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My mum is critically ill...

93 replies

willow2 · 15/01/2006 18:57

Excuse the rambling post, but my head feels as though it is about to implode.

We were away over Christmas and NY (Oman, staying with friends, unreal holiday). Spoke to my mum on New Year's Day - she had a bad cold but was otherwise ok. The next day we went camping in the desert, so were completely uncontactable until the 4th. As we drove back I turned my phone on to find various rambling messages about my mum. Finally, I managed to get through to my brother and found that my mum was now in intensive care. Fortunately, we were flying home that night anyway - so I went straight from Heathrow to the hospital. And I've been there every day since. Mum was heavily sedated and on a ventilator - she'd burst her lung through coughing and the other lung had collapsed - but still in a terribly distressed state. Spent the first two days trying to stop her pulling her ventilator out. Then they operated on her lung to seal the holes. She made it through the operation but the surgeon found her lungs were in a terrible condition - turns out her "asthma" is really emphysema, but then that's probably not something you admit to your family when you are a heavy smoker who has tried everything, including Zyban, to give up but, actually, don't really want to stop. Plus she had double pneumonia. Plus she had another infection.

For about five days she was out cold - heavily sedated, ventilated and, at one point, on dialysis because her kidneys failed too. (They seem to be working again, but who knows what's around the corner.)

Now, nearly two weeks after being taken ill, she is still in intensive care, still on a ventilator, still not free of pneumonia or the other infection and still in a terrible state. She is now conscious - well, kind of. She's very confused and, I imagine, absolutely terrified. I know I am.

Yesterday, because she'd had been intubated for so long and was having such a dreadful time coping with the tube going through her mouth, they did a tracheotomy - so now she has a sodding tube going into her neck to make sure she can breathe. Supposedly, it's temporary. I bloody hope so - apart from anything else, she's not the sort of woman to enjoy doing Darth Vader impersonations. Not that she can even do that yet, she still doesn't even have the strength to breathe, let alone speak - and that's getting to her too, understandably. To be honest, she was in a foul mood today - annoyed that we couldn't understand what she was trying to say (she can't write anything yet - she's too weak plus she has such dreadful odoema that she can't really hold a pen as her hands are too puffed up) annoyed that I wouldn't let her guzzle down glasses of water (because if she drinks too much, too quickly, she'll be sick. Not a good idea when there's half a yard of garden hose down your throat.)

I understand that this is all part of the "healing" process - if she wasn't getting upset and depressed it would be more worrying - but it is so hard to see her going through all this. I know that she is making small improvements in the right direction - but she is still so terribly ill that I can't relax for a second or take any strength from these tiny steps. Everything happened so fast two weeks ago and I'm just petrified that she'll get another infection or something. (Die, I suppose.) She's only 64 - and she's a massive part of my life. We are best mates and I'm terrified for her (and for me) that if she does make it through all this that she will be a pale shadow of the person she used to be - hooked up to a bloody oxygen tank or worse.

I'm spending all "school hours" at the hospital. I'm not alone - my lovely step-father is there as are my aunt and uncle. Plus my brother, sisters and step-sister are in and out too. We kind of have this shift system going where we take it in turns to sit with her. But I daren't voice my worries to them, least of all my step-father who would be lost without my mum. So I'm going to put them here - if that's ok with you lot.

OP posts:
Kittypickle · 15/01/2006 19:03

willow2, I don't know what to say but didn't want to read this and not post. It must be a huge shock and very hard to see her like this. I hope she starts to turn the corner very very soon.

Beetrootfultoyourself · 15/01/2006 19:07

Hey Willow, What a nightmare you have ben through jover the last two weeks.

All I xcn say is hang in there and even if she cannot speak, gets angry, frustated, she will apreciate you being there for her.

Take care.x

hunkermunker · 15/01/2006 19:07

Oh, Willow, I'm so sorry

I really hope she starts to get better very soon. Is the fact she's annoyed about what's happening a good sign? It must be so hard for you all x x x

BudaBabe · 15/01/2006 19:09

Oh Willow2 - what a nightmare.

Hope your Mum gets stronger - hopefully the tracheotomy will help.

Poor thing - I'm sure she is terrified. All you can do is be there.

Hausfrau · 15/01/2006 19:09

This reply has been deleted

Message withdrawn at poster's request.

Tinker · 15/01/2006 19:10

Willow - sounds frightening. Write away on here, hope it helps.

collision · 15/01/2006 19:11

How awful for you all. I do hope she is soon better.

Feel free to rant away on mumsnet!

bundle · 15/01/2006 19:12

bloody hell, you poor thing. my dad has COPD and mum has been in your situation many many times, and it's very scary. rant away on here, if it helps, x

PrincessPeaHead · 15/01/2006 19:14

oh god willow that sounds awful, I'm so sorry for you. and your family. are you happy with her care? it sounds like she is being pretty well looked after. I don't know what to suggest- I think it is going to be one of those situations where you are paralysed with fear for the next fortnight and then when it is clear she has turned the corner and will recover (I'm sure) you'll just collapse with relief and exhaustion. Make sure that your dh/dp is waiting for that and is there to support you. You can't dwell on the what ifs - what if she gets another infection, what if her tracheotomy is permanent - because as long as you are happy with her care all these things are out of your control and you have too much to think about anyway. I'd just keep venting on here, and keep going through the hospital shifts on autopilot, and make sure you look after yourself and eat well because this sort of stress can be so difficult to cope with.
My mum is only 68 and completly vital and still working and etc etc - but as you say things can change so fast - she had a minor stroke once which completely freaked me out - and it is terrifying.

xx

Piffle · 15/01/2006 19:15

Willos so sorry to hear of your mum going through all of this
I hope she makes some decent progress very soon
Hugs
xxxxxxxxxxx

Frizbetheexpansionset · 15/01/2006 19:45

Sorry to hear this hope your mum's on the mend soon {{{{hugs}}}

Charlee · 15/01/2006 19:51

Thinking of you and your family Willow xx

Sallystrawberry · 15/01/2006 20:08

This reply has been deleted

Message withdrawn at poster's request.

puff · 15/01/2006 20:09

Willow, I hope she begins to improve soon. This must be very distressing for all of you.

WideWebWitch · 15/01/2006 20:11

Oh god willow, I'm so sorry. Please do put your worries here. I do have some idea of what it's like, poor you and your mum. Email me or post if there's anything I can do. x

hoxtonchick · 15/01/2006 20:18

oh god, how awful willow.

Prufrock · 15/01/2006 20:27

Willow I'm so sorry.

Have you thought of making a wooden board with letters on it so she can point with a stick and spell out requests? It's a tortuous process, but better than not being able to comunicate - we did one for my Grandad when he was in hospital years ago and being able to tell us what horses to put his bets on really improved his mood.

FrumpyGrumpy · 15/01/2006 20:29

Hi Willow2, this is awful for you and so shocking - we always think these things won't happen to us.....

Do keep us posted, having the chance to give a blow by blow account to someone really helps - I find it helps you sort it in your own mind if nothing else.

I take it you've tried "squeeze my hand once for no, twice for yes" type stuff?

I unexpectedly spent 8 days over Christmas in hospital with dd1 and it took me a few days of being there 23 hours a day to really click in with the routine. I hated having a new nurse every shift when it had taken half of the previous shift to get the last one up to speed on things. In saying that they really were lovely, just terribly overworked. I ended up familiarising myself with everything - procedure for empyting bedpans, kitchen labelling routine (dd had special foodstuffs), where fresh towels were etc and then did a lot of the 'nursing' myself. The nurses were ok with that and I found them to be right there when I really needed them. I don't know if thats helpful.

Its so tough having to be in two places at once, you always feel torn don't you.

Keep being there for her and don't feel bad about having some time out - it won't be restful but helps keep it in perspective and you come back a tiny bit fresher.

Post soon.

bluesky · 15/01/2006 20:32

willow2, I'm really sorry, it sounds very scary and worrying for all of you. My mum was very ill with pnuemonia a few years ago, everything runs through your head, and everything becomes focussed on the hospital and you just seem to whirr and whirr.

Just take it a step at a time, and try and find time to relax, make yourself get in the bath, if you have time to cook, double the quantity to freeze half for when you dont have the energy.

My mum didnt seem that bothered in seeing us, the main person she wanted to see was my little ds who was about 2.5 at the time. It didn't phase him at all, he would sit on her bed colouring or singing (twinkle twinkle I remember) and she would just love to watch him.

Keep posting, it will help. Lots of love. x

FrumpyGrumpy · 15/01/2006 20:33

Oh yeah, and our hospital had a fantastic place where I could go for a shower. I didn't use it for long as dd would have been a bit upset but when dp sat with her I showered. Shower not needed maybe in your case but it also had a kitchen where you could microwave your own meal or make tea etc (the cafe/canteen gets a bit tiresome after a while and not always open). It was really clean and fresh and made a difference to a difficult time - maybe you could enquire, they don't always volunteer the info.....

bluesky · 15/01/2006 20:33

Prufock, I love the horses story!

suedonim · 15/01/2006 23:53

Just wanted to send you some sympathy, Willow, and best wishes for your mum's recovery. Take care of yourself, while in the midst of all this.

JoolsToo · 15/01/2006 23:58

thinking of you at this worrying time willow2 - hope your mum is soon on the road to recovery

mears · 16/01/2006 00:27

willow2 - so sorry to hear about your mum. Sending best wishes, mears

HellyBelly · 16/01/2006 09:04

Poor you! My thoughts are with you and your family! Wishing your mum a speedy recovery xxx

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