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Parenting

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8 week old heart murmur?!

13 replies

El1995 · 22/06/2018 13:47

Hi all! So I was just wondering if anyone else is or has been in the same boat or whether or not I should be worried?! My 8 week old ds went for his 8 week check and jabs yesterday and was diagnosed with a heart murmur?! It shocked me a bit as I really wasn't expecting it. :( we've been through so much already. So my question is should I be worried? I asked the Dr yesterday and she said it was very common in newborns, I have an appointment in a month where he'll be getting checked over again with an ultrasound etc but she didn't seem overly concerned? She said if it was serious he'd have been rushed to hospital immediately. He's a smiley happy boy and overall is very happy in himself, anyone else? Thanks

OP posts:
AjasLipstick · 22/06/2018 14:47

My DD was diagnosed with one at about 1 day old. I was horrified and SO worried.

She's ten now and fine!

She had to go to get it checked a few months later and I worked myself into a frenzy over it....we went to see a specialist who examined her and said there was no longer any sign of it and it must have been "water in the pipes"

He put it down to an over-zealous young doctor who mentioned it when he, as an expert wouldn't have bothered as it had probably been very weak....just a slight gurgle.

My nephew also got diagnosed with one and it disapeared by the time he was about 8.

They are indeed very, very common and not so long ago nobody got diagnosed with them and just lived their lives!

AS your Dr says, they do notice serious heart issues...and you'd know by now if your son had a problem.

Try not to worry.x Do you have to return for a check up?

Glaciferous · 22/06/2018 14:49

I had a heart murmur as a baby. I am now 49 and in excellent health.

Pinkgeorge · 22/06/2018 14:50

I’m 42, still have one and completely fine

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sexnotgender · 22/06/2018 14:53

A large number of babies are born with a heart murmur and it resolves naturally.

My daughter had a heart murmur and was referred to Cardiologist around 3 months where they diagnosed a serious congenital heart defect.

Rach000 · 22/06/2018 19:27

My daughter had a murmer picked up not long after she was born. We were referred to a specialist and put onto the next clinic where they did an ultrasound. Which was just less then 3 weeks after she was born. They found she had a pulmonary stenosis which is a where a value is too thick basically so had to have an operation to widen it. Was only a fairly small procedure where they used a baloon to stretch the valve. She is now fine and it obviously wasn't nice at the time but could have been a lot worse.
But they did say to us when it was picked up that sometimes murmers go quite quickly as the baby develops in the early days.

QueenofmyPrinces · 22/06/2018 21:01

My son’s heart murmur was picked up in hospital the day after he was born and he was sent for an ECG and an ECHO.

They said it was of no concern and would be gone within the month but they wanted me to back just to make sure it had. The murmur was still there though.

Then I was told it would be gone by 2 months of age - it wasn’t.

Then I was told it would be gone by 4 months of age - it wasn’t.

Then I was told it would be gone by 6 months of age - it wasn’t.

Then I was told it would be gone by 8 months of age - it wasn’t.

All of the appointments above were with a Paediatrician at the hospital but when the murmur was still there at 8 months she then referred my son to a Cardiologist.

My son has got his first cardiology appointment in 3 weeks where he will be having another ECG and repeat ECHO.

I’m fully expecting to be told it’s still there Grin

mrsoutnumbered · 24/06/2018 12:55

My eldest had one, the dr picked up on it when she was a few days old. She was readmitted to the hospital and after an ultrasound they found a VSD - a hole in her heart. It was never large enough to cause any symptoms (trouble breathing etc) but was borderline and at the time we were told she may need surgery. However the hole closed gradually and at 3.5 years old had closed completely. She never had any intervention and it was monitored once every year until it closed.

Try not to worry (easier said than done I know!). I think that a lot of babies have them, and that large holes are usually picked up on the ultrasounds that you have whilst pregnant. It's good to get it checked out though xxx

Fairtatas · 24/06/2018 13:04

My daughter was found to have one at 6 weeks, booked to see consultant w/in couple weeks but he couldn’t hear one by that stage and no further treatment.

Takfujuimoto · 24/06/2018 13:41

My first DC had one that was picked up at the 6 week check despite being checked over during our 3 day stay after birth in hospital.
It was checked roughly 2 months after that by a specialist at John Radcliffe Hospital and had a handful of echos every 6 months until they discovered that it had closed up on its own when he was three.

It's very common and the reason the GP wasn't overly concerned is because there obviously were no other signs of heart complications like low weight, poor feeding, poor skin tone, drowsiness, excessive sleeping, poor output concerning wee and dirty nappies.

DC3 has severe CHD and has had OHS and catheter procedures and other issues, so trust me that when your doctors are not concerned then you should try not to worry, if it was in anyway serious it would be very apparent and they would send you immediately to have it checked on, so please don't panic too much.

Thanks
Changing70 · 24/06/2018 13:50

My daughter was diagnosed with one just after birth. Known as fenestrated VSD - basically lots of tiny holes. She was monitored for the first 6 months, but they all closed up and she is a healthy 16 year old.

I was also born with one apparently. I do have a version of tachycardia but causes me no harm, do not need medication and I did a marathon length walk yesterday - so reasonably healthy!

Obviously you need to see it through and get the tests. I was beside myself with worry with my daughter, so I completely understand how you may be feeling.

El1995 · 24/06/2018 17:03

Thanks all for your replies, our follow up appointment isn't until 27th July so I guess it can't be too serious! Hes awake pretty much all day and in his waking hours is just content and smiley, very good Skin tone and his chest has been listened to numerous times and they've said his breathing is good. I'll keep y'all updated! I think because it's to do with the heart, alarm Bells automatically ring. Nothing was picked up on his scans....and we had 4! X

OP posts:
Clairetree1 · 24/06/2018 17:07

All babies have a hole in their heart where their circulation bypasses their lungs before birth. The length of time it takes to heal and the sounds it makes whilst healing vary

PeterIanStaker · 24/06/2018 17:15

I was born with a heart murmur. I still have it, but I was 'signed off' from hospital monitoring about 30 years ago aged 18. It used to be the case that I needed antibiotic cover for any procedure requiring anaesthetic e.g. dental fillings, but that seems to be seen as unnecessary these days.
The only other problem I've had is that every medic who listens to my heart likes to tell me I have a murmur as if they're the first ones to have spotted it. At my age, that would be hugely worrying!

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