Hi my daughter was recently awarded dla, I just need advice on whether she's receiving the correct level of dla.
She's 4 yrs 6 months is non verbal, is still in nappies, has global development delay, ataxia and dysmetria, she doesn't sleep well and wakes regularly during the night with pains in her legs due to brain damage. She wakes roughly 6-7 times a night and is sometimes awake anywhere between 2-5 hours, screaming in pain or getting up and thrashing about etc.
We use pecs to communicate and she regularly either refuses to walk or is unable to due to discomfort, so she still uses a stroller.
She has behavioural issues and can't tolerate a lot going on at once and will cover her ears etc. She is very autistic like in character although hasn't yet been referred for testing.
She has a metabolic disorder where learning difficulties and mobility disorders are seen in almost 100% of suffers.
She cannot be left alone because she doesn't understand the world around her, and doesn't understand any spoken language.
She is probably on par with your average 12 month old baby.
She was awarded Middle rate dla
Of which we are immensely grateful for, and it will indeed change her life allowing her to have private speech therapy. I just need to know if what she is receiving the correct amount according to her extra needs.
Any input appreciated.