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Quickest way to get lower dose of Elvanse?

5 replies

PangoPurrl · 28/03/2023 15:53

Hey, I very stupidly stopped taking my Elvanse over Christmas to be able to have a couple of drinks, and to catch up on quality sleep. Within a few days I'd 'reversed' my body clock and was staying up until 3/4am then sleeping though the day (my natural state pre- ADHD meds) When I tried to restart my Elvanse it had a horrible effect on me as due to it having gone out of my system the dose I was on is now too high. I've had a couple of months of spending most of my time sleeping by day/watching trash tv by night and feeling like a zombie, then finally got myself to the doctor last week to ask them to prescribe a lower dose so that I can titrate back up. They have refused as they don't know anything about the medication! (They took over prescribing from PsychiatryUK last year, I was assessed and diagnosed by them through right to choose) So I contacted PUK today, but as I've been discharged they can't help me without my being referred by GP, and then there'll be a wait of minimum 6 months. Phoned GP, who have just come back to me to say that I have to go to the practice to complete some forms in order for them to refer me. I can barely leave the house at the moment, but I'm hoping to be able to force myself to go tomorrow. I have a horrible feeling that this means that I'll be starting from the beginning again, so waiting at least a year to speak to a psychiatrist, then another 6 month minimum for titration. How is this a sensible way to do things?! Purely to get me back on to a drug that was working miracles for me (and I had no problems with other than sleep issues) and that I literally just need a lower strength version of temporarily?
Sorry this is so long, I'm so distressed and I'm really hoping that someone can help with a quicker way to get back on to my meds?! I know it's unlikely, especially with the fact that during all this I haven't been able to run my business so literally don't have a penny coming in other than the lowest rate of pip.

OP posts:
kingsleysbootlicker · 28/03/2023 23:10

When I tried to restart my Elvanse it had a horrible effect on me as due to it having gone out of my system the dose I was on is now too high

Do you still have the higher dose prescribed? Elvanse capsules can be opened and stirred into food (eg yogurt) so you don't need to take the full capsule dose

PangoPurrl · 29/03/2023 00:06

kingsleysbootlicker · 28/03/2023 23:10

When I tried to restart my Elvanse it had a horrible effect on me as due to it having gone out of my system the dose I was on is now too high

Do you still have the higher dose prescribed? Elvanse capsules can be opened and stirred into food (eg yogurt) so you don't need to take the full capsule dose

Ah, thanks so much for the suggestion, I do have plenty of the higher dose capsules. So could try this, but I thought taking it in capsule form enabled a slow release? I've felt very much like the drug 'fixed' my executive dysfunction as I was so productive yet also so calm on it, but now it's almost like going off it has not only 'reset' me but has made me worse than ever. So I am worried about doing anything that will mess with my brain chemistry.

OP posts:
kingsleysbootlicker · 29/03/2023 10:33

My Elvanse could definitely be opened and split, I'm intolerant of most medications so always need to start on miniscule doses! It should say on the info leaflet that comes with it

BertieBotts · 30/03/2023 21:19

Yes read the leaflet.

The way that extended release works is that some of the pillules inside are coated with a substance that only dissolves after ~4 hours in stomach acid or similar.

There will be instructions inside which say if you can open and split it and if so how to do this - some are not supposed to come into contact with food/liquids other than your stomach acid for example, so they do need the outer shell to protect it until swallowed.

Sorry though I am just boggling at the ridiculousness of that system. FFS. Hope you can get something sorted.

FunnyCradock · 05/04/2023 20:26

Mix it in the same volume of milk as the strength eg 50mg capsule in 50ml or 60mg in 60ml or 70mg in 70ml etc

This will give you 1mg per 1ml

Then measure out your dose of the liquid based on where you want to start & throw away the rest.
Eg 20mls gives you 20mg, 30mls gives you 30mg etc. Titrate gradually at a rate that works for you.

I have done this with Elvanse on the advice of my psych consultant

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