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My mum died on Saturday

75 replies

MrsArchieTheInventor · 10/03/2008 12:34

I don't want to talk about it as such, just want to write. I'm sorry if it's all a load of bollocks.

She had secondary breast cancer of the liver. She was diagnosed on 1st February after a month of abdominal pain and loss of appetite. At Christmas she thought she'd just put on weight and eaten too much but she went to her doctor in the middle of January and the nurse practitioner referred her for an immediate liver and abdominal scan, which showed that she had several tumours in her liver and that her liver was occupying almost all of her abdominal cavity, thus crushing the rest of the vital organs in there and causing her pain. She was started on chemotherapy on 7th February with three weeks of taking the drugs and one week off. On Thursday she went for a check up at the hospital with my sister and sis phoned in the afternoon to say that she'd been kept in as she'd deteriorated so much since she was first diagnosed. I was at work when sis phoned and to be honest what she was saying went in one ear and out the other. All I heard were the words 'hospice', 'morphine' and 'Macmillan nurse'. DS, DP and I drove down on Friday afternoon and we went straight to the hospital. As soon as mum saw DS her face lit up, even if he was hesitant to touch her to start with as she looked very poorly. She was saying things she wouldn't normally say, things about the other women in the ward that she wouldn't normally have said, but I guess she just didn't care by that stage. We left her on Friday night very tired and obviously very poorly but she was still the same mum. My last words to her were 'I love you'.

We stayed in a hotel on Friday night and on Saturday morning I got a call on my mobile from the hospital. When the nurse first said she was calling from Barnes ward I expected her to say that mum had taken a turn for the worst and to come now or that she'd been taken to the intensive care unit. When she said that mum had passed away I didn't believe it. I was certain they'd got the wrong woman, that they'd mistaken my mum for someone else. I phoned sis and through the hysterical tears somehow managed to tell her that mum had died. Sis, her partner and I drove to the hospital, breaking several speed limits along the way. It was 7.30am and the roads were quiet.

Nothing can prepare you for how someone looks when they're dead. Mum was already turning yellow through her condition. The bedsheet was pulled up to her neck and she had a pink tulip on her pillow from the bunch that DS took for her the previous night. She was an awful purple and yellow colour, stiff, cold, clammy and just not mum. Her ears were deep purple and her cheeks were turning purple. Her lips were dark and sunken into her mouth like she disapproved of something. Sis stroked her head and I held her hand, neither of us quite believing that it had happened so quickly. We were in no doubt that mum's condition was a 'when', not an 'if', we just didn't expect it to be so quickly. When the nurse phoned to tell me she'd died I asked what had happened and the nurse said that mum had been a bit unwell in the night and when she'd gone to check on mum at 7am she found her unresponsive and started CPR, and it was decided 10 minutes later that there was nothing more they could do. Sis asked the same nurse at the hospital what she meant by mum being unwell. The nurse said that mum had gotten up to go to the toilet at about 6am and fallen, but they weren't sure if she'd fainted or tripped, but that they put her back to bed and given her some pain relief.

We're all taking comfort from the fact that mum died peacefully in her sleep, though I've got questions going round in my head asking why the nurse didn't call us when mum fell at 6am, and how someone can be up and about at 6am and dead an hour later. The berevement service at the hospital are getting the nurse on duty to phone me and hopefully answer the questions going round in my head. Mum's passing was inevitable, and she was very very ill, though I guess I didn't realise just how ill she was. Sis and I both wanted to be with her when she died, although mum has talked on several occasions about death, saying that it's an inevitability that comes to us all and that it's something we have to do alone, even if we're surrounded by our loved ones. No one can come back and tell you what it's like, what to do, what to say.

I read in the news this morning about that horrific car crash in Gloucester over the weekend and also the girl who was murdered in Goa and I think to myself that at least we got to say goodbye to mum, whereas the loved ones of some people who died over the weekend didn't get even that, coupled with knowing that they died a violent death. That's horrific and my heart goes out to people to whom that has happened.

There's a poem I want to be included on the Order of Service at mum's funeral. It's called Death Is Nothing At All, by Canon Henry Scott-Holland. It was included on my grandad's Order of Service when we buried him 14 years ago and I think it was the way mum viewed death.

Death is nothing at all
I have only slipped away into the next room
I am I and you are you
Whatever we were to each other
That we are still
Call me by my old familiar name
Speak to me in the easy way you always used
Put no difference into your tone
Wear no forced air of solemnity or sorrow
Laugh as we always laughed
At the little jokes we always enjoyed together
Play, smile, think of me, pray for me
Let my name be ever the household word that it always was
Let it be spoken without effort
Without the ghost of a shadow in it
Life means all that it ever meant
It is the same as it ever was
There is absolute unbroken continuity
Why should I be out of mind
Because I am out of sight?
I am waiting for you for an interval
Somewhere very near
Just around the corner
All is well.

OP posts:
Aitch · 10/03/2008 13:46

i'm very sorry for your loss, mrsa. when my dad died i was frightened that i wouldn't get the image of him dead out of my mind, but for me the memories of him vital and alive before he got sick did come back slowly and now they are what i think of, not a sick person. i don't know if it's something that's worrying you but that was my experience.

nickytwotimes · 10/03/2008 13:47

Sorry for your loss archie. I am lucky enough to still have my mum, but lost my dad 3 yrs ago. It does get easier over time, but you never forget what someonen looks like when they die or are dead. Neither do you forget all the nice things too though. all the best over the next few difficult weeks. ntt x

etchasketch · 10/03/2008 13:53

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Shhhh · 10/03/2008 13:57

your initial post was so touching and so very much from your heart.

Makes me realise how precious life is....its brought several tears to my eyes......

{{{{{{hugs}}}}}} thinking of you and your family. x

toratora · 10/03/2008 14:12

So sorry to hear about your mum. A friend wrote me a letter when my mum died and said that you must allow yourself time to be quiet and grieve amongst all the bustle that is necessary following a loved ones death.

The poem is a lovely one, my dh read it at my Mother's funeral. We also had this one by Joyce Grenfell, which is really matter of fact and just as my mum used to be!

If I should go before the rest of you
Break not a flower nor inscribe a stone,
Nor when I'm gone speak in a Sunday voice
But be the usual selves that I have known.
Weep if you must,
Parting is hell,
But Life goes on,
So sing as well

Thinking of you and your family. xx

onebatmother · 10/03/2008 16:58

How very, very sad for you, Mrs Archie, I'm so sorry to hear that.

I really hope that the fact that you were near and had seen her so recently, and that she died in her sleep, will be of comfort to you once you have got over the appalling shock.

How lovely to hear your DS thinking of his granny.. My ds was only 1 when my mother died and I really, really wish that he could remember her. He says he can, but..

ShinyHappyPeopleHoldingHands · 10/03/2008 17:09

(((((Archie)))) Thinking of you sweetheat. SO much of what you have described was experienced by my DH when we lost MIL 18 months ago to a brain haemorrhage.

Thinking of you all xxxxx

Califrau · 10/03/2008 17:09

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Message withdrawn at poster's request.

MrsArchieTheInventor · 15/03/2008 23:05

Thank you all for your kind messages.

Mum's funeral is on Monday. It still feels like I'm talking about someone else, a distant relative or someone like that. I saw mum in the chapel of rest on Thursday with my sister, our dad and my sister's partner. Mum and dad divorced in 1991 so it felt a bit strange in one respect but not strange at all in another. He obviously still had feelings for her.

Mum looked wrong. There's no other way to put it. She was still bloated from the cancer but what struck me about the rest of her was how thin she was. Her bottom lip was black and her whole mouth looked so disapproving. Her eyes had sunk into the sockets and the lids were red, like she'd had an extremely late night with a lot of alcohol. I asked to be alone with her for a few minutes and I didn't know what to say to her. This sounds so disrespectful but I hate that thing that is in the chapel of rest right now. It is not my mum. It's a diseased corpse, a cancer that won the fight to take over my mother's body, and I'm glad that we're cremating her so she doesn't have the indignity of her body rotting in a grotesque way that is dictated by the cancer.

I'm so sorry if what I'm writing is not what I should be writing or indeed thinking right now, and I'm sorry if it's insensitive, but I can't help the way I feel.

OP posts:
Wisteria · 15/03/2008 23:09

Mrs Archie - I'm sorry.

The poem is lovely.

There is nothing you should or should not be writing, doing or feeling right now - we all deal with it completely differently and we all deal with it in the way that is right for us at the time.

Thinking of you for tomorrow and wishing you all the love and strength that I can muster

snowleopard · 15/03/2008 23:10

MrsArchie, don't be sorry. It is so honest of you to really write about what you feel - and to be in touch with it at this time - and I'm sure it will be helpful to you that you've acknowledged these feelings. And also I'm sure they are very normal.

My best wishes for you for Monday and that it will be a true tribute to the real person that was and is your mum in your heart.

Sparkler · 15/03/2008 23:12

So sorry to hear you have lost your mum.

Do you know what? I have posted on mumsnet in the past asking people if they really mean it when they say they are shedding a tear or more at a thread and how I can never feel that way not knowing someone in RL. Your post, however, has touched me enormously and, here I am, tears in my eyes and a lump in my throat.
The poem is truely beautiful and every word so true of what everyone thinks for their loved ones when they pass on.
Sending you and your family my love and thoughts for this very sad time.

Sparkler
xx

BecauseImWoeufIt · 15/03/2008 23:15

MrsArchie - there is no right or wrong way for you to feel. It is your life and you are dealing with the situation in the best way that you can.

None of us is ever prepared for the death of a close relative, especially our parents or our children, so there is no 'set' way that we should grieve.

My mum died almost 4 years ago from advanced breast cancer - in her case, she contracted an infection during her first stage of chemotherapy and died within 3 days. Although we knew that her prognosis wasn't good, we had expected that she would have a year or so with us, so it was a real shock when she died.

We had the call from the hospital to say that her condition had worsened and by the time we got there (literally 15 minutes later) she had already died, but was being kept alive on a ventilator until we got there.

I know exactly what you mean about being a shell - it was my mum on the bed but absolutely not my mum.

All that I can say is that over the years, although the memory of that time in the room with her will never fade, other memories have come to the fore and I think much more of her when she was alive and vital.

Look after yourself and be kind to yourself. Let yourself grieve in any way that seems right to you and don't let anyone tell you how you should grieve or feel.

The greatest gift that you have is knowing that she loved you and that you loved her. That will never change.

SorenLorensen · 15/03/2008 23:16

I didn't read your earlier posts - but I just wanted to say I'm so sorry, and don't apologise for anything you need to talk about. You sound like you are still in shock - understandably so - so just post away if it helps you to try and make some sense of it. You're right - your Mum is not there any more, that's just her body, and it must be horrible to see her like that. You sound like you are handling things with your ds so well - your post about baking made me cry, but you're talking and he's talking and that's the best thing of all. The funeral will be so hard - but most people seem to gain some kind of 'closure' (awful term) at the funeral...oh, I'm just waffling really. It's never the right time to lose your Mum - and it was so fast Take care x

Califanjo · 15/03/2008 23:18

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WallOfSilence · 15/03/2008 23:19

Please accept my deepest sympathies MrsArchie xx

Go · 15/03/2008 23:20

So sorry to hear your news. It must be a dreadful shock to you. Thinking of you x

Tinker · 15/03/2008 23:20

I didn't see this thread earlier either. I'm so sorry. Losing your mum is awful, really awful. I'm so sorry.

Pamina · 15/03/2008 23:23

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Desiderata · 15/03/2008 23:26

Eh, lass. What a beautifully written OP. I'm glad you got that out. You made me cry, and that doesn't happen very often.

It will take some time to get over the shock of your mum's death. Even when you expect it, the news hits you straight in the womb, like half of you has suddenly disappeared.

You'll recover, given time, of course you know that. I am very glad that your last words were 'I love you.' Over time, those last words will take on a lot of importance to you. So many people die without hearing that.

Take care. You'll be fine. You will be fine, gorgeous.

MrsArchieTheInventor · 15/03/2008 23:27

DS has been quite matter of fact about it, asking why people die and what happens when they die. However when I was putting him to bed tonight he got quite upset when I told him that even though he sometimes made me sad that I'd always love him (he's been, for want of better words, a little shit today) and he got upset and started sobbing about mum. He eventually went to sleep in my arms with tear filled eyes and when I lifted his head to move my arm he stirred and asked me to leave the light on. It's going to be hard for him knowing that he can't cuddle mum again. He asked me if mum dying meant I didn't have a mummy now and when I said yes he said that DP's mum could be my new mummy. I don't know what to say to that.

OP posts:
Wisteria · 15/03/2008 23:29

I went through that with dd1 when my Mumm died - she still cries from time to time about it all but has reached a place where she understands.

paddingtonbear1 · 15/03/2008 23:35

oh MrsArchie, I am so sorry to hear about your mum. My mum died of cancer (she also had liver secondary) a few years ago. Even if you expect it, it's still a shock.

I saw mum after she'd died, and she looked very like how you have described - yellow, extremely ill, not like mum at all. For a while I couldn't get the image out of my head. Now when i think of her, I remember how she was before - she was an active person when healthy. When I am out with my dad, just little things remind us of her, but they are good memories.

Take one day at a time, and take care xx

brimfull · 15/03/2008 23:37

aww mrs archie-it must be so hard

your ds is worried about you.

he wants you to have the maternal love that he has..children are so sweet aren't they?

elkiedee · 15/03/2008 23:39

I can only say I'm sorry, and I hope you find solace in writing about it on here and from the support you're getting.

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