If anyone would like to purchase one, you can order it \link{ www.thebarnesboys.org.uk/\here}. It's called CFolk (as in CF Folk) and contains pictures, mainly kids, of lots of the UK CF community.. well whose proud mummies sent pics in to Livvy, the lady who puts these together, and who has 2 boys with CF.
Please also send on the link by email to anyone else who you think might like one..
Thank you,
SJ x (with a temporary cheerful name.. )