Meet the Other Phone. A phone that grows with your child.

Meet the Other Phone.
A phone that grows with your child.

Buy now

Please or to access all these features

Other subjects

Get off chest

12 replies

Jimjams · 28/03/2003 16:54

Aaaggghhhh really bad day. Well not really bad just semi. Had case review at nursery today. Usual stuff LEA representatives sit around saying how great they are, I had a rant about audiology woman not being replaced whilst off sick, portage lady just says yes (although she's very nice), very nice SALT says her piece yadayadayada. All talk talk talk and the only person who does anything is the nursery manager. An hour and a half of discussing ds1 always gives me a headache. Somehow it really really drums home how horrendously behind he is. I hate the bit where it's pointed out that his speech sounds are at a 12 months level (even though I know it). Usually I come home and moan moan moan at my friend (who has an autistic daughter) down the phone but she's away having a very well earned wekend away.

Went to see another friend and we ended up talking about one of the marines who was killed who lived in the viallge next to the one where we grew up. Horrible.

And to top it all my Mum and Dad are away (how dare they! ) and that seems to have sent ds1 into a bit of an anxious turmoil. He was meant to have his hair cut yesterday and we had to cancel as he started crying and shaking as soon as he saw the hairdresser (he usually hates it but not that much).

Sorry just needed to get that out. I really hate case reviews - really hate them think I'm missing my normal moan to phone friend (who hates them as much as me) and Mum

OP posts:
Jimjams · 28/03/2003 17:21

oh bollards. I've now discovered I'm out of rice flour to make the boys bread and my cousin's coming to stay tonight and her son is gluten free as well. And I think the chinese supermarket is shut- bollards bollards bollards.

Ah well now I'm just p*** off - at least I'm not feeling sorry for myself anymore. Wine anyone?

OP posts:
hmb · 28/03/2003 17:26

Sod the wine Jimjams, a triple G @ T at least. Have a virtual one on me, and a cyberhug to go with it.

hmb · 28/03/2003 17:30

Sod the wine Jimjams, a triple G @ T at least. Have a virtual one on me, and a cyberhug to go with it.

hmb · 28/03/2003 17:30

Sorry, I need one too!

Jimjams · 28/03/2003 17:56

Aww thanks hmb- I felt guilty after writing the first message as I know people out there are havng a tougher time than me at the moment. Cyberhugs to you as well. And "cheers" as well -Bottoms up, kanpai etc etc

I could end up an alcoholic at this rate. We have another meeting next week with the paed for statementing purposes. This is always a nightmare as it is in the cdc. The CDC has a waiting room which is basically the corner of a corridor with two doors in it which are continually opening and closing. And who has a door obsession? That's right ds1. Doors have to shut in a certain way or he goes ape- and there are really useful signs on them which say "Parents- keep your children away from the doors". Last time we were there I almost lost the plot. Ds2 had spent the whole half hour wait screaming, ds1 was going frantic over the doors- it was a nightmare! I may save the G+T for next Thursday!! (got to limit myself as I'm stil bfeeding ds2!).

cyberhugs again.... I haven't been on the war thread for a while- I thought it was getting a bit nasty- but hope all is well......

OP posts:
katierocket · 28/03/2003 18:08

Jimjams LOL to you. I only discovered mumsnet since Jan this year but your postings always struck me as really thought provoking plus I have a lot of admiration for how you seem to deal with your sons autism with such good grace. Good on you, have a good moan - god knows you deserve to. If it was me I think I would lose the plot very regularly having to deal with NHS bureaucracy etc.

eidsvold · 28/03/2003 18:08

I really feel for you jimjams... I can't imagine how frustrating it must be.

I had a little insight into this when asked to meet with govt officals wokring with a student of mine re: child protection register. They spent a whole hour discussing this boys mum and how well she was doing - after about 5 mins I looked over to the Head of Year who had come with me rather stunned. I thought we were there to discuss getting this young man some respite weekends and suggestions of what would be good for him and how to further manage this young man and the horrible family life he had. After an hour we had to leave and I was so frustrated - I can imagine if it was my own child - I would have gone ballistic and told them to sort themselves out and stop wasting my time. Like you say - talk talk talk and nothing gets done. Oh I hope I am as tolerant as you when I have to go through this with dd.

By the way - I just wanted to say how much I admire you and have learnt from you and appreciate your support and sense of humour since joining mumsnet.

chatee · 28/03/2003 19:29

thinking of you Jimjams ....take care of yourself and your little darlings....keep remembering the positives in life( thats what i try to do!!!!) cyberhugs Chateexx

lou33 · 28/03/2003 19:38

Good luck with the statementing appt Jimjams. I shall be hoping for a post about it, and poring over it for any useful tips you can give me! I had a very interesting talk with ds's physio today, about how she thinks his gross motor will develop realistically, and how that will affect our nursery choice, so I sympathise on the headache front. I may not be what you are looking for but you can always come and have a rant at me if you want!

Jimjams · 29/03/2003 18:25

Thanks everyone! Feeling better today and has just dawned on me that ds1 is being hideous as we've started him on enzymes so he;s not getting a casein "fix"- basically he's withdrawing. Cant believe it passed me by.

Lou I'll let you know how it goes. Any more ideas with the nursery? I would say go with your gut feeling. Can you talk to any Mum's at the SEN nursery? I spoke to some who sent their children to the one attached to the local CDC and that was enough for me to vow NEVER to send ds1 there -LOL. Obviously some people have a bad experience but the decision was easier as they were all saying the same thing (also I spent some time in there whilst ds1 was being assessed and half the toys were broken, and it was very unorganised). If other Mum's are happy it might help put your mind at rest.... Nightmare isn't it!

Eidsvold and Lou- hopefully your LEA's will be a bit less cash strapped!!! (after all that's what is comes down to)

Mrs Cynical xxx
Right boys bath time then glass of wine time.

S ds1 must have realised I needed cheering up yesterday an HE DID A POO ON THE TOILET!!!!!! ~Hooray- back tot he floor today though

OP posts:
eidsvold · 29/03/2003 19:42

Oh jim jams - hopefully we will be living back in Aus by then and I will be on more familiar territory.... but who knows. I am not sure about the financial situation of the local LEA's around me - I keep reading how they are having to let staff go as they can't afford them!?!?! I may even be able to home school her in Australia!!

Jimjams · 30/03/2003 20:35

My LEA as well eidsvold- 200 TA's are meant to be going in August- along with one full time teacher from the autism unit! Aus sounds a far better option!!!

OP posts:
New posts on this thread. Refresh page
Swipe left for the next trending thread