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Parenting

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Disabled mummy im need of a chin up talk

7 replies

Corrigan92 · 21/10/2013 01:39

I never normally get upset or down as I know there as so many worse off than me but after a recent fa,mily argument I,m so upset. without going into too much boring detail I have a condition that causes my joints to dislocate , my digestive system and bladder to fail causing sickness etc and heart problems. I had my first baby last year but was critically I'll in the process due to septacimia and a abcess on my heart, my mum dad and partner visited but no one else even though my parents were sat down and told I wasn't going to make it no one showed up, not ,y cousins, my friends, my Aunty's and I let that go. but then the other night my cousin who I classed as a best friend took the decision to send me horrible messages over Facebook saying all I want is people to feel sorry for me , that I make out I'm dying all the time and that I seek attention to make friends. I never even talk about my illness unless I'm asked and if anything I hide it! many people don't even know the problems I have yet I'm called attention seeking? I'm feeling really down and am now questioning whether everyone thinks that. I mean I know not every one understands disability's but I thought family was the ones you could count on. sorry I sound so bloody depressing but this is the only place I can vent without people knowing who it is which if I did on Facebook would resuLt in more attention seeking comments. I feel like no one understands which never bothered me until. I'm even wondering if I am all those things and don't realise it! please be nice xxx

OP posts:
tolittletoolate · 21/10/2013 11:18

Oh bless you, what horrible people :(

I was dropped by my friends when I first became ill/disabled 3 years ago. One girl who I thought was my best friend didn't even visit me in hospital, send a card or anything! I think it makes people scared to see their friends so vulnerable maybe.

Huge hugs and try not to let it get to you xx

Corrigan92 · 21/10/2013 17:20

feel really alone at the moment and when I. tried to bring this up with my best friend I was told "you have your partner so how can you be alone" I left school in year 9 so lost a lot of friends that way but now I have a baby prop,me seem to think I don't want to be invited round there's or that they don't need to come see me. I'm with my partner constantly and the only people,e I see other than him are my parents and his parents which sounds so bloody sad lol! my worry is if we ever split up which I hope would never happen that I would have no one. sorry to sound so depressing. thank you for your kind words and understanding xxSmile Smile

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tolittletoolate · 21/10/2013 17:42

It's ok I know exactly how you feel, I became pregnant just after coming out of hospital, we have also moved to a completely different area and I don't know a single person. I more or less don't speak to anyone except for my dh who doesn't get home until late anyway.
I told my health visitor when she came round and she has been great, I contacted my local home start and they are having an initial visit in november with a view to having a home start volunteer a few hours a week. Even just someone to chat to is going to be brilliant. Have you tried that?

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Corrigan92 · 21/10/2013 19:32

oh your situation is a lot worse I. ran my partners here all the time as he's my carer but I just wish I had other people as well I'm just being greedy lol let me no if the volunteer makes you feel a bit better x

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tolittletoolate · 21/10/2013 21:15

my dh couldn't/wouldn't give up work to be my carer! I would hate it and we couldn't manage financially. it's bad enough losing my wage when I had to give up work Sad

Corrigan92 · 21/10/2013 21:45

I don't have a choice I would love for him to work but I just can't cope on my own I can't even change the baby's nappy so its not do able if you ever want a chat feel free to message me x

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YOUCANBEMYFRIENDIFYOUBUYMECAKE · 30/10/2013 11:47

HI I understand how you feel, I have a lot of complicated problems to the point I feel very needy, and I like to be independent and get on with things. it just makes me feel like more than crap :-(. Esp with meds not working I understand exactly how you feel.
You are not attention seeking you are in pain, and people who have no pain don't understand, yes even family and close friends I feel don't understand.
I try to take each day as it comes and even if that means just putting on the dishwasher so the kitchen is tidy to make dinnner then thats what I have to do. Be kind to yourself, although I know how hard it can be when people don't sympathise. Xxx

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