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Incorrect Medical Files

5 replies

skatingmum · 20/01/2011 16:09

For the past 7 years my 2 DD's have been subject to SS involvement, at risk register until last year, all because 15 years ago I was suffering from severe PND, my ex-husband told SS at the time that I had been diagnosed with MSbP.

3 years ago I discovered that It was my ex who had told both SS and Drs that I had been diagnosed, but neither had checked with each other as, at the time my ex was a learning disability nurse, and they took his word for granted, and wrote that I had MSbP on my medical notes.

I wrote to both the health authority and SS where I lived at the time who had diagnosed the condition. SS wrote back saying that they had never diagnosed me, however the health service said that because it was in my health notes the diagnosis must be true even though they have been unable to provide me with the person who made the diagnosis, nor provide any evidence that it ever has been diagnosed apart from a line in my GP records saying diagnosed MSbP.

Armed with this new information I went to SS to show them this new information showing that I wasn't the evil person my ex had made me out to be. Which to my amazement they didn't believe and insisted I undergo a psychological assessment? This I eventually did even though I didn't think I needed it but was told that if I didn?t do it then I must have something to hide and would loose my children.

Having undergone the assessment the psychologist clearly wrote in his assessment that I was no risk to my children, and that having reviewed all my previous paperwork from both SS and GP that I never had been. My DD's were finally removed from the at risk register and I thought that I would be able to get on with my life.

How wrong could I have been, I recently moved back to England from Scotland, where I was living at the time of SS involvement, to be closer to my parents. Because the GP refused to remove the diagnosis of MSbP off my records SS are again involved and have put DD's on a supervision order (still haven?t been told what this is).

I have tried to get my medical records amended but the GP refuses even with all the evidence about not being diagnosed. I have written to Mr Cameron, Brown and cabinet ministers (both past and present Government) who wrote back saying they are very sorry about what they have read but they can't get involved in individual cases, or it isn't there department.

This has put an enormous amount of stress on my family, has made my present DH seriously ill and my DD's suffer emotional problems.

I don?t know who to turn to for help and feel like I will be a label for the rest of my life.

I am not looking for media attention just to have information held on my medical records corrected and not have to worry about seeing a Dr and they go running to SS if my DD's are ill.

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ThisIsANiceCage · 20/01/2011 20:32

skatingmum gutted for you to hear all this. I still don't have any answers, alas, but I do know of other people here who've had related difficulties.

The thread (Am I Being Unreasonable) To be terrified of registering with GP is about similar problems.

And it's possible some of the parents of children with ME/CFS have lived through similar. There's a thread at Anyone with child with chronic fatigue syndrome?.

hugglymugly · 20/01/2011 21:01

This is a horrible situation to be in, where a label gets stuck on you without justification. If you are able to provide all the relevant documentation then there's no reason for your GP to ignore that.

Incorrect medical records can have all sorts of repercussions, and if your GP will not accept the evidence then a complaint to the GMC would seem to be appropriate.

In the meantime, have you tried your local PALS?

skatingmum · 21/01/2011 17:40

it is not the best, yes I have been to PALS all 3 PTC's and the GMC state they can not deal with it due to the fact it is in the records - DPAct, as med records belong to the sec of state for health - the fact is even though we have a report written in Feb 2010 and Feb 2004, it has has started all over again 2011 now we are back in England, all the MP's who PCT's are involved just state go to court as a carer, we can't afford to and now with the changes in legal aid - their excuse is oh its to complex which translates we wont get paid enough - All the original PCT can state is "we will place a note stating the truth but only on the files they hold".

I have learnt all about the repercussions thats why I had a nurological plip (mini stroke) and both DD now emotional and other problems so both only sleep opposite 4hrs and DH seriously ill - so I get a break for an hour in a 24hr period but that seems to be life. I dont want sympathy I just want the truth to be told.

I just would like people to realise that records can be wrong and please check all records question what is written in their records if they feel they are inaccurate - it really would be interesting in finding out exactly how many people in this country go through what we have been through.

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hugglymugly · 21/01/2011 19:48

Having now also done some googling, I have to say that I'm shocked that almost nothing can be done to correct errors in medical records.

I'm also shocked that your ex-h seems to have paid no penalty for his nastiness. I hope he's no longer involved with your DDs.

I really don't know what else to suggest. I'm not at all surprised that all this has had an effect on your health and family life.

skatingmum · 21/01/2011 21:30

hi hugglymuggly, it would be ok if he was anything to do with DDs but no - he did this in 1995 and took my 4 older children with help of ss - they dont even know of dds born after 2002 so when ss contacted him to ask his advice a little shocked. The worst thing is my eldest dd (25) married last year and we found out through facebook she lives quite near - how do you tell her after 16yrs ex-h gave inaccurate information to distroy me but it has actually made me a stronger and more determind person and may I add improved my education, in trying to sort out this mess.

It very kind that people are supportive but I will keep on fighting not just myself but for everyone else because my so called diagnosis was discredited oct 2004 but is still used

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