Ds2 is so clingy and whiny that I think I may have a breakdown

[Edenviolet]

Ds2 (2.3y o) has always been clingy, as a small baby he liked being carried facing outwards or he would scream.
I still bf him but rather than feeds decreasing they are increasing. I can't play with him or cuddle him without him wanting 'booby' if I say no he screams, if I try to distract him he screams, I've tried offering other drinks but he refuses and will try to tip them everywhere and screams more when I tell him off or take it away.

I feed him each evening and he wakes up 10+ times each night he has NEVER slept through. If I say no or try to get him back to sleep he wakes up and cries so its easier to just give in and feed him as other dcs have disabilities/medical needs and need attending to at night or they are asleep and I can't risk him disturbing them. I'm exhausted every morning and always hungry and my arms ache from where he wants to be cuddled and picked up all the time. If I don't he's grabbing onto me and screaming and I can't get a thing done.

Quite frankly I'm sick of it. I love him and he's adorable but I want some time away from him so that my arms don't ache and I can sleep without my neck hurting or him rolling about over me and taking up all the space (he sleeps in cot at first then wakes and we co sleep)
Tonight I've had to say to dh no more I have handed him ds and said I'm going for a bath as can't bear to sit feeding ds to sleep whilst he does his habit of pinching my other nipple (ds that is not dh!) as if he can't do that he fusses and cries and then screams.

During the day I try and play with him, he doesn't want other will play with dh or other adults but not me as all I get is 'booby' 'cuddle' 'pick up' and I'm so tired.

Recently he is complaining of 'tummy hurting' every day or 'legs hurting' and as he has same condition as dcs I'm wondering if pain is making him like this so I'm thinking of trying calpol and nurofen before bed for him. I know its not his fault but I just feel like I need to be away from him for a few hours as he exhausts me. I keep asking dh to take him/distract him as I can't face the bf so much and I feel grumpy.

What can I do I really feel on the edge over this he is by far the most demanding dc and that's saying a lot

Just read your update about the CMPA - did they do an immuglobin E blood test to show he had outgrown this ??? - if not, they can't say he has grown out of it by symptoms alone

DD has never had the symptoms you describe, facial swelling etc, her allergies have only ever caused colitis - which is severe stomach pain amongst other gastric issues

DS has a delayed allergy so his symptoms are typical of this - Allergy UK has some great info on them.

If he has dairy or soy, he is awake all night with tummy ache and would BFed forever if I let him for comfort if I let him. He is also clingy and upset in the day which is wearing when sleep deprived. I agree, find a new GP.

It may be worth excluding dairy/soy from his diet and yours if you continue to breastfeed, to see if it makes a difference.

I have EDS. is he under rheumo? he's probably in pain, poor baby. does he take pain relief? maybe it needs to be stronger or more frequent. i don't know what i would do without my co-codamol!

weavers post has just reminded me to say

DDs constant muscle aches have improved too since cutting out dairy & soy - she has also been given Certrizine antihistamine to help with sleep, which in turn also helps pain levels

Magnesium deficiency is common & it's needed to regulate pain signals, stress & sleep, so I would also recommend adding a couple of cups of bath grade Epsom salts to his bath too - maybe also add some lavender & roman chamomile aromatherapy oils - these help sleep & stress & are safe even for babies - this will get magnesium into his system, without pills - think this or a supplement would be good for you too :)

Also think about looking into "Mongomery, or Black Cherry Juice" this mixes with water, sparkling or still & drank as squash - sweeten with agave etc if needed This is NATURAL painkiller, proven in studies to be as effective as Ibuprofen, but without the risks - we use this all the time & it is good, especially with EDS kidney trouble & reflux to watch out for too

HTH

Ds just had the skin prick tests but I'm considering getting the bloods done instead.

He's been very tired the last couple of days having two naps a day rather than one and is as whiny as usual but he wants lots of cuddles and I can tell he's not feeling well. Have an appt on Monday to see a different go and have left another message for his physio.

Might be worth asking over on the allergy boards, as I'm pretty new to this stuff too, but I've been reading a lot & have spoken with medical friends about it too

My understanding is, that the skin prickly tests only really work for showing up the fast acting allergies,

A delayed allergy will show as a raised Imoglobin E result - for example, when in hospital a short while ago, DDs blood showed an IgE of 3,500 & the doctor told us that normal range is 10 - seems this can't tell you what the allergy actually is though, so from there it's an elimination diet & reintroduce to see a reaction - this shows up the allergens

Though I've just found out that we were given the wrong info on the discharge notes - that says CMP & Soy - so we've cut both out, only to now find out that's going to hamper finding out - especially rubbish given that DDs follow up is 3 months after discharge & soy & dairy together are a nightmare

though as I said above, when caught out by soy in a white bread roll (can't buy our normal wholemeal or seeded without) DDs stomach was up like a balloon for the next 2 days & all pain symptoms back with a vengeance - we've not seen that when she's a little eaten dairy

It definitely sounds like he needs the blood tests - reading around the internet lately, medical articles too, seems EDS & allergies go hand in hand :(

Hedgehog if you are South/S.E & on Facebook, PM me & I can point you in the direction of a really good EDSH group, lots of us on there with DCs suffering too & lots of knowledgeable people dealing with allergies too

Ds1 has the bloods done but he was under a diff hosp to ds2 who do things differently.i will ask them though.

We are nw london but I will see if there are any groups nearer, I think I looked once before and couldn't find any

This is an online group, there are other Londoners on there too I'm pretty sure - will message you a link to it anyway, it's a closed group & lots on there with kids in similar situation to yourself, lots of kids now older too, so great for advice

Have you seen Dr Ninis as all ?? - she a paediatric specialist, still does NHS from St Mary's, your GP can't refuse a referral, though my own DD was having major issues at school & clinic suspended for a while, so we went private to hurry it up & saw her at St John & Elizabeth - best money I've ever spent

Dd1 was meant to see dr ninnis for her pots and mitral valve problems but she had no appts so we got referred on to stanmore and harefield.

Link would be great Thankyou then I will join the group as really need some extra support/advice thankyou

It won't let me copy the link or PM a photo, so adding the cover photo here instead, if you search Facebook, this is what it looks like

Think I found the right one and have requested to join

brilliant, will see you over there :)