his testicles (a collection of fluid) and that it would naturally drain itself. I was told though that if by the time my son was 18 months old the hydrocele hadn't disappeared then he should be referred to the hospital in case he needed surgery.

His scrotum always looked a little unusual but I just thought it was the hydrocele and waited for it to disappear. However, at 18 months the scrotum still looked 'odd' on one side so he got referred to a hospital for an ultrasound scan in order to see how much fluid was in there to determine whether he needed an operation.

The scan took ages and I knew that something was wrong. I was told at the end of it that my son didn't have a hydrocele at all and the reason his scrotum looked misshaped was in fact because he only had one testicle. I was absolutely god smacked. The sonographer told me he'd extensively searched around the kidneys to see if he could find the missing testicle but he hadn't been able to visualise it.

When I left the scanning room I burst into tears. I was so, so upset and I was blaming myself for it. Some of my family members were as upset as I was about it whereas my husband took it all in his stride.

Just before my son was two he had to go for an exploratory procedure to see if the missing testicle could be located and also if it was possible to bring it back down into the scrotum. He was in surgery for two hours and when the surgeon came to see me he told me that they'd found the missing testicle but it was so damaged that they'd had no choice but to remove it. I was heartbroken.

For a very long time I tortured myself about how my son's future would be....being bullied at school, having no confidence to enter relationships with girls, being infertile etc etc and it played on my mind all the time.

My husband told me I was being silly and that compared to all the other horrendous illnesses a child could be diagnosed with then a missing testicle was hardly something to get so upset about. I knew he was right but I felt so sad for my son.

From as young as we thought he was old enough to understand, maybe at about three years old, we were completely open about the fact that most boys have two testicles but he only has one because one of them got poorly and had to be taken out in the hospital.

He's 5 now and isn't bothered at all by the fact that he only has one testicle and talks openly about it. To look at him, cosmetically it is obvious he only has one testicle but his surgeon said that when he enters puberty and the remaining testicle starts to grow then it will likely fill the space in the scrotum and things wont look quite so unbalanced.

The surgeon said that men will be offered an implant once they hit 18 years of age but most of them decline because they don't feel the need to have a false one put in.

I'm hoping that by being open and honest with our son about it makes him realise that its nothing to be ashamed about and so hopefully give him the confidence to stand up to any negativity he gets in the future about it.

I can honestly say that I don't feel bad about it anymore or guilty, and I don't feel sorry for my son either because its just who he is.

Take some time to come to terms with it because it is something upsetting to have to deal with.

iamsosad · 02/06/2019 09:33

QueenofmyPrinces

Thank you for the incredibly detailed story about your experience with your son, and such a happy ending! Im pleased to hear you are at peace with it now, and your son is fine XX

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