I was shown around the local SCBU today, in case...

[emkana]

... my baby needs to spend some time there.

It was so odd, felt like it had nothing to do with me, even though a large part of me knows this might become a reality, another part is just in complete denial.

Emkana,
Under BUPA you can search for private specialists by their specialist field? Don't know if that would help??
My DS was a SCBU baby and have nothing but praise for the unit and Drs/Nurses.....its not as daunting as it first looks!!

Thinking of you x

I've googled a little and found out that Great Ormond Street Hospital do a skeletal dysplasia clinic (\link{http://www.ich.ucl.ac.uk/gosh/clinicalservices/Clinical_genetics/InformationforHealthProfessionals\here's the page with the info}). I'd suggest ringing the GOSH switchboard, asking to be put through to the clinic or the secretary of the consultant in charge of the clinic and see whether you can manage to talk to him/her directly.
I've taken this somewhat rogue approach a few times for things related to dd and have always found the consultants very friendly and happy to help.
HTH

Hi emkana, I hope your baby does not have to spend any time in SCBU. But even if he/she did, it could just be for monitoring. I never encountered lovelier more caring nurses than in SCBU. Your baby will be well taken care of.

Emkana

Just wanted to offer you some support, we spent 10 weeks going backwards and forwards to a SCBU last year with DS, and although at the time, everything felt really awful, I have genuinely fond memories for the most part when I look back at that time. I will always remember the wonderful, caring nurses and doctors who looked after DS. A SCBU is intimidating at first but if your baby does end up in there, it will definitely get better as you learn what all the alarms, lights and sounds mean.

Best wishes

CGMum

Just to confirm what geekgrrl says Emkana, we spoke to one of the directors of the charity that support's ds's condition, and asked him off the record - if it was his son - who he would speak to. We then spoke to that specific consultant's secretary, who got him to call us, and he couldn't have been more helpful.

I don't know if you've got the energy to push at the moment - I know I left a lot of it to dh at the time, and he wasn't worried about going over people's heads, or not following the system!

Take care of yourself.

thank you very much for all the kind words, encouragement and advice!

Have to Echo what another poster said about the nurses in Scbu being so very caring and fantastic at what they do. We had dd4 at 33 weeks and were so very greatful to the care and support that got us through the 1st few weeks

Thinking of you xxxxxx