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It’s a DWP Miracle! I’m cured!!

27 replies

BendyAndTired · 16/05/2026 13:11

I’ve been in receipt of standard rate daily living and mobility PIP for the last few years, due to Ehlers Danlos syndrome and post-sepsis syndrome (like long covid, but from sepsis)

I was awarded my PIP originally by scoring 9 for my daily living needs and 8 for my mobility. I have widespread pain and joint instability, and chronic fatigue, plus breathlessness and ‘brain fog’

I’ve just had my review and scored zero points. It’s a miracle, I didn’t even notice but apparently I’ve some how recovered from my lifelong incurable chronic degenerative conditions! I’m thrilled!! I can go back to work full time, start seeing friends for days out, cook, and clean my house, start gardening again, honestly, the possibilities are endless! Isn’t it amazing?!!??

Obviously I’ve started the mandatory reconsideration process, and asked for a copy of the review report the assessor wrote that made the decision maker conclude I’m actually perfectly fine. But holy fucking shit, it could take up to 15 weeks, and even then could go to tribunal.

I’m so angry and frustrated, this whole system is so corrupt and broken. I have medical evidence and testimonies from my GP, occupational health at work and my line manager about the accommodations they’ve made, and reduction in hours.

OP posts:
MrsCarmelaSoprano · 18/05/2026 22:14

I'm so sorry, it's absolutely shocking. I had my blue badge taken away this year after having it for 20 years. They said they didn't think my illness was severe enough. I appealed but it was like banging my head against a brick wall. It's a shame my injuries haven't actually got any better.

TigerRag · 19/05/2026 07:45

They actually told me at my assessment that I'd grown out of my hearing loss. I was told by my consultant that when I was diagnosed, there's no cure

They also told me there's no reason why I can't drive and I've chosen not to...my parents were told when I was a toddler I'd never drive. A former consultant of mine told me he has patients who pass the eye test but on the day they struggle because the nature of the impairment is affected by tiredness. I actually predictably failed the eye test done at the assessment

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