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Neurodiverse Mumsnetters

Use this forum to discuss neurodiverse parenting.

Is it real?

2 replies

Allreadytaken · 26/09/2022 13:09

I've recently started on the long route to a diagnosis via the NHS for ASD. In my local area you see a triage service who offer their opinion and refer you on to the correct team for diagnosis if appropriate.

After an hour with triage the two assessors said, without doubt, I am 99.9% autistic. (The autistic part of me is niggled by the missing 0.01%). They have referred me on for a psychiatrist to assess me formally which is great stuff as I want to ask for a few easements at work and this will help. I also found their interim "diagnosis" to be quite comforting too, as it gives a reason to a lot of things in my life rather than constantly just thinking I'm odd, and its my fault.

My crux is this though I don't think anyone believes me! I'm a mid 30's female, married, kids, relatively successful job, lovely house. With a herculean amount of effort I always look organised and on top of life. Again, with a massive amount of effort, I manage to interact with other people albeit I will avoid it when I can as I prefer my communication to have a purpose.

The phrase "it's a spectrum" and I must be on the faking it/lower end of the spectrum is how I feel people have responded to me.

I've just read In a Different Key by Jon Donovan and it seems even the medical community can't even agree on what autism is. So how do I know how I have it?

Am I just weird, odd, strange? Or do I have a neurological condition that explains a lot about me?

Does anyone, diagnosed or not, feel like this?

OP posts:
BigOldGalaxy · 26/09/2022 16:46

Hey,

I've just re referred myself to be considered again for an ASD/ADHD assessment. The first time I was referred to our local clinic which is poorly rated. They sent me a 6 question questionnaire and despite being well over the threshold they still said they wouldn't pursue, as I appear to be managing well in life.

(Read: married, relatively social, child, home, job)

I sometimes have doubts too, am I narcissistic (navel gazing)? Am I anxious (burnt out if I have to socialise)? Am I deluded(have I made all of this up!)? Or is there something to explain all of this.

Hold on to the reassurance from the triage team, that must have been a relief?

BlackeyedSusan · 28/09/2022 07:41

Sounds normal for autism to me. Those bastard tiny percentages eh?

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