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Neurodiverse Mumsnetters

Use this forum to discuss neurodiverse parenting.

How has ADHD medication been for you?

5 replies

Adhdddd · 16/04/2024 21:26

I have just discovered I have ADHD and it has been very emotional for me!!

I have had high, high anxiety since puberty, with bouts of scary OCD. I struggle to pay attention to boring things, cannot bring myself to do mundane things without “tricking” myself, and am riddled with anxiety almost all the time.

Anyway knowing I’m neurodiverse is mind blowing.

I am a bit scared of medicating. But I really want to get on with my life and get stuff done - the procrastinating has been a real bane of my life, tbh.

Please tell me what medicating has done for you? Good or bad?

OP posts:
Adhdddd · 17/04/2024 06:57

Bump!

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2024horizons · 17/04/2024 12:25

Life changing. But not the total answer.

Meds make it easier to start things, much more emotionally regulated, I never realised how much life is a constant stream of emotions and wondering about things from other people's perspectives, meds help me go from 50000 thoughts to what is the thing I am doing next.

However meds don't make you do things you don't want to, you still have to direct your focus, they bring problems into focus and you have to deal with them. I found strategies alongside meds really helpful - audio books on ADHD are absolutely brilliant , reading them was the best gift I could give myself. The thing with strategies is that you either change the environment or change the task , YOU do not have to change (but you do end up moving forward). It's been mind blowing to realise I'm not the problem and my brain is a place I like to inhabit.

In terms of meds I only take the lowest dose of a short acting stimulant and I hope to not need them. If you don't take meds, there is nutrition and sleep which will help. However I firmly believe that the only thing that comes close to meds will be exercise (from experience of doing weight training last year, a hyperfocus of mine for a while) and to get the same effect you would need to be extremely consistent plus strategies. Just my opinion.

ArcticOwl · 21/04/2024 00:11

It was a 6month rollercoaster of a journey tbh.

At first.. amaaaazing. There was brain quiet, and ability to focus, and stuff got done. I was less random and chaotic, slept better, ate better.

Then the side effects started to make themselves known.

My Autism suddenly came into sharp focus and i lost the ability to regulate my emotions... every self taught method of keeping them in check just... failed.

I'd not eat much (yay... impulsive eating is one of my dopamine seeking habits), then they'd wear off, and i'd be ravenous.. and end up binge eating crap.

I had to stop drinking coffee which i love. Tea just didnt feel the same, and decaf is awful stuff.

My friends said it was like i'd lost some of my spark/joy and i didn't seem myself on them.

My body lost the ability to cope with the temperature in hot weather and i was badly overheating in 26C, like to heat exhaustion point. (this is an actual thing on some adhd meds unfortunately.. my drs advice was to stop them over summer and go back on them once the temp cooled??)

The overheating thing was the last straw.. i sat there one day with heat exhaustion, a wet tea towel on my head, neck fan, ice lolly in hand, necking ice water, and wondered if the good effects really outweighed all the negatives in that moment.

I stopped taking them.

I decided, on balance, i'd rather drink my coffee every morning, be able to have the odd drink with friends, have control of my emotions, not boil, sleep less, and be the silly, random, chaotic, forgetful me that lets my ADHD drive.

On the flip side, my brother (Same diagnosis and meds interestingly enough) stayed on them and is thriving.

BertieBotts · 22/04/2024 10:41

I find mine really helpful. I can still drink coffee. Actually it's my last pregnancy which shot my caffeine tolerance, not the medication.

I feel just like me except I can actually get stuff done and work towards long term goals instead of vaguely thinking "Yeah I'll do that at some point".

I can play with the DC and get jobs done around the house instead of ignoring them all day to stare zombie-like into the abyss of the internet. In fact, I have reduced MNing by around 90% Blush

My patience and emotional regulation is way better. I have more energy because I'm not totally worn out by everyday things all the time. I can get out of bed in the mornings.

I'm not going to say it's all been smooth sailing - it's confusing and uncomfortable trying to find the right medication and dose. I am struggling at the moment with a horrible side effect of dry mouth. It's a pain to have to get the prescription every 2 months and organise paperwork to take it abroad. It can be difficult when it wears off (I am thinking about asking my doctor about a booster afternoon dose). But overall, absolutely worth it for me.

Adhdddd · 23/04/2024 13:10

Thank you so much for this, it’s really interesting and helpful and given me so much to think about. I am often very distracted and find it mentally painful to concentrate unless I really, really like the thing. It means I don’t achieve all the things I want to in life.

I’ve also started to wonder about supplements. Someone was telling me about lion’s mane. Has anyone tried that too?

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