Question on adults with autism/social services/rights & responsibilities.......

[yorkshirepudding]

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SS are a fucking disgrace.

She could try the NAS but ultimately she needs to get very heavy with the SW. I would suggest she needs to get her sister moved to better provision as well (she could ask the NAS to send her a copy of 'Communication' magazine full of adverts for decent adult provision). One excellent adult provision I know of is Coombe House run by the Priory. Your friend's sister may be too able (from the sounds of it) for the sort of services that Coombe House currently offer but I would suggest ringing the guy in charge of Coombe House and talking through things with him. Priory is a big organisation- he's a very helpful man.

Then land SS with the bill for decent adult provision.

In any dealings with SS you have to be ultra stroppy and ultra difficult. You have to tell them that crap provision is not acceptable, (you being 'one' one). That they will be responsible if something goes wrong and the sister is lost. Tell the SW she will be held personally responsible by the family. It also sounds as if she now needs 52 week provision whilst her father is ill and her mother is caring for him.

I'd really recommend ringing the Coombe house guy - search for it, and getting the lastest communication to research what else is out there.

Coombe house It says up to 30 years here although when I met the guy he initially said up to 50's. I'd still ring him because he's helpful and will be able to suggest other things. Or flick through Communication and ring around. If you ring the private providers they should be able to give advice on SS funding.

Also keep a log of escape attempts and start kicking up a stink with SS- they are ultimately responsible - and really look for good adult provision.

As a comparison - we aim to get ds1 into excellent adult provision. A place where they will continue to educate him. We want him to 'want' to stay there, so that ds2 and ds3's role will be to care about him, not for him. I would expect them to become rotweillerish with SS. I would not expect them to have to drop everything and juggle their own families with hands on care for ds1. That would be far too much.

There are some good place out there. But they're expensive so SS avoid them. Which is why your friend will need to start hassling them and letting them know she will not go away and that she will be insisting that her sister receives good care.

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x posted- coombe house link above. It's in Devon. But the Priory are a national group and have various types of homes all over the country (and if you go for full time it doesn't have to be local for SS to fund it anyway iyswim).

I'd ring the NAS and just ask them if they'd mind sending a copy- explain the situation (they sent me an extra copy recently when I emailed them).

52 week provision is full time. SS pay a home for a certain amount. It sounds as if currently they are paying for 5 days a week. They need to be paying for 7 days.

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They don't have that much suitable on their website but I know they're planning the sort of homes you've described in the OP so definitely worth talking to I think.

But communication has loads other as well.

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