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Neurodiverse Mumsnetters

Use this forum to discuss neurodiverse parenting.

Struggling to help ASD son because I'm ASD?

4 replies

Gimjam · 24/10/2024 19:25

My son is 16, he's on the pathway for an autism diagnosis. I'm having to support him and speak for him. I live in a funny town, it's quite insular and people from outside the town call it 'the Hills have eyes' as a joke. I'm not from here and have never fitted in, been accused of being too 'posh' and that I 'talk funny'.
I've tried to access support from local services and I'm getting a reaction from some of the staff, I've had it before throughout my life, where they act like I'm a bit strange and they would rather not speak to me?
It's making it difficult because I'm being referred to local council support etc and some of them are just off with me.

OP posts:
Gimjam · 24/10/2024 19:28

The staff are all female, I'm not sure if that's relevant, but I've always been bullied by other women my whole life. I think there is something wrong with my voice and how I talk too, as I can remember times in the past when I would try to be friendly and say hello, and people would pull faces and recoil?
I had a phone call today with a woman from the council and she was so cold and unfriendly, I felt awful after the call.
I just want to give up as I can't keep doing this but then I would feel so guilty about my son. I feel like I am a liability as his parent really.

OP posts:
Gimjam · 24/10/2024 19:30

Even the dentist is a struggle as the older female receptionist looks at me like I have two heads when I speak to her.

OP posts:
WakeMeUpForCoffee · 25/10/2024 13:23

I have had the same sort of experiences as you.

AshGirl · 26/10/2024 16:11

It's so bloody hard to move through the world as an autistic person, and we can be very sensitive to other people's reactions (ironic, because we're accused of lacking empathy!).

I find it so stressful and exhausting trying to advocate for my son, and I haven't got a quick fix to suggest! Maybe we need to focus on outcome - so, are you getting what you need from that person / service? If you are still getting the outcome, then you are communicating effectively even if you are getting odd / unpleasant reactions. If you are being brushed off / turned away then is there a different way you could approach it? Can you email instead?

Wishing you lots of luck because this stuff is so hard Flowers

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