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Use this forum to discuss neurodiverse parenting.

ASD adult assessment

1 reply

Isthislife7 · 29/07/2023 20:23

Hi everyone
Im 37 year old parent to five children (age ranges 20-6) my middle child (B) and youngest (G) are currently on the pathway for an autism assessment.

After a lot of research into the subject for the children quite a few things started clicking for me and I just recently asked my GP to be referred for an autism assessment and she agreed.

Feeling very much on edge but slightly relieved id been referred after a lot of back and forth in my mind and then today I have received a letter from the assessment people to say there’s currently not enough evidence to place me on the waiting list and if I would like to email them with proof/reasons why I think I should be, they will reconsider.

I have got many bits of paper floating around of things I think are traits and have affected me throughout my life but I don’t have any school reports/medical reports relating to anything because I’ve just always suffered in silence except at home.

I just feel so negative about the letter and I was previously feeling so positive, like id found my place.

Is this a part of the normal procedure so early on? Does anyone have any experience of this? Am just worried I’m going to get rejected because all I have is my word?
😫😫😫

OP posts:
EverySporkIsSacred · 31/07/2023 17:23

Yes it's often like this. They want to know why it's worth their while potentially diagnosing you.
I made a big list of my traits just like I had for my daughter. They also will want to know how it affects your day to day life, whether it makes certain things harder (like for example I realised after diagnosis why I felt so awkward and unable to fit in taking my daughter to toddler groups, which is why I just didn't).
Does it/has it affect(ed) your employment status?
Do you find family gatherings difficult?
That sort of thing I'd guess.

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