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Neurodiverse Mumsnetters

Use this forum to discuss neurodiverse parenting.

Do you have GI issues? IBS, Gerd, Gastritis etc

9 replies

ofwarren · 30/11/2022 09:23

Many studies show that GI issues are extremely common in autistic individuals. Do you struggle too?

My eldest has acid reflux, as does my middle autistic child. I have chronic gastritis, IBS, GERD and a gluten intolerance.

How do you manage this as an autistic person? It must be so hard for those of us with AFRID.

The main issue for me is that I don't know when I'm thirsty so I end up constipated and I've huge sensory issues with clothes touching my often sore or swollen abdomen, to the point where I'm considering buying maternity leggings. Frustratingly, I need compression to feel comfortable, just not around that area.

OP posts:
AffIt · 30/11/2022 17:20

Absolutely yes - diagnosed ASD, but no diagnosis to match my chronic gastric symptoms which include IBS-type symptoms, reflux, heartburn, crushing indigestion and so on.

I take a LOT of OTC omeprazole, drink mint tea and hope for the best. I also wear a lot of tight compression-type garments (body suits, leggings etc) - a combination, I think, of sensory-seeking and and physical comfort.

ofwarren · 30/11/2022 17:23

AffIt · 30/11/2022 17:20

Absolutely yes - diagnosed ASD, but no diagnosis to match my chronic gastric symptoms which include IBS-type symptoms, reflux, heartburn, crushing indigestion and so on.

I take a LOT of OTC omeprazole, drink mint tea and hope for the best. I also wear a lot of tight compression-type garments (body suits, leggings etc) - a combination, I think, of sensory-seeking and and physical comfort.

It's dreadful isn't it
I'm on lansoprazole permanently and unless I eat a none processed diet and cut out basically everything nice, I'm in pain. I have to sleep eith the head of my bed propped up and I pop gaviscon like nobodies business.

OP posts:
AffIt · 30/11/2022 17:26

As you say, there is a lot of interesting clinical data linking gut issues with ND diagnoses - the link between the 'big brain' and the 'little brain'.

BoardLikeAMirror · 30/11/2022 19:07

Yes - IBS and acid reflux, had both since the age of about 9. Autistic.

I wonder what the physical connection is?

ofwarren · 30/11/2022 19:11

BoardLikeAMirror · 30/11/2022 19:07

Yes - IBS and acid reflux, had both since the age of about 9. Autistic.

I wonder what the physical connection is?

I've no idea. It's so weird isn't it.
Got to be something to do with the brain/gut connection thing but I don't know what.

OP posts:
BlackeyedSusan · 01/12/2022 10:05

HSD and gut issues are linked.
Autism and gut issues are linked.
Autism and HSD are linked.

My fucked up connective tissue may be the trigger but who knows?

MumofOne1789 · 04/12/2022 18:20

I have issues too (I would say mild though). I take probiotic tablet and peppermint tablets which seem to sort the issues.

self diagnosed autistic.

I saw somewhere the link is high levels of stress due to masking, something along those lines anyway. Made sense when I saw it.

Pugsbladder · 05/12/2022 21:23

Yes. Autistic diagnosed Asperger's. Terrible acid reflux. Permanently on medication. I buy Nexium as it's more effective for me than lansoprazole.

amusedbush · 06/12/2022 14:28

Yes, I was first prescribed antacid when I was about 7 years old; I remember rolling around on the living room floor in agony. I have suffered terribly with heartburn/reflux my whole life and I live my life on the "IBS Express", as I jokingly call it.

I am diagnosed ASD but I'm also convinced I have Hypermobile EDS. I saw a rheumatologist and was diagnosed with generalised hypermobility spectrum disorder and fibromyalgia (and also PoTS, after he referred me on to a cardiologist), simply because I was one point short of the hEDS diagnostic criteria. However, I'm pretty sure my mum also has hEDS but without her being diagnosed, I won't get far as it's genetic.

I also saw a thing recently about persistent hiccups in hypermobile people and that's another thing I've always had a lot more frequently than others seem to.

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