Feeling a bit low- bit of rant, sorry.

[hugglebug]

Hi all. I'm a mum of one DD aged 3 and we're currently trying for DC no.2 but to be honest I'm having a complete wobble about.....everything. I have heart and lung disease which although does make me sound like darth vader everyday it means that when I have chest infections or even a cold which I have very often it hits me really hard and slows me down considerably. I'm so sick of being the ill one and worry how this might effect her growing up, particularly as she saw me being carted off by ambulance in November last year. Also I can see that she sees her Dad as the fun active one. Although my husband is as supportive as he can be, he doesn't understand how having a chronic illness can effect you emotionally and mentally. I feel like such a crap wife and mum the spirit is so willing but I resent that the flesh is so weak. It's not often I get this low because I know it;s a dangerous place to go but since having my daughter I've spent most of the time being ill and it's hard to see an end in sight.
I guess I just need to know I'm not alone in this, how do you cope with these challenges?

Sorry you are feeling like this. I'm sure you are a fantastic wife and mum and your DD will enjoy her time with you, just as much as she does her dad. I've just had a baby so I'm sure I will have times when I feel very similar to you. Its crappy being ill and no matter how supportive our DH's are, its very hard for them to truly understand. You are not on your own though :) Hope you are feeling a bit better today x

You sound so similar to how I feel... I also have chronic heart disease and yes, struggle so much with the unrelenting exhaustion and feeling that nobody understands... it also gets me down, really down, and angry. Please be assured: you are not alone.

How do I cope? Really, I think just by the whole mantra of trying simply to cope with the present and trying not to dwell on the future too much.

My DS (DC2) was born last year. Certainly, it has been exhausting and challenging but totally and completely worth it.

What sort of support do you have around you?

wow you sound like how I feel today. I also have heart problems and other complications. I hope you are feeling a bit better today?
it's easy to think of ourselves that way when we have these problems, I am feeling down at the moment and feel like a needy wife because I cannot do all the things a 'normal' wife would do. I try to take each day as it comes but not being able to work and do something really gets me down like you I understand what it is like to have a chronic illness.
have you any support locally where you could possibly meet up with other parents in a similar conditions?