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Neurodiverse Mumsnetters

Use this forum to discuss neurodiverse parenting.

I hate being nd

43 replies

EchoInVoid · 13/11/2025 19:23

Anyone else hate being nd?

OP posts:
Icybird56 · 14/11/2025 11:46

Yep
If there was a medication I'd take it
I've . literally just started a thread ,asking how others are managing their autism

EchoInVoid · 14/11/2025 15:45

Icybird56 · 14/11/2025 11:46

Yep
If there was a medication I'd take it
I've . literally just started a thread ,asking how others are managing their autism

I've posted on another group and most people's responses were that being autistic is a "superpower " and equally annoying things. I don't know how other people do it. Its everyday things, that should be so simple, cause me so much stress. I'm barely functioning.

OP posts:
Icybird56 · 14/11/2025 15:48

Superpower my arse
I'm on a group where they say it's not a disability...but not all have a diagnosis
I don't know ..

Icybird56 · 14/11/2025 15:49

I'm really struggling at the moment as well ,in fact my entire life has been one long anxious struggle
I got diagnosed age 5o and it was a huge relief to know what was wrong

EchoInVoid · 14/11/2025 16:09

It is so very disabling for me. I don't think self diagnosis does alot of other autistic people any favours. They're generally people who use terms like neurospicy and quirky. It minimises the struggles that some autistic people have.
It was a relief for me too when I was diagnosed. Everything made so much sense. Unfortunately it doesn't take away the struggles. I have very little contact with people. Everyday is exhausting. I try to manage my environment the best I can to help stop sensory overload but it isn't always possible to stop the outside noise.

OP posts:
Icybird56 · 14/11/2025 16:44

EchoInVoid · 14/11/2025 16:09

It is so very disabling for me. I don't think self diagnosis does alot of other autistic people any favours. They're generally people who use terms like neurospicy and quirky. It minimises the struggles that some autistic people have.
It was a relief for me too when I was diagnosed. Everything made so much sense. Unfortunately it doesn't take away the struggles. I have very little contact with people. Everyday is exhausting. I try to manage my environment the best I can to help stop sensory overload but it isn't always possible to stop the outside noise.

I completely agree
I don't know a single person who has a diagnosis of autism
But I know some people who say they are autistic..
(and i don't know how to say what I'm trying to say ,without it coming across wrong ...)
But they are getting on with life ,their brain is not stuck like mine is
I waited 5 years on the NHS waiting list for my assessment..not once did I say I was autistic.. because untill I had been diagnosed,I wasn't autistic..in my head anyway

I feel ..I needed a proper professional to decide if I met the criteria or not ..it wasn't for me to decide.
But that's just me .

Mistressofnone · 15/11/2025 10:46

I was recently diagnosed with ADHD and the psychiatrist did not see any signs of autism. I was relieved about the ADHD diagnosis as it validated my struggles, but also relieved that I do not appear to be autistic. Personally I don’t see ADHD as a disability but more of a disadvantage. I do see autism as a disability having seen its extremes.

Certainly neither are a superpower! Although I appreciate some of the perks of how my brain processes.

I also agree that diagnosis is important. I work with someone who is self diagnosed with autism & ADHD and I really think she is barking up the wrong tree. It has become her USP and part of her role in the company, being ND ambassador. She weaponises it to her advantage and no one can call her out on it.

squishytail · 15/11/2025 13:04

I hate it, I have become obsessed with clock watching, get through the school run, get through work, get through the chores, get through the day, get through the night, get through the week, yay another birthday another year gone.
I’m just trying to get through life, it’s an uphill struggle and I’m not enjoying it one bit but what gets me through is the knowledge that I won’t be here forever and each day I get through is one less than yesterday.

EchoInVoid · 15/11/2025 13:43

squishytail · 15/11/2025 13:04

I hate it, I have become obsessed with clock watching, get through the school run, get through work, get through the chores, get through the day, get through the night, get through the week, yay another birthday another year gone.
I’m just trying to get through life, it’s an uphill struggle and I’m not enjoying it one bit but what gets me through is the knowledge that I won’t be here forever and each day I get through is one less than yesterday.

I get that. I'm just surviving each day doing the bare minimum, I look forward to going to sleep each night. I know it sounds like depression, but it's not something that can be treated with Antidepressants for me as its being autistic that causes the problems. Try telling a doctor that.

OP posts:
EchoInVoid · 15/11/2025 13:48

Mistressofnone · 15/11/2025 10:46

I was recently diagnosed with ADHD and the psychiatrist did not see any signs of autism. I was relieved about the ADHD diagnosis as it validated my struggles, but also relieved that I do not appear to be autistic. Personally I don’t see ADHD as a disability but more of a disadvantage. I do see autism as a disability having seen its extremes.

Certainly neither are a superpower! Although I appreciate some of the perks of how my brain processes.

I also agree that diagnosis is important. I work with someone who is self diagnosed with autism & ADHD and I really think she is barking up the wrong tree. It has become her USP and part of her role in the company, being ND ambassador. She weaponises it to her advantage and no one can call her out on it.

Re the person you work with; That's what does none of us who need reasonable adjustments and other support any favours.
It is great to have an answer for ones struggles. It was a relief when I diagnosed in my late teens and it probably saved my life. Unfortunately as the world changes I can't keep up.

OP posts:
Icybird56 · 15/11/2025 17:17

Mistressofnone · 15/11/2025 10:46

I was recently diagnosed with ADHD and the psychiatrist did not see any signs of autism. I was relieved about the ADHD diagnosis as it validated my struggles, but also relieved that I do not appear to be autistic. Personally I don’t see ADHD as a disability but more of a disadvantage. I do see autism as a disability having seen its extremes.

Certainly neither are a superpower! Although I appreciate some of the perks of how my brain processes.

I also agree that diagnosis is important. I work with someone who is self diagnosed with autism & ADHD and I really think she is barking up the wrong tree. It has become her USP and part of her role in the company, being ND ambassador. She weaponises it to her advantage and no one can call her out on it.

That's not good

Icybird56 · 15/11/2025 17:19

squishytail · 15/11/2025 13:04

I hate it, I have become obsessed with clock watching, get through the school run, get through work, get through the chores, get through the day, get through the night, get through the week, yay another birthday another year gone.
I’m just trying to get through life, it’s an uphill struggle and I’m not enjoying it one bit but what gets me through is the knowledge that I won’t be here forever and each day I get through is one less than yesterday.

And me
I spend all day waiting to get back in to bed ..it's the best part of my day
No demands on me ..bliss

Icybird56 · 15/11/2025 17:21

EchoInVoid · 15/11/2025 13:43

I get that. I'm just surviving each day doing the bare minimum, I look forward to going to sleep each night. I know it sounds like depression, but it's not something that can be treated with Antidepressants for me as its being autistic that causes the problems. Try telling a doctor that.

My doctor says exactly this to me
Every time I ask for antidepressants
She says your not depressed it's autism
And I say ,but everyone else with autism isn't like this ,they are coping with life ,and she says it is normal for autism what I'm describing
She's very good actually

Icybird56 · 15/11/2025 17:22

EchoInVoid · 15/11/2025 13:48

Re the person you work with; That's what does none of us who need reasonable adjustments and other support any favours.
It is great to have an answer for ones struggles. It was a relief when I diagnosed in my late teens and it probably saved my life. Unfortunately as the world changes I can't keep up.

I agree

Icybird56 · 15/11/2025 17:23

It's lovely to find other people I can relate to
But sorry your struggling to

EchoInVoid · 15/11/2025 17:33

Icybird56 · 15/11/2025 17:21

My doctor says exactly this to me
Every time I ask for antidepressants
She says your not depressed it's autism
And I say ,but everyone else with autism isn't like this ,they are coping with life ,and she says it is normal for autism what I'm describing
She's very good actually

That's a good doctor, usually I get the opposite. I can't be bothered with health professionals either😂

OP posts:
EchoInVoid · 15/11/2025 17:34

Icybird56 · 15/11/2025 17:23

It's lovely to find other people I can relate to
But sorry your struggling to

Yes it's refreshing instead of the usual "neurospicy" shite

OP posts:
Floopdifloo · 16/11/2025 20:10

Strongly agree with everything on this thread, especially the “get through” and “one less day” comments.

Somebody I know recently talked about going to see the doctor because she’s concerned about her mental health, and she described what sounds like mild depression. I definitely hope she gets the help she needs but it really struck me that what she was describing was me on a good day, yet it’s bad enough for a neurotypical person to be concerned enough to go to the doctor.

I’m just really tired and fed up, and it’s not depression, it’s fucking autism!

Icybird56 · 17/11/2025 13:40

Just wondering how everyone was doing

Icybird56 · 17/11/2025 13:41

The thread by Christmascats4 is me ,about anxiety,as Im still struggling

EchoInVoid · 17/11/2025 18:11

Another day nearly done. No meltdowns today so thats good.
I'll read your other post.

OP posts:
Icybird56 · 17/11/2025 18:13

EchoInVoid · 17/11/2025 18:11

Another day nearly done. No meltdowns today so thats good.
I'll read your other post.

Well done ..me to

EchoInVoid · 17/11/2025 18:13

Floopdifloo · 16/11/2025 20:10

Strongly agree with everything on this thread, especially the “get through” and “one less day” comments.

Somebody I know recently talked about going to see the doctor because she’s concerned about her mental health, and she described what sounds like mild depression. I definitely hope she gets the help she needs but it really struck me that what she was describing was me on a good day, yet it’s bad enough for a neurotypical person to be concerned enough to go to the doctor.

I’m just really tired and fed up, and it’s not depression, it’s fucking autism!

And then it becomes autism plus depression sometimes. Depressed because of the difficulties that being autistic bring.

OP posts:
Floopdifloo · 17/11/2025 18:33

Well, I don’t see stress building until it smacks me right in the face. Last week I had a meltdown IN MY SLEEP and woke up trying to regulate my breathing and sobbing. That was fun. Felt better after a weekend of doing nothing then last night (Sunday night, after the feeling better bit) I got in bed and started crying for “no reason”. This morning I can feel the desperation building in my brain where I’m internally screaming for the world to stop.

Got 4 days off work next week so trying to make it through to that. Work isn’t stressful, it’s the autism, and I know I’ll feel better about being off and be able to rest better if I can get everything organised this week. Just hoping I don’t crack before then but I’m pretty sure I can make it.

Glad to hear two of you have had meltdown free days 🥳

EchoInVoid · 17/11/2025 19:05

Floopdifloo · 17/11/2025 18:33

Well, I don’t see stress building until it smacks me right in the face. Last week I had a meltdown IN MY SLEEP and woke up trying to regulate my breathing and sobbing. That was fun. Felt better after a weekend of doing nothing then last night (Sunday night, after the feeling better bit) I got in bed and started crying for “no reason”. This morning I can feel the desperation building in my brain where I’m internally screaming for the world to stop.

Got 4 days off work next week so trying to make it through to that. Work isn’t stressful, it’s the autism, and I know I’ll feel better about being off and be able to rest better if I can get everything organised this week. Just hoping I don’t crack before then but I’m pretty sure I can make it.

Glad to hear two of you have had meltdown free days 🥳

I get the desperation feeling in the brain, great way of describing it. Hope you get the rest you need.

OP posts: