Suspected thalassaemia for my 1 year old.

[1sttimemama1986]

Completely freaking out, had tests for my baby related to allergies. Got a call yesterday asking us to see GP today who has said we need to get more blood tests done and go from there.

Stupidly read up online. Now feel horribly anxious.

Anyone have experience of this condition?

Are you or your partner from the med? If so you are likely to have been screened while pregnant.
I have the beta thal trait (recessive) and it is fine.
However full blown thalassemia is altogether different.
I hope your 1 year old is ok.

Significant thalassaemia is picked up on the neonatal heel prick test. Additionally you will have been screened in pregnancy.

Thank you.

I am mixed race and was screened whilst pregnant and it wasn't picked up. My partner is Chinese so i guess that's where it's from.

My boy had heel prick tests lots of times as poorly in hospital after birth so surely like you say if serious it would have been picked up.
It's reassuring to read your comments so thank you.

He is fine no symptoms at all, we'd gone for blood tests due to suspected allergies of fish and egg which is still under investigation.

X

I am a carrier of it and as far as I'm aware it's only problematic for baby if both parents carry it.

DH and I are both thalasseamia carriers and both our children have inherited it. The only way it's affected my life is that I'm prone to anaemia. My husband didn't know he had it until we had children. Both children are healthy and have never had any health problems from it. Full blown thalasseamia is more serious and requires regular blood transfusions but it's not a life sentence. My friend has it and she's an otherwise healthy, 40 year old with two children and a full time job.
Please don't freak yourself out by Googling. If your baby does have it it would mean either you or baby's dad has it so it would be a good idea to check yourselves out too.