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Use this forum to discuss neurodiverse parenting.

Did adhd medication change your life?

29 replies

Myfluffypup · 05/04/2024 19:12

Getting assessment v soon and will be shocked if I don’t have it.
After trying and failing anti depressant medication several times(I seem to be super sensitive)
i am keen to try adhd medication if offered.
My mind never stops.
Was medication life changing for you?

OP posts:
HundredMilesAnHour · 05/04/2024 20:35

It hasn't been life-changing for me. The meds help me maintain focus at work. The downside of that being that when I'm busy/under pressure at work (which is most of the time), I end up in hyperfocus non-stop. Which is great for the volume of work output but it means that it feels like I have zero short-term memory as I'm so hyperfocussed on my work that I can't remember anything else I've done - or even if I've done it. For example, this morning I was so wrapped up in a work deliverable that I toasted some bread for breakfast without realising that I'd already toasted it once. It was only when it came out burnt looking (and I like insipid toast) that I realised what must have happened. Same for not being able to remember if I've brushed my teeth already or not - I have to actually check if my toothbrush is still wet to work out if I've brushed already or not/ It's very weird. I was worried I had a real issue until my psychiatrist explained the cause.

Myfluffypup · 06/04/2024 09:42

@HundredMilesAnHour

Had you emotional dysregulation? Did it help with it?

OP posts:
Myfluffypup · 06/04/2024 09:50

Can anyone else please share some insight to their medication journey?

OP posts:
HundredMilesAnHour · 06/04/2024 10:34

Myfluffypup · 06/04/2024 09:42

@HundredMilesAnHour

Had you emotional dysregulation? Did it help with it?

As far as I'm aware, emotional dysregulation isn't something the meds are expected to help. If anything, the side effects can make emotional dysregulation harder to manage.

whywonttheyeattheirfood · 06/04/2024 12:30

Yes. I was prescribed methylphenidate and it was amazing. My brain slowed right down and I could finally get my thoughts in order. The background chatter just about stopped and I was able to think things through step by step. Unfortunately, I began to experience a lot of palpitations and couldn't cope with them even after increasing my propranolol.

I couldn't afford the non stimulant that the psychiatrist wanted to prescribe so I went back to being unmedicated. I became very depressed again and then was prescribed an snri by the GP and it is having very similar effects to the methylphenidate. My brain is no longer racing and my thoughts feel more ordered. I'm not losing my temper and am no longer depressed. I'm happy with it. I have had to increase the dosage to get the depression under control and this has resulted in more brain calming effects.

Myfluffypup · 06/04/2024 13:15

@HundredMilesAnHour disappointed to hear medication won’t help with it.
Did you take a stimulant or non?

OP posts:
HundredMilesAnHour · 06/04/2024 14:22

Myfluffypup · 06/04/2024 13:15

@HundredMilesAnHour disappointed to hear medication won’t help with it.
Did you take a stimulant or non?

I take 54mg methylphenidate extended release, only on work days though.

2024horizons · 07/04/2024 11:28

Pls don't think medication is a magic wand. From reading scientific literature, meds are approx 30% of the answer, the other 30% is strategies, dont know about the 40%.

For some people that 30% IS life changing. I take methylphenidate and this is what it does for me:

  • I go from 50,000 thoughts to what is the one thing I need to do next
  • easier to start things
  • slightly easier to remember where I am at
  • much more emotionally regulated, never realised how everything was a constant stream of emotions to me where I was constantly thinking how things came across to others

Things they don't help with

  • no amount of meds will make you do something you don't want to do, period.
  • time awareness hahaaaaaaaaa
  • sleep, I'd say they unfortunately are counteracting to sleep being a stimulant which can have massively detrimental effects and needs a proper sleep strategy alongside meds, but if you get this right and DO get 7+ hrs sleep a night it's not a problem. Initially I was very tired on meds as my need to catch up on sleep caught up on me. After getting more sleep my recall and mood improved a lot.
  • you HAVE to eat properly, time and again I read about people struggling on them and if you ask did you eat they haven't eaten all day as it suppressed their appetite. A high-ish protein breakfast and lunch is good, with some healthy fats and carbs, protein works better as brain fuel for the ADHD brain (some swear by keto but I have WAY too much energy and hyperfocus on keto).
Myfluffypup · 07/04/2024 14:26

@2024horizons I don’t expect it to be a ‘magic wand’. I will take that 30% though if it helps to quiet my mind to focus on one thought at a time. Also to calm my emotional dysregulation.

OP posts:
HundredMilesAnHour · 07/04/2024 15:17

Myfluffypup · 07/04/2024 14:26

@2024horizons I don’t expect it to be a ‘magic wand’. I will take that 30% though if it helps to quiet my mind to focus on one thought at a time. Also to calm my emotional dysregulation.

It helps me focus but nowhere near on one thought at a time. Maybe only 10 thoughts at a time. 😂 It makes me aware that I am being easily distracted and somehow enables me to get back to what I'm supposed to be doing (as long as I'm interested in it and do actually want to do).

As others have said, it isn't a magic bullet. It's just as important, maybe more important to develop your own methods of managing the ADHD. The meds just help to support the execution of those methods.

Myfluffypup · 07/04/2024 15:24

@HundredMilesAnHour What helped you develop your own methods? I do seek a lot of advice via the internet but suppose everyone has their own way.
Just feeling a bit lost.

OP posts:
PorkPieForStarters · 11/04/2024 01:35

I was really keen for medication when I was diagnosed too and was so so hopeful for some magic bullet that would fix everything.

I spent a year titrating through the various medications on offer and none of them did anything remotely useful for me - they either did nothing at all or gave me absolutely horrible side effects and still did nothing for my ADHD. Apparently they don't work for about 25% of people. I also found remembering to take them at the right time and after the right food really hard, so I don't know if I could have stuck with them anyway, even if they had worked.

Since giving up on the meds six months ago and focussing on building my own strategies, I've become so much more aware of my symptoms and am recognising my patterns and triggers, and understanding the situations that I do well in and ones I don't, so I'm slowly figuring out how to work with it. I've read so many tips and strategies online and follow quite a few ADHD people on insta, but I've realised it's a case of working out what works for me and, annoyingly, that just takes time.

I felt so overwhelmed after I got my diagnosis and again after the medication failed and I was so lost with where to start, but I feel like I'm slowly getting more of a hold on it. It feels like a bit of a project, which appeals to my curious ADHD brain!

I feel like I'm getting to know myself all over again and it's quite nice actually - I'm definitely kinder to myself as I know I'm not just sh*t, as I'd assumed for 30+ years!

Getting a good 7+ hours of sleep each night is a game-changer for me, by the way. I really notice the difference when I'm not getting decent sleep!

Myfluffypup · 24/04/2024 22:58

@PorkPieForStarters No doubt I will
be one of those 25% it doesn’t work for also 🫤

I feel like I'm getting to know myself all over again and it's quite nice actually - I'm definitely kinder to myself as I know I'm not just sht, as I'd assumed for 30+ years!*

that’s a nice way of putting it.

OP posts:
Myfluffypup · 24/04/2024 23:00

My overthinking and procrastinating is at an all time high. Wondering if anyone has had this as part of their ADHD? Like I ruminate until I put myself into a bad mood. Most of the time over very little.

OP posts:
2024horizons · 25/04/2024 01:41

Yes I've gone through cycles of that. It's like my brain just wants a fight. Ruminating gets very related to lack of sleep I.e always worse when am not getting enough. Routine being hard with ADHD.

2024horizons · 25/04/2024 01:41

What are you over thinking?

PorkPieForStarters · 25/04/2024 14:42

Procrastination is my middle name, I could win awards 😄 It's a common ADHD thing. I'm still trying to find ways to improve that.

The overthinking/rumination is something I've got better at not doing, as I've realised it's not achieving anything so I try and catch myself when I notice I'm doing it. It's taking practice!

TheFirstMrsDV · 06/05/2024 15:36

Im
going to say yes. They don’t stop me over sharing and talking to much. The generic version I’m on till my real ones are available don’t stop my swaying and fidgeting but omg the stuff I can get done now, the way I can finish stuff and my procrastination is 98% better.
I love that if I have a 3pm appointment I can now use the rest of the day rather than just wait for the appointment.
my garden looks lovely because I have been able to plan it rather than impulsively buy stuff that doesn’t work and my life long shopping addiction has gone down by at least two thirds.
i still have lots of issues but I grew up with undiagnosed adhd and I also have PTSD so it’s to be expected
I have combined inattentive and hyperactive adhd so I don’t know if that makes a difference

Alwaystired94 · 07/05/2024 15:16

life changing? no. extremely helpful, yes.

I was diagnosed with combined type April 2023 and started Titration October 2023. It doesn't 'cure' me of the issues i face but makes it easier for me to work around them, especially things like procrastinating and so on.

Alwaystired94 · 07/05/2024 15:18

Myfluffypup · 06/04/2024 09:50

Can anyone else please share some insight to their medication journey?

I started on 18mg of Methylphenidate daily, then 36mg then 54mg. Now i'm settled on a dose of 54mg extended release with a 10mg top up instant release usually 2pm.

Glowlearn · 07/05/2024 15:30

Adult Dd is on concerta. It's helped enormously. However it was not the magic bullet we hoped for. A year later she was diagnosed with autism which partly explains it. Now, a combination of citalopram, concerta and various supportive strategies for the autism have made her life much more managable.
She finds it easiest if she gets things that need focus, done before about 2pm as the meds begin to wear off after that, but things that were impossible due to lack of concentration, are possible now.

Glowlearn · 07/05/2024 15:42

Re above, I think I'd benefit from adhd meds too as I struggle with concentration. I've yet to get a diagnosis but i try to use the strategies and keep my life calm. Easier said than done though!

QueenMegan · 12/05/2024 08:04

Yes and No.
Pre meds I was hugely successful and achieved loads took loads of risks and never thought there was anything wrong with me.
Children have it DP had it I also was assessed and viola...
I'm content now not mega successful just calmer. I don't have huge mood swings...extreme highs or lows . I do miss my old self but I was alot
I take minimum meds too high made me anxious.

BertieBotts · 12/05/2024 15:29

Medication DOES help emotional dysregulation for me. I am generally calmer and more aware of my mental state and I find myself looking at a task before I start it, and thinking you know what - this is going to take longer than I think, the kids are antsy and need tea and their bedtime wind down, I'm tired, my frustration tolerance is going to be shit and basically if it works perfectly the first time it will be fine, but if any tiny thing goes wrong, I'm going to turn into a banshee and that's not a good idea, so I won't do it now.

Whereas previously I would have been like yeah I can do that now - and then I'd end up becoming the banshee and anyone who came near me would be on the receiving end of it and then I'd probably end up breaking the thing through attempting some kind of rash approach, and not having a solution that worked at all.

My time awareness in that sense is better too.

For me, it doesn't quiet down my brain but I don't mind that at all - I quite like my chatterbox brain!

I went through a few different ones. First tried an off-label nonstimulant meant to be a bit like Strattera - it seemed to slow down time for me which helped a bit and I could think ahead and prepare for the next day, but I didn't like the side effects. Was planning to change to a stimulant but then got pregnant with DC3 so came off everything.

Then last year I started stimulants. First methylphenidate which I didn't get on with - it seemed to increase anxiety and make me focus so hard on things I'd get ragey with everyone for interrupting me. Now I'm on Elvanse, which works better for me. I only take 30mg but on days where I need it to stay active into the evening or where it feels like it's wearing off too early, sometimes I take

Would agree that stragegies and lifestyle/environmental changes are also important. I think in part the fact I effectivelt spent 7 years diagnosed but unmedicated helped here because I had done some of this before I went on meds and you need both.

I would actually suggest if anyone isn't getting on with meds at all - take a break, work on strategies and environmental changes (this is things like e.g. decluttering at home/changing work hours or job/paying down debts or increasing income, therapy (DBT can be good), health changes e.g. diet/exercise/smoking, assessing whether relationships are supportive vs draining - all not hugely easy things) and then once you feel some overall progress has been made, it may be worth trying medication again to see if it is more effective. Just based on the fact that I think if I'd have tried medication 7 years ago it probably wouldn't have really helped because there were so many things in my life that were totally chaotic, and were feeding into each other and making everything harder.

hendoop · 16/06/2024 15:50

For me I found xaggatin made me very robotic and cold, also highs and lows were worse

Elvanse is smoother and I feel able to remove the emotion surrounding feedback etc

They have been life changing around work and I have so much more enwrgy as I am not draining my tank trying to drown all the noise out

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