I want to mention this on behalf of my incredible cousin who is very brave and has proved herself to be an utterly brilliant mum.
She had her first baby last year. She was a gorgeous little girl called Daisy. However very early on she was diagnosed with Spinal Muscular Atrophe. It meant she was never going to last very long and died at just 16 weeks.
My cousin and her partner knew time with their little girl was limited so they tried to try to give as great a quality of life, day to day, hour to hour, as was possible. They gave her touch and visual experiences in an ambient bedroom, poured over her with love and obviously did all they could to make her short time here as happy and fulfilling as possible and to ease her path onwards.
She says the support from the Little Bridge hospice was invaluable. The staff were brilliant and it's impossible to describe how much of a help they were at this time.
She had to drive two hours to and from the hospice which was a tough journey for all. Now the hospice is trying to build another in St Austells which would be a great help to children like Daisy and their parents.
It's not at all government funded, relying on donations. If you felt moved to do so, it would be really fantastic if you could donate a little bit so that they can get closer to their target.
You can do so at The Daisy Chain Fund and if you have got this far, thanks very much for reading.