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Neurodiverse Mumsnetters

Use this forum to discuss neurodiverse parenting.

Being a ND parent.

9 replies

deeplyrooted · 23/02/2022 12:35

I’m posting this in the Neurodiverse Mumsnetters board because I’m specifically looking for views from neurodiverse parents

I’m sure there are quite of few of us here with dc and I wondered if a place to chat about that might be welcome.

But I would also like some input on a looming situation. We have a family birthday meal coming up in a few days - significant gp birthday. Ds has asd and difficulties with mealtimes, food and enforced social situations.

I’ve drawn criticism in the past for allowing ds read at the table (hosting in my home) and leave when he wants. From gps perspective I’m not teaching him skills he needs to socialise. He’s not unfriendly or unwelcoming - he can be very charming and witty and fun, but he also needs to be able to withdraw too.

He has ongoing food issues and on a normal day the expectation is that you come to the table when called, chat a little then he withdraws into a book and eats a bit. He can leave the table when he’s had enough, and often will finish his meal later by himself.

Having dinner guests presents a lot of challenges - different smells for one thing between perfumes, aftershaves and food smells. More noise and chat. I think he handles himself well, and I’d rather he learn to withdraw politely than push himself too hard and either meltdown or be exhausted afterwards.

The gps grew up in a time where there was a narrow definition of “doing it right”, and anything else is a character flaw. Mostly they’re bemused by modern parents and I understand their concerns are well intentioned.

I struggle socially. I’m not autistic, but introverted and have adhd with a tendency to get a touch out of control and deal with rsd for days afterwards. I’m the product of an upbringing of learning to fit in to the “only right way” and I don’t want to pass on the legacy of self esteem and self worth issues.

I think ds is a lovely person with a lot to contribute and I think that it’s time that the NTs budge up a bit and accept that people can have quirks and issues and do things a bit differently.

I’m not exactly looking for advice - I’ll bring ds a book, hopefully sit him along the table from the gps where he won’t be in the firing line of a lot of questions, and take him off for a walk when he needs it. And I haven’t posted this in chat or aibu because I’m not particularly interested in hearing about how I should make him behave etc.

But I’m guessing that I’m not alone in being caught in this middle place of wanting to create an accepting space for our ND dc, that we weren’t afforded ourselves.

Sorry that’s very long. Happy to hear any views on it or any struggles anyone else might have as an ND parent themselves with either ND or NT dc.

OP posts:
ShiftingSands21 · 23/02/2022 13:38

I think you are doing 100% the right thing in the way you support and adapt to your DS’s needs (and your own). I know it’s hard when you don’t have the support of those around you but you sound like a brilliant parent. No real advice on how to deal with the gps I’m afraid.

deeplyrooted · 23/02/2022 14:11

Thanks @ShiftingSands21 that means a lot.

OP posts:
BlackeyedSusan · 24/02/2022 11:04

fucking hell... the bastards. fuck their social conventions, they would not be dragging someone out their wheelchair to go on a five mile hike.

leave the lad alone. Maybe he has a tummy ache that day and needs to stay upstairs. It is not compulsory to pretend to be not disabled just so you don't hurt their feelings., if they don't give a shit about his.

As you can tell this scenario has prompted a strong reaction...

Clarice99 · 24/02/2022 12:06

I have no advice, but after reading your post, I couldn't not comment.

I agree with @ShiftingSands21, you sound like a brilliant parent; so thoughtful and considerate of your son's needs. You carry on doing what's best for him, not the GP's.

I also agree with @BlackeyedSusan. Fuck them and their outdated, unwanted opinions.

BlackeyedSusan · 24/02/2022 12:18

@Clarice99

Glad someone agrees. I am a skirting along the edge of a meltdown today so lost social conventions... shoe shopping for boy.

Clarice99 · 24/02/2022 13:35

[quote BlackeyedSusan]@Clarice99

Glad someone agrees. I am a skirting along the edge of a meltdown today so lost social conventions... shoe shopping for boy.[/quote]
I can relate!

Hang in there, focus on the end game when you can put your feet up later with a cuppa. And breatheeeeeeeeeeeeeeeeeeeeeee Smile

Redfloweryellowflower · 24/02/2022 20:27

Can I also say you sound like a wonderful and understanding parent.

Sorry you are caught in the middle like this. I am in the same situation between GPS and one of mine, though she doesn't have a diagnosis. It can be tricky managing the older generation and their unrealistic or outdated expectations.

deeplyrooted · 25/02/2022 17:30

Oh wow, I’m feeling a fraud now. I’m definitely not a wonderful parent! I’m an adhd mess most of the time.

I’m here getting ready to go, putting on makeup that will make my face feel weird, reluctantly parting with my comfy jumper and feeling a complete hypocrite that I can “claim space” for my ds but I’m still participating and hiding myself in plain sight.

I realised earlier today that I’ve been studying other people to blend in as long as I can actually remember. There’s a good spy lost in me.

@BlackeyedSusan 100%

OP posts:
LightfoldEngines · 25/02/2022 17:36

@deeplyrooted I find it far easier to advocate for, stick up for, whatever, for my DC than I do for me Blush I’ve no fear of telling anyone to fuck off if they decided to force their NT bullshit onto my ND child, but when it comes to myself? I’m more likely to burst into tears!

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