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Neurodiverse Mumsnetters

Use this forum to discuss neurodiverse parenting.

Other autistic people are coping better than me

15 replies

Blomonje · 17/05/2023 01:18

I’m autistic. Been very isolated and lonely and unhappy my whole life. Still am. Nobody has ever wanted to be my friend or include me.

I joined a hobby group recently and we ended up having a coffee afterwards, and this guy called Gary spotted his friend James and waved. Gary said hey Blomonje, James is also autistic! So we chatted about autism and common difficulties.

Apparently James grew up next door to Gary and they’ve been friends their whole lives. Went to football together and made friends with a group of guys who they still hang out with regularly. As they got older and made new friends they took James with them, so he has a broad group of loyal friends and sounds like he’s really popular. He also has a job in the field he wanted to work in and he feels valued at work.

It made me irrationally angry and jealous. I feel like how come he gets to have good friends and a social life despite being autistic, while I’m alone and nobody has ever wanted to be my friend because of my autism. How come he gets to have a career despite being autistic, while I’ve been rejected by every single employer because of my autism. I have a strong feeling of unfairness and jealousy that I just can’t shake.

I guess it’s because I can rationalise my loneliness and misery by saying “People discriminate against me because I’m autistic, it’s not my fault”. But if James is autistic and has good friends and a job, that means my misery is my own fault after all. Is it because he’s a man with autism and I’m a woman with autism? Are other men more tolerant of an autistic man than other women are tolerant of an autistic woman? I don’t know but this has really upset me.

OP posts:
90redbaloons · 17/05/2023 11:55

I can relate so well to your post and feel the same way. I have tried and tried to make friends and get to know people, I'm kind, friendly and take an interest in people but they just don't want to know. I also see other people easily maintain friendships and it makes me so sad when I've tried so hard but not had any success. I have noticed from my own experience that men are often more tolerant. I've been able to make friends with men but very rarely had friendships with women that have lasted.

PinkBuffalo · 17/05/2023 15:13

I totally get that feeling OP that other autistic people cope waay better than me!

my autism is quite stereotypical and I was diagnosed very young and I am also very easy confused etc

I get kind of devastated if I have a meltdown in public, or I am captured on film at the gym class and I see how different I am just being than everyone else I really stand out and I never realise 🤦

sometimes I really wish I was one of them people that no one knows they are autism unless they say cos I have had complete strangers assume I am

I also get the friends thing I got lots of friends but all at activities no one to just sit and be with or have fun with

Nowwhat123 · 17/05/2023 15:44

Hi I totally understand this Im in my 40's and I literally have no real friends. I don't even want to try and make any now as I ruminate so bad afterwards did I say the right thing did I over share did I offend them and I will replay and replay it all over and over. I feel so confused as I don't want to put myself out there anymore but I'm so lonely too.
I'm having a tough time at the moment waiting for assessment for asd/ADHD and my head spins with am I faking is it all in my imagination anr the constant ear worm songs that play over and over. Life is unfair

Blomonje · 17/05/2023 17:47

I do find that I get on better with men. The problem is, I’m not a man so they won’t include me in their friendship groups. I get rejected if I try to make friends with men because they think their wives/girlfriends won’t be happy. They’re like “why are you talking to me, you should be trying to make friends with my wife”. And of course I can’t make friends with the wife because she’s a social butterfly.

I don’t actually know what I do wrong. I try
my best to make friends. I invite someone for coffee, they say yes that sounds great I’ll get back to you when I’m free, and then they never get back to me. I set up play dates for my son but it’s always me asking, they never ask me - so then I feel like I’m being pushy and they’re just being polite but they don’t really want to.

OP posts:
Superdupes · 17/05/2023 18:08

I think there's a lot of luck involved in finding friends and friendship groups and also in getting a job - but I know some people seem to find it so easy! I find groups really difficult, I get lost in them and say very little or end up talking over someone. So now I generally avoid groups and stick to individuals and doing things one on one - dog walks for example - as I find it much easier socially. I have very few friends though. I also really struggle with interviews and work despite having an MA so I have done a lot of voluntary work and part time work which I can manage. I prepare so well for interviews, thinking long and hard about anything they might ask and what I might answer.

I think actually that it's much easier to make friends when you are young - and if those friends stick with you then you never have to try too much to make new ones! I think that's what has happened for James, he got lucky as a kid, met nice people who he could bond with over football and has stuck with them. He's then been able to be accepted by new friends by way of his old friends. If they all moved away he might find it really, really hard to start again from scratch though.

It seems though that you got on really well with James and Gary and you have the hobby in common with James, I wonder if this could be a start to making some new friendships. I also always felt I got on better with men - they are sometimes more down to earth and less judgemental than women I think - but if you find the 'right' women then it can work. I've found through work I have ended up becoming friendly with women that happen to be ND or have ND kids (not ASD but dyslexia/dyspraxia) - purely by chance - and I just seem to particularly click with them. I've had a lot of years or no friends and no work though and feeling totally lost so i know how hard it can be.

Blomonje · 17/05/2023 21:43

Yeah I would love to be friends with James and Gary. But I can imagine what James’s wife would say if I tried to extend the friendship beyond our shared hobby and invited him to meet up for a coffee or whatever. That’s the problem when you’re female! I’m expected to be friends with other women, most of whom don’t have anything in common with me.

OP posts:
nosykids · 18/05/2023 07:59

I see this amongst my own dc - all are autistic, two diagnosed and one awaiting assessment (but fully expect diagnosis). They all have their own challenges but the youngest has a lot of friends, whereas the older two don't. I can't explain it really but the biggest difference between them seems to be that dc3 is completely confident in who he is, likes himself (and says so) and doesn't mask at all. The majority of his friends are also autistic, though not all of them, and they share 'nerdy' interests (very stereotypical things - Warhammer, Dungeons and Dragons, science club, robotics, Pokemon, Dragonball - they go to the library together at lunchtime, one is very sporty but the rest of them aren't). There are girls in his friendship group - I don't know for sure, but I would say there is a chance both of them are autistic.

On the other hand, my dd tried really hard to fit in and masked enormously - it worked at primary school, but fell apart (distressingly) once she started secondary. I've noticed that she seems to make the assumption that no one will like her and is almost apologetic for her presence - we are working hard on her confidence with therapy. I think I am similar - baseline thinking is that people won't like me, trying to fit with the others around me for most of my life - I was a very confident child, but this has been eroded as the realisation that people don't really warm to me slowly dawned (I am not diagnosed, still waiting).

I think part of it may be down to how women are socialised vs men. Also (even NT) men are often more straightforward and say what they mean, etc - NT women are much more socially nuanced. I can see autistic traits in all of the friends I have managed to keep, although not one of us has a diagnosis - birds of a feather stick together. Obviously there is also some luck involved too. I met most of my friends through dc or shared interests and it took time for a friendship to develop - also, they don't all stick, I have been dropped plenty of times over the years!

nosykids · 18/05/2023 08:05

Also - my dd would love to be friends with the boys at one of her extracurricular activities (she is home educated, so most of her 'socialising' takes place at these), but struggles with the same issue you describe above. She is 13 and they are 15/16, so they are obviously not going to want to be friends with her! She says that the girls just look at their phones and chat about TikTok but these boys have interesting conversations. I obviously don't mean to generalise about girls - I am sure some of them would also much prefer to talk with the boys, but the pressure to fit in is huge for girls and it doesn't seem to change much as we get older. It's really difficult.

Blomonje · 18/05/2023 20:44

I think grooming has a lot to do with it too. Girls have painted nails, expert makeup, plucked eyebrows, styled hair, jewellery and accessories, high heeled shoes, shaved legs - so autistic girls stand out more if they don’t do those things. Whereas boys tend to dress more plainly and don’t wear makeup or nail varnish, don’t style their hair to the same extent, don’t necessarily have to shave, so an autistic boy won’t stand out in terms of lack of grooming.

One of the things I noticed when I got to about age 13 was that the girls started to style their hair, paint their nails and wear makeup and jewellery to school - and I didn’t. Probably one of the reasons I was excluded by them. There were a lot of mean comments about my eyebrows, but no comments were ever directed at boys who also left their eyebrows natural.

OP posts:
h3ll0o · 20/05/2023 19:05

If I was James wife I’d be happy for him to meet up with you. My autistic husband has many female friends and I’ve never felt jealous when he texts or meets up with these women as I know he loves me and he’s loyal. As a fellow autistic,I’d be happy for him to be there for an autistic in need.

This could be a turning point in your life. You’ve always blamed your social issues on being autistic but as you are seeing there’s lots of autistic people who have friends. Is the issue something else? Perhaps your internal dialogue telling you your rubbish at these things so it becomes a self fulfilling property? Is the childhood trauma you experienced stopping you from forming relationships?

Blomonje · 21/05/2023 08:23

No I don’t think so. I believe the issue is that the other autistic people I’m comparing myself to are male. Males in general seem to have very straightforward relationships and low barriers to entering their social groups, while females have more nuanced social relationships and more grooming requirements so the barrier to entry is higher. It makes sense that males accept autistic peers more than females do.

I can see how other females look at me when they’re dressed in nice clothes and makeup with their hair styled and their nails done. And I’m sitting there in a plain tshirt,(probably with a stain on it that I haven’t noticed) frizzy hair that I’ve just brushed and tied up, no makeup or jewellery, interrupting their nice conversations with my braying laughter and comments about science or comic books. I feel much less out of place in a group of men.

The problem is that groups of men won’t include me. They use phrases like “going out with the lads”. I can function in those groups but will never be allowed to participate because I’m female. And I simply cannot function in female friendship groups at all.

OP posts:
BlackeyedSusan · 22/05/2023 19:01

We need to make friends with other autistic women I think. Or those with autism experience such as family members.

It's bloody hard isn't it this social thing.

I

moonskye · 05/06/2023 01:10

Hi,

This post really jumped out at me and I felt compelled to join the conversation although I realise the thread is from May, so I might be a little late, but I feel some comfort in just being able to write my feelings down here.

I feel a similar way and I can relate to this, so it's really interesting to hear your take on things and your experience with friendships - especially female vs male friendships and how others with ND's cope.

I've struggled all my life knowing that I'm different and that something is different in the way that I learn, and think, and how I experience the world around me. I'm female and in my late 30s, so approaching this subject with my GP and getting an assessment for any kind of ND has been quite a difficult journey. I was finally diagnosed with ADHD earlier this year, which in some ways was a relief. I'm learning to be more aware of my thoughts and feelings, and how I interact with others and how it makes me feel. An initial diagnosis has been comforting. To know that some of my behaviours and feelings can be attributed to the way that my brain is 'hard wired' and I don't need to be as tough on myself all of the time about not fitting in is quite a relief.

My ND has effected every aspect of my life over the years, including work, family, finances, relationships and friendships. I have combined ADHD, and I can be forgetful and inattentive, with low moods. I'm very easily distracted, but can also be impulsive and hyperactive, which makes it hard to regulate my emotions. I suffer with anxiety and have a history of depression - all of which impact my everyday life on some level, so it can be pretty exhausting trying to keep it together and function in a happy, healthy and productive way.

My ADHD traits manifest themselves quite clearly in social situations. I often speak over people or interrupt others when they are talking. I find it hard to listen when people are talking to me directly and even though I so desperately want to listen to what people are saying, it takes a lot of controlled focus and practice to try and stay tuned in and to follow a conversation and not be distracted by other stimulants around me or let my mind wander.

My lack of focus can sometimes come across as though I'm uninterested in other people. I know this is an issue, so I tend to over compensate in social settings. I approach social situations with a 'game plan' often thinking about the conversation topics before hand, or planning an imaginary 'circle of action' which sounds strange, but it's all about planning which colleagues I can talk to or approach throughout the evening - and in what order. It's like building a safety net in my head so I can feel more comfortable in group settings.
I'll often try to hang on the peripheries of a conversation circle when others are gathered, as opposed to opening myself to being approached or introduced to new people where I'm in danger of appearing uninterested, distant, or even the complete opposite - where I could just start speaking too fast and seem too hyperactive and intense without realising that it's even happening.

I frequently have social events for work, and I dread each and every one of them. I work myself up into such a ball of anxiety before every event. Even writing this down makes me feel uneasy, as I know that my internal struggles with this are private. I haven't told anyone about my ADHD (other than my DP, but we don't talk about it because it makes me uncomfortable and emotional)

I often feel insecure and feel as though I am (or will be) judged by others, or that I won't be taken seriously - especially at work. I know that people think I'm weird and I don't really have any friends. I have colleagues at work, who I see at work events, but none of them ever want to befriend me outside of work. My colleagues are mostly all female and I know that they socialise with each other after work. They arrange lunches and nights out, but they exclude me and don't invite me to those things. They don't exclude me specifically because of my ADHD (because they don't know about it) I think it's because of the way I am. It puts people off wanting to be my friend. Even if they did know, it wouldn't change anything as I'd still be the same person.

I think you're right that male friendships are a bit more straightforward than female friendships. I've struggled making and maintaining female friendships for most of my life. Your observation that the kind of entry 'bar' of admission into a female friendship group is pretty high, and I think you're right. I think women are more judgmental of each other. Especially with today's social pressures, I think a woman's biggest critics are often other women.

I think the judgmental aspect of the way women assess each other runs a bit deeper than how we dress and look. I spend a lot of money on my hair and skin care, and always have nice nails. I love to wear nice clothes and make an effort when going out to social events. I make sure I look my best as this helps me to feel more confident. As I make the effort to look nice, I feel like I should somewhat fit in with other female colleagues who also dress up, but I just don't fit in. It's as if they can see right through me. It's like the other women at work can see my differences or sense that something is wrong with me, and like an animal rejected by its pack, I'm often left out of none-work related social events or kept at arms length because other women don't want to include me or don't see me as a perspective friend.

I have one colleague who doesn't make as much effort with her appearance, and doesn't dress up at all or do anything with her hair (even for special events) but she is massively accepted into friendship groups at work and has lots of friends in her personal life. She is welcomed by others because she's sociable, kind and friendly and people like to be around her. So I don't think looks or grooming play a very big factor in whether you're accepted by female friends, I think it's more complex. I think Superdupes had a good point on their post that it's much easier to make friends when we're young. I've noticed over the years that female friends tend to have life long bonds. They've often stayed friends from a young age and stay close and loyal to each other. Women often find their 'pack' as teenagers and so don't actively look for new friends as they grow, unless the new friend has been welcomed in by another member of the friendship group - like with James and Gary who knew each other growing up and now share other friends in common.

I understand how you feel when you say you're a bit jealous of James being able to have good friends and a job he enjoys despite his autism. I sometimes get jealous of others for similar reasons. It used to make me a bit angry and confused, but over time I've just felt sad. I think I would benefit from close female friends, and somebody I could turn to and share things with, but at times, I'm not sure if I'm even capable.

I know I have social issues and insecurities fed by my ADHD and I can sometimes feel a bit overwhelmed in social situations. I often overthink what I say and how people might perceive me. Feeling as though I'm going to talk too much, or not talk enough often leads me into a cycle of anxiety that I think shows up in my behaviour and interactions with others in these kind of settings. It can make me come across as though I'm acting strange, or that I'm unapproachable or hyperactive. I am able to read social cues and read other people quite well, so my social issues really do lie with me and needing to regulate my behaviour and how I appear to others. This can be hard because although I am learning about myself and my condition as time goes on, I still don't fully understand it. I might not even recognise some of my quirks or strange behaviours, but others do recognise them and I think it puts them off.

Not having friends has made me feel sad for many years, I don't think anybody likes to feel rejected by their peers, but my recent diagnosis has at least helped me to take stock of how I feel in these moments and to step away from uncomfortable situations and just take a breath for a minute when I feel a bit overwhelmed. I feel emotional if I can sense that something is off and maybe that I've over stepped a mark or said the wrong thing. This is when the cycle of anxiety kicks in and it can make things worse. I can go from just chatting with a colleague at a party to feeling like I'm going to suddenly burst into tears.

I was at a work event recently and I was chatting to a colleague when it became very apparent that they were trying to detach themselves from our conversation. They were just itching to get away from me and kept looking passed me and trying to engage somebody else in conversation. I took a deep breath and just stepped back and then excused myself saying I was going to go to the bathroom. Rather than feeling completely rejected as I would normally, and then becoming a bit emotional in that moment, I was able to retreat to the bathroom and just take a few breaths and then think about why they might be behaving in that way.

Maybe they were just being a bit rude? Maybe they were just behaving a bit inconsiderately after a few drinks? Or - maybe I had actually caught myself in a moment of talking too much. I had run away with the conversation and feeling high-energy and stimulated by the environment I was becoming very chatty and a bit too much for them, which can often happen. I was likely speaking at a million miles an hour and not letting them get a word in edge ways. Taking a moment to think about this and have a few minutes in the bathroom on my own, I was able to recenter and then wait until I was ready to go back out there and press the reset button on my actions and behaviour. This helped me to just feel a bit more grounded and although I had to return to the bathroom a number of times during the evening event and take a bit of time out, it helped me better regulate my mood and emotions and helped me feel less anxious about the very busy work event and the social situation that would have normally made me feel overwhelmed and out of my depth.

It's not perfect, but I've found that taking myself out of a situation and just taking a minute to regroup and unpack any triggers like maybe a conversation that has just made me anxious or uncomfortable works as a good coping mechanism. It's certainly given me more clarity in helping to understand myself and my ND a little better. I have only used references to work events because I don't have many (if any) social events in my personal life. Unless it's a family function (which I also find stressful) I don't get invited to parties or events and weddings etc, so most of my social interactions are related to work. My work is very client facing and event orientated, so I'm expected to be sociable and professional at those functions - as you can imagine, it's quite stress-inducing and often fills me with anxiety just thinking about it.

I think your take on male friendships is interesting. They seem more straightforward to me too. Not that I have any male friends, but I have had some in the past when I was younger. I find it a bit easier to talk to men. I think they're more straightforward with their intentions too, which helps me feel more relaxed as I know where I stand. Often men are quite obvious if they are interested in women in a romantic way. I have a DP (and I don't cheat) but I do find small talk with men who are obviously trying to chat me up to be quite simple and low stakes. I feel that men I don't know (like a stranger) is far more likely to not pick up on my ND. They may take my talkativeness to be a sign of excitement or that I'm just interested in what they are saying and it can often break down an awkward social wall. If I'm speaking to a complete stranger that I won't see again, I don't need to feel as anxious about how I'm being perceived. It won't impact my work relationships or how I'm perceived by my peers and I don't need to regulate my behaviour as much or over analyse the way I maybe coming across. I don't think strange men in a bar for example would even mind if I talk too much or talk over them - heck I think they'd just assume that I've had a few drinks.

But in a work setting, to be perceived as being drunk because of my tendency to talk over people or interrupt people when they are speaking has happened in the past and I has left me feeling mortified! I was approached by a male colleague once who mentioned that he didn't get a chance to talk to me at the last work event, but that it was probably for the best as somebody in his team had said that I was quite frazzled and had 'banged on' to her about some silly topic that she found quite boring. I wanted to cry. I wasn't drunk at all, I remember the conversation I had with this female colleague and was just trying to be sociable and normal and just chat about things that I thought would be appropriate and interesting. I certainly didn't feel at the time that I was 'banging on' to anybody, but of course I do have a tendency to talk too much, and especially if I get anxious or become hyper focused on a subject that I am interested in and can often talk for longer than I realise, but as you can imagine, this kind of feedback just makes my whole social issues and insecurities around my ADHD even worse.

When it comes to making friends with men, I don't think you should worry too much about their wives or girlfriends not approving. I think male and females can have platonic friendships especially when they have shared interests and things in common and meet through support groups. Making friends with James for instance and inviting him and his wife for a coffee together could be a good way of making your intentions clear. Maybe with James there, it would actually be easier to make conversation with his wife as well and he could act as kind of safety net in a way. If you find his company easier, he could be the buffer between you and his wife that can actually encourage maybe some easier conversation with her? It may then help in the long run for you to establish a relationship with James that his wife is comfortable with because she has met you, but also perhaps even an unexpected friendship with her - or them as a couple. : )

Blomonje · 05/06/2023 12:44

Hi Moonskye, sorry to hear you’ve had these difficulties too. I agree that knowing you have difficulties makes it harder, because you know that you often come across poorly and you’re worried that’s exactly what will happen again. I often feel like I don’t want to inflict myself on people because I know I’m awful, if that makes sense? And it puts me off trying new things and joining groups and applying for jobs, because I’ve been excluded and rejected so many times, I just feel like what’s the point - I already know how this will turn out and I can’t cope with being hurt and rejected again.

It’s good that you’ve managed to get a job. My difficulties are so obvious that nobody will hire me, despite me being very competent and highly qualified. I always disclose my difficulties because it makes people think twice about how they treat me and whether they’re discriminating against me. Whereas if I hadn’t disclosed anything they would feel ok about excluding me. At least when they know I’m disabled they feel like shit for mistreating me, and maybe sometimes their guilt makes them treat me better.

It puzzles me how men who seem as unsocial and straightforward as I am, still have partners who are social butterflies and typical pretty girls. They’re happy to be married to someone who is a nerdy quiet type of man, but they don’t want to be friends with that type of woman?

OP posts:
LilyRed · 06/06/2023 00:47

I hope you don't think me rude for saying this @Blomonje Somewhere along the line it seems as if your self confidence has taken a kicking (it's never easy!) and your self-belief plummeted too; This happened to me after a very bad relationship ended, I was made redundant and my anxiety and stimming became so bad I dreaded going out and could not work. I eventually saw my GP; the first line seems to be anti-depressants, but when these didn't work I was referred for CBT.

One day a week for 6 weeks in a room full of other terrified, anxious people; not ideal and it was most stressful to start off with. However I was one of those for who it worked. I also saw a counsellor afterwards for a while. A few months later something had happened with my confidence for the better. I first took a supermarket job (I didn't have the confidence to work at my real skill level & I hated it!) but began saving to start my own business importing parts & craft items for a hobby of mine. I sold online and could work from home and could mask enough to cope with customers, even the difficult ones.

I also volunteered. I was lucky to get a PT position at my local museum as they needed a photographer and illustrator for their Portable Antiquities scheme and education officer. Archaeology and history has always been a huge interest and I loved it. I also did several other things in the village we lived in as I even made some friends (I find this so difficult usually) - everything from farming to gardening to managing the youth club.

The menopause has not been lovely, but I found that my confidence in some ways is better and the anxiety has almost gone except in high stress moments (now a carer for my MIL with late stage dementia, so quite a lot of them recently)

I hope you can find your oomph again Op - sending an unhug to you (I can't do hugging in real life, but can send friendly unhugs!)

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