Rug pulled from under feet, benefit of adult diagnosis?

[Matchingcollarandcuffs]

Met with school about DS13 yesterday who feel strongly he is likely to have ASD and ADHD and are pursuing diagnosis.

Family members have ASD, I have EDS and I know there’s a relationship.

i feel like a rug has been pulled from under me, looking into it I see I have multiple traits myself and just feel so sad that no one has ever intervened /advocated for me, but not sure whether it’s worth pursuing an adult diagnosis or whether understanding that my struggles /oddness are likely ASD related is enough ?

i am assist getting reasonable adjustments at work due to my EDS so no benefit for work having a diagnosis, I just feel like my whole world has shifted and sad that no one cared enough about me to pursue any help or diagnosis and I’ve had to struggle alone. And that I won’t do that for my kids

I feel there is always a benefit, even just for your own peace of mind. For me there was a big difference between suspecting and actually knowing for certain. It felt like a weight had been lifted.

I have eds (?)* [Sic] And autism
I found getting the autism diagnosis useful too.

• My diagnosis is HSD or possibly hEDS (?)

It is likely to actually be eds looking at the criteria as they did not take a couple of things into account and quite a lot of the peer reviewed literature says they are either the same thing or the same thing but different intensity (sorry waffle)

Thank you. My mental and physical health are taking a battering at the moment and so I may bring it up at one of my many GP appts, but would have to pursue diagnosis on NHS as looks like will have to pay for DS, his meds are far greater than mine.

Appreciate your replies, I think it’s more that it’s flagged up that yea I actually did have a crappy childhood and me (and my siblings) were really let down by our parents. Which is feck all to do with ASD but I guess this is the final straw

I have recently been diagnosed ASD at the age of 32 and feel similar in why did no one recognise it when I was younger and advocate for me. I would say it’s worth pursuing a diagnosis as it has validated my life experiences but it’s been an emotional rollercoaster and dealing with it and processing it has been very hard. If your mental health isn’t the best at the moment, alongside pursuing a diagnosis I’d recommend therapy too as I’m now having therapy post diagnosis and feel it would have helped me deal with the range of emotions throughout the process if I’d started seeing someone sooner.