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PIP

29 replies

Stressedoutbird · 09/03/2025 21:13

I claim PIP for my adult son. His main condition is learning difficulties. I’d put autism on his claim. I didn’t say on the form it was diagnosed.Claim was done a few years ago. but I’ve just found out his autism isn’t on his medical records but it’s on his ECHP plan as his main condition. I’m confused. What should I do.

OP posts:
ByDeftBiscuit · 09/03/2025 21:47

You don’t need to do anything. PIP is not about diagnosis but about how a person is affected day to day.

richardosmanstrousers · 09/03/2025 21:49

You don't have to do anything for PIP but surely if he is autistic you must recall this being diagnosed - it involves several assessments

Mizzi · 09/03/2025 21:50

So he's never been diagnosed? You just decided he was Autistic and put that on his claim?

SuperLoudPoppingAction · 09/03/2025 21:52

Read the OP, mizzi. It's on the ehcp - a legally binding document.

Stressedoutbird · 09/03/2025 21:52

ByDeftBiscuit · 09/03/2025 21:47

You don’t need to do anything. PIP is not about diagnosis but about how a person is affected day to day.

Even if I’m not sure if he’s been diagnosed or not ?

OP posts:
FuckILookLike · 09/03/2025 21:53

Mizzi · 09/03/2025 21:50

So he's never been diagnosed? You just decided he was Autistic and put that on his claim?

My daughter isn’t formally diagnosed but receives DLA and has an EHCP due to her having Autism. It can take up to 5 years to receive a formal diagnosis in some parts of the UK. Health professionals can still be involved in people’s care for Autism whilst they’re still waiting to be diagnosed you know

Stressedoutbird · 09/03/2025 21:54

Mizzi · 09/03/2025 21:50

So he's never been diagnosed? You just decided he was Autistic and put that on his claim?

went to a special school. It’s on his annual review which is now called an EHCP. They decided in year 10 he was I just assumed it was done in school back then and cos it’s on this document

OP posts:
Stressedoutbird · 09/03/2025 21:56

richardosmanstrousers · 09/03/2025 21:49

You don't have to do anything for PIP but surely if he is autistic you must recall this being diagnosed - it involves several assessments

School decided he was autistic and it’s on this document. I was under the impression it was fine in school now I’m not so sure

OP posts:
richardosmanstrousers · 09/03/2025 22:00

School decided he was autistic and it’s on this document. I was under the impression it was fine in school now I’m not so sure

School doesn't get to decide this.

I thought you were just saying it was missing from his medical records, not that he wasn't actually assessed in the first place.

Stressedoutbird · 09/03/2025 22:05

richardosmanstrousers · 09/03/2025 22:00

School decided he was autistic and it’s on this document. I was under the impression it was fine in school now I’m not so sure

School doesn't get to decide this.

I thought you were just saying it was missing from his medical records, not that he wasn't actually assessed in the first place.

It’s is missing on his medical records. I’ve only just found out. So this has brought up if he was even assessed at all. Special schools are different. But then it’s on a legal binding document. Should it even be on there if not assessed or diagnosed ?

OP posts:
GarlicStyle · 09/03/2025 22:05

To repeat, PIP is awarded on impaired functioning in certain specified areas of life. Diagnosis or non-diagnosis, it's all about levels of function.

A diagnosis can support a claim but the benefit is not awarded because of a diagnosis. The only exception is if you've been given less than six months to live.

If you're worried that you may have given accidentally fraudulent information in your claim, write to them saying it's come to your notice that you have no copies of an autism diagnosis, however his functional impairments remain the same.

If you do this, I recommend summarising the impairments in your letter and attaching copies of the original claim and award letter.

richardosmanstrousers · 09/03/2025 22:07

It’s is missing on his medical records. I’ve only just found out. So this has brought up if he was even assessed at all. Special schools are different. But then it’s on a legal binding document. Should it even be on there if not assessed or diagnosed ?

Special schools are different how?

If you never took your child for an assessment or had any involvement in him being assessed then he won't have been assessed.

GarlicStyle · 09/03/2025 22:09

He wouldn't have been admitted to a SN school if he didn't have SN, would he?

richardosmanstrousers · 09/03/2025 22:10

GarlicStyle · 09/03/2025 22:09

He wouldn't have been admitted to a SN school if he didn't have SN, would he?

Nobody is saying he doesn't have SN. He has learning difficulties, so I would imagine that's why he was placed in a special school.

Stressedoutbird · 09/03/2025 22:14

GarlicStyle · 09/03/2025 22:09

He wouldn't have been admitted to a SN school if he didn't have SN, would he?

He has additional needs such as learning difficulties which are much more extreme than any autistic traits.he was admitted to a special school on these grounds

OP posts:
GarlicStyle · 09/03/2025 22:16

@richardosmanstrousers, yeah, but OP seems to be getting her knickers in a twist about a diagnosis and others are feeding that.

If she's worried about having made an incorrect statement on his PIP claim, she can do something about it. Or she could just leave it, as her statement that he has autism won't have been a deciding factor.

If they want to check a diagnosis, they can request it from his healthcare providers. They don't just accept claimants' assertions. The actual criteria are publicly available, and NONE of them are about medical diagnoses (except for terminal disease).

ByDeftBiscuit · 09/03/2025 22:17

Stressedoutbird · 09/03/2025 21:52

Even if I’m not sure if he’s been diagnosed or not ?

The diagnosis (or lack
of) doesn’t make a difference for PIP.

PIP is awarded based on needs.

Stressedoutbird · 09/03/2025 22:17

Missing on his medical records but then ESA sent a form to doctor to fill out which he put autism so I’m confused.

OP posts:
GarlicStyle · 09/03/2025 22:18

Stressedoutbird · 09/03/2025 22:17

Missing on his medical records but then ESA sent a form to doctor to fill out which he put autism so I’m confused.

You're not the only one! What is it you're worried about?

Stressedoutbird · 09/03/2025 22:25

GarlicStyle · 09/03/2025 22:18

You're not the only one! What is it you're worried about?

Erm having said on his claim he has autism based on a document from school which I may have sent as evidence. The fact for the last 10 years I assumed he had autism cos school told me so. I did write more about his learning difficulties and brain condition which I did have evidence from his GP

OP posts:
ByDeftBiscuit · 09/03/2025 22:27

Stressedoutbird · 09/03/2025 22:25

Erm having said on his claim he has autism based on a document from school which I may have sent as evidence. The fact for the last 10 years I assumed he had autism cos school told me so. I did write more about his learning difficulties and brain condition which I did have evidence from his GP

But the diagnosis doesn’t make a difference. What are you not understanding about that?

Stressedoutbird · 09/03/2025 22:31

ByDeftBiscuit · 09/03/2025 22:27

But the diagnosis doesn’t make a difference. What are you not understanding about that?

So yr telling me even tho I said he has autism and if it turns out he hasn’t it doesn’t matter ?
sorry if I’m seeming a bit thick . I’m planning on doing a bit of digging tomorrow and see what’s going on

OP posts:
ByDeftBiscuit · 09/03/2025 22:33

Stressedoutbird · 09/03/2025 22:31

So yr telling me even tho I said he has autism and if it turns out he hasn’t it doesn’t matter ?
sorry if I’m seeming a bit thick . I’m planning on doing a bit of digging tomorrow and see what’s going on

Yes, it doesn’t matter. The award is based on needs, not diagnosis.

richardosmanstrousers · 09/03/2025 22:34

It doesn't matter at all because you have told them how his conditions affect him and that's what the decision was made on. Also, you have the evidence from school that's says he is autistic so you would not be in any trouble. I would just leave the word 'autism' off when you do his review.

However, you now have to consider speaking to the GP to have him referred for a formal assessment

Stressedoutbird · 09/03/2025 22:37

ByDeftBiscuit · 09/03/2025 22:33

Yes, it doesn’t matter. The award is based on needs, not diagnosis.

Thanks for explaining

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