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Neurodiverse Mumsnetters

Use this forum to discuss neurodiverse parenting.

5 year old girl behavioural issues

3 replies

Bakingmom · 29/06/2025 19:46

Really looking for some support more than anything as I feel as though I’m at my wits end. Basically we had a 5 year old dd whose behaviour at home is becoming so hard to deal with. To put some perspective, she is the model student at school and always has been. She is polite and kind, has lots of friends, developmentally where she should be and academically. We have a 18mo dd who she adores and gets along with fine. At home is where the issues begin. She it so quick to anger. It all starts when she’s asked to do something. Tidy up toys, get in the bath, wash your hair, finish your dinner… instead of a typical “no” and a grumpy child… she will have a full on screaming meltdown- in 0 to 60 seconds. Like screaming at the top of her lungs as if someone is physically hurting her. When I’ve recorded her screaming from outside her room and showed a friend she couldn’t believe it was the same child she knew. We do all the techniques… leave her to calm, don’t rise to the anger, try to reason with her, but these moments of deregulation will go on for up to an hour. At which point we are all exhausted including her. These moments can and do happen daily. Myself and my husband are both late diagnosed adhd and something in my gut is telling me this isn’t developmental. But maybe I’m wrong. And I’m looking for an answer to something that isn’t there? I guess I’m just wondering if anyone at all has been through this? Is this normal 5 year old behaviour. To this extreme? I’m actually a teacher which makes me feel as though I should know these things. And I also find it frustrating when parents look for diagnosis of something that isn’t there, but I’m at the end of my tether questioning whether this is normal and it will pass or not.

OP posts:
autumngirl714 · 02/07/2025 23:08

My son has the exact same behaviour OP except he's 8.
His trigger is asking to put toys away or his stuff being moved. I struggle very much so with mess, and he seemingly thrives in it!
He will go, like you said, 0-60 into full blown screaming and anger!
I have absolutely no idea how to support him and it's happening daily atm.
He's never been diagnosed but I'm confident he's autistic, or at least has strong autistic traits.
I've done a lot of research and it's all about getting overwhelmed and loosing control causing him to go into fight and flight mode. Everything I've read is about reducing the overwhelming feeling and changing your expectancy for it to be resolve straight away.
I wish I had the answer, I'm so burnt out atm 😔

Clangershome · 16/07/2025 20:30

Is that the only trait or are there other things you could be missing? Sensory sensitivity, rigid thinking, stimming? My 6 year old is diagnosed ASD and couldn’t attend school. I suspected when she was a baby. Screaming as you describe would definitely be a trait and doesn’t to me sound NT. the reasons behind the screams sound like PDA and likely because she’s had enough of the stress of school so can’t cope any longer at home.

in terms of advice, you will just have to see how it goes, you are mum and you know best and when to act etc.

Jimmyneutronsforehead · 07/08/2025 00:30

Have you ever heard of something called rejection sensitive dysphoria?

It can be linked to autism but isn't a profile of autism in itself, so many people can experience this.

It is an extreme emotional response to perceived criticism, rejection, or failure.

It goes hand in hand with pathological demand avoidance which is again, like RSD, linked to autism, though can be recognised on it's own. There isn't a clinical diagnosis for this in the UK though, and so it would just been reviewed as part of an autism assessment and observed.

Pathological demand avoidance is an extreme anxiety driven avoidance of everyday demands and expectations. PDA responses aren't behavioural. They're neurological, and are not a choice.

The anxiety doesn't come from the task itself but by the expectation to complete the task, and it triggers a fight, flight, freeze or fawn response.

There are external demands: put your shoes on, get in the bath, pick your toys up.

Then there are internal demands: you're hungry get some food, you're thirsty get a drink, you haven't been to the bathroom for hours go pee, you are really bored of this tv show change the channel etc.

When these demands are placed on people with PDA, it feels like a direct attack on their autonomy.

People with PDA might seem socially capable, but struggle with executive functioning tasks, following instructions and accepting help.

Then on top of that if you add in masking, which happens so often in schools or workplaces. You spend all your energy pretending to be unbothered, more capable, holding yourself to high standards, that you've got no bandwidth to continue at home.

Someone mentioned to me a while ago something called spoon theory. Basically everyone starts the day with so many spoons, which is your currency for getting things done. For NT, healthy people, each task costs less spoons, but for ND or chronically ill people, you have to pay an additional tax of spoons per action. This means if you're ND, you will run out of spoons faster than your peers. Usually you use these up before the day has begun or while you're at school and when you are finally home, you're in spoon debt, and then people still ask you to do more and even the smallest of tasks can feel like a struggle and a panic because you're eating into tomorrow's spoon allowance.

For people like this the best way around this is a lower demand lifestyle. Less toys, less clutter, more routine, eating the frog and getting the hardest tasks done earlier in the day, sensory aids, really paring down on what is around so you have necessities easily accessible and luxuries tidied away, less trips out of the house, reduced additional activities, priority lunch queuing, amended timetables etc.

I'm not a psychiatrist, I don't want to armchair diagnose anyone but I am just commenting on what I've observed in your post.

I do think these transitional changes, monotropic views, extreme reactions to perceived change, struggles with executive functioning etc could have grounds to be investigated. I say this as someone who has undergone the autism pathway for myself, my son, and now a late diagnosed relative.

There isn't enough information in your post to highlight the triad of impairments, nor should there be because this is mumsnet, but I do think personally that there could be a neurological reason behind these responses as opposed to behavioural responses.

Also don't beat yourself up about being a teacher and feeling like you should know. Nobody knows everything and our understanding of neurodivergence is ever evolving so it's hard to know anything for certain at this stage. My own mother works with neurodivergence and I was only diagnosed last year! Everybody is so different in their presentations that it's a constant process of learning and relearning.

Wish you all the best.

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