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Managing autism shutdown and sudden low mood in neurodiverse adults

6 replies

Roryrabbit · 16/03/2026 12:03

My mood keeps dropping very low ,I thought it was possibly bi pola but my doctor and chat gtp are both saying it's autism shutdown
I do have a diagnosis of autism and waiting for ADHD asessment.
I'm really struggling to manage myself for the time the mood drops low ,
So I'm looking for advice on how others manage it .
Usually it's gone by the next morning..
Any ideas ?

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Roryrabbit · 16/03/2026 12:05

Actually if anyone knows of any books that have a good section on autism shutdown,I'd be gad of recommendations

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BlueSkiesADHD2026 · 09/04/2026 19:42

There's one about autistic burnout by a doctor on Amazon. Sorry don't have a link.

In terms of shut down, I've got better at recognising the feeling when it's coming. Just that has helped to somehow break it a little. Mine is often verbal shutdown so I feel it in my throat.

Also there's a head one that's like an exploding head feeling.

I find reflecting once its passed is helpful- what were the triggering factors, can any of those be resolved. Can you change thoughts about it or try a grounding safety ritual type thing.

Roryrabbit · 10/04/2026 11:18

Thankyou for your reply ,much appreciated
Usually it's today with someone or something outside my control
I've just been diagnosed with ADHD and been prescribed concerta xl so I was hoping that will work

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Roryrabbit · 10/04/2026 11:19

I don't know where the word today came from ...or even what word I was meaning to put in it's place 🤣🤣

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ChaosAndCrumbs · 18/04/2026 09:28

So, to me, this suggests you're not meeting your own ND needs and are heading for burnout, so you need to make some changes. Lots of us, especially those of us with later diagnoses, go through this because we're still learning how to pinpoint our own needs. Equally, needs aren't static and can change. It can be a really big and gradual journey to move from expectations others have that might be far more manageable for a neurotypical person to those which are manageable for an Autistic person, but it's very worth it to keep exploring what works for you. (This goes both ways, too, for example, an autistic person might be able to work very deeply on something for several days and not do a lot else, but a neurotypical person could find that very draining and essentially impossible.)

My suggestions would be to look at the things you find hard, thinking about, but not limited to:

  • Sensory Needs
  • Any needs around structure or predictability
  • Interaction or Communication Needs
  • Validation of lived experience (lots of Autistic people are told they shouldn't feel such and such or are overreacting and this can do lots of emotional damage)
  • Physical Needs
  • Ability to access special interests
  • Needs around Autonomy
  • Other social needs

What can you put in place to support these needs? When I say to explore it, I literally mean to try these things out, so if you think constant low level noise may be making you dysregulated, trial ear defenders and loop plugs. Often, we need to go through a stage where we really reduce demands to recover from the shutdowns and avoid burnout. Have a look at StruggleCare, which has some really useful suggestions on how to make really helpful changes based on spoon theory that can make big differences when you're Autistic. 🙂

I'd also make a 'shutdown box' for the short term. In this box, put all the things that help you regulate when you feel like this. You can include lists of films or music if those are hard to think of in shutdown, you can include a Nesti or weighted blanket, a special drink that helps comfort you etc.

Hope this makes sense and is helpful, it's something I've very much had to explore for myself and my children too.

Roryrabbit · 18/04/2026 12:51

@ChaosAndCrumbs thankyou so much for your lovely message,I totally get what you are saying,in fact my counsellor said pretty similar things yesterday.
I had a really bad d shutdown last Sunday,and that was due to not meeting my needs ,to of put myself in a situation I knew I couldn't cope with .
It's difficult as I have 4 adult children and a DH ..I only got diagnosed 3 years ago with autism,and recently with ADHD ..and I used to just push through my feelings and do whatever was expected of me ... literally never saying no to anything asked of me .. especially my DC ..and last Sunday I knew I couldn't cope with a situation my son asked of me ,but I did it anyway.
I'm starting to realise my family have not adjusted their expectations of me..I'm still expected to put everyone else first regardless of if I can cope with it or not .
My Dd has started to realise I'm different from when she was younger,but she's frustrated with that ,and I get sarky comments if I try to advocate for myself.
I guess people don't like change ,or like people changing,and realising the person you knew was masking the whole time ,and can't .
Which is basically what I think are causing my extreme mood swings .
I need to start to put myself first ,or at least start to say no sometimes to things I know I'm going to struggle with , because they just cause a shutdown after .
@ChaosAndCrumbs thankyou you have given me lots to think about , sorry for rambling on x

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