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i am so fed up - i need a moan. my dd is ill AGAIN!!!

6 replies

overthemill · 01/07/2008 18:25

can I burden you with another moan? my dd has been ill again - this time with infected eczema (really really bad, like no skin anymore on lots of bits of her body, completely open and raw and weeping). I got her to school last week by going in at lunch time and giving her antibiotics and redressing the sore places but at the weekend it flared up really badly and she had to go to our out of hours service Waited 2 hours for a booked appointment and all they did was put the WRONG type of dressing on - and send her home in agony. dh took her as part of my plan to involve him in her care. I had the long straw - looking after his dementing mum.

Yesterday got her to the GP nurse practitioner who was a sweetheart and gave me everything in her cupboard plus 3 pages of prescriptions for her. But she has to be wetwrapped each day and wear it to school - can you imagine her upset today when we got there? The teacher had warned her class so nobody was mean thank goodness and she can't even wear uniform on top as it's not cotton so she is in shorts and a white polo shirt. She screams each time I put the special ointment and then the gloop and then the dressing (non stick but it does) and then the double layer of tubifast on top and then tie all the sections together so she looks like a badly wrapped joint of beef. I have to go in to top up ointments and give her the meds at lunchtime each day. may be even more tomorrow.

She has become allergic to micropore now (huge sore weeping weals last week) so she can't even have that on to hold them on but any way the scabs do that. Pulling off the dressings is awful. Oh how I hate this - last night she cried and cried. this is so unfair. poor little mite.
two weeks ago she missed school trip to france for aweek as her asthma was so bad the gp said she shouldn't travel. and a stay in hospital too.
ok moan over, got it off my chest

aaaarrrggghhhh!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

OP posts:
TheProvincialLady · 01/07/2008 18:35

Oh dear Lord, that is truly awful. Your poor poor DD. It's no wonder you needed to get it off your chest. I can't offer anything but sympathy, but here is a bucket load for you

EdieMcredie · 01/07/2008 18:35

OMG puts my worries into perspective

You have a right to moan!!!

overthemill · 03/07/2008 08:06

thanks - had to have a day not on MN yesterday trying to catch up with work - she went in again and teh teachers have been very kind. tomorrow she has to go for a day at her new middle school - how great for her with me having to go in and gloop her at lunchtime. this is so unfair...

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SpacePuppy · 03/07/2008 08:31

Poor thing, could you not keep her home until this has cleared up a bit and ask the teachers to send her homework, you know do a bit of homeschooling?

ruddynorah · 03/07/2008 08:34

oh goodness me you poor thing

what sort of referral have you had for this? are you seeing some sort of eczema specialist?

overthemill · 03/07/2008 09:29

its such a long time since she has been this bad (years and years) and her asthma is also not controlled atm. so i am going to see gp witha view to getting referral back to our old hospital (we have moved so i think the stress of this plus all the new pollen etc has set her off) to see her old paediatrician. i want to find out if there isi anything more we can do/do differently. also to have her scratch tests for allergies repeated as she was 2 when these were last done. the sad thing is when she was tiny she went through all this uncomplainingly and now cries and screams with frustration (I hate you mummy) - now i can see what hell she used to go through but couldnt articulate. i know this will pass ut omg it is so tough. i'd been hoping to go back to owrk in september (after years of doing freelance around her poor health) but that seems impossible now. i fear it will take a while to settle down again. she has been unwell on and off for around a year now - with all sorts of things - she has missed so much school and i don't want her to miss out on the chance to settle at her new school. she missed teh last day there as she was in hospital - so keen for her to go tomorrow. don't supose anyone is/knows a paediatric dermatologist do they???

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