I have always been autistic. I thought what I had outside of work was ‘normal’ getting home and being so exhausted I couldn’t move or do anything basic and weekends unable to speak to others etc it isn’t ‘normal’ and my GP and autistic specialist (counsellors etc) have warned my work (in writing) that I am ill and heading towards an autistic burnout.
HR have all 3 diagnosis letters and all of them have been given to work as documents, including my line manager, my head of department, head of HR and the Line manager of my head of department.
HR don’t seem get it. They have said - we are all tired at the end of the day. OH have said (to work) you are working her to the point of no return and risking autistic meltdown by not implementing previous reasonable adjustments from other OH reports (ironically the OH assessment work sent me to). You are asking her to do more - not less than others and with no reasonable adjustments. The Head of the organisation told me my autism is my and therefore the organisation’s ‘superpower’ as I am so efficient and will stay and complete whatever is needed by whatever the deadline is.
They have my disabilities in writing but they do not make me disabled (according to work). It’s taken me a long time to understand yes I do my job but the effect on me is meltdowns, no work life balance, no sleep (I’m on medication and sleeping meds as I am constantly anxious).
^I wrote the above last night and I was really quite overwhelmed with it. Today feels brighter and I’ve taken on board the things some people have said eg apply for a blue badge and I’ve had to filter out odd mean comment eg the person that said basically this wasn’t reality and I was making a drama out of it.
I do tend to spiral and see things as very black and white and no shades of grey- welcome to my autism!! . I went in to work early, had a cup of tea. I took my documents with me (autism assessment, adhd assessment, all the OH reports and a previous letter written by the GP to the workplace about following the OH reports asking the to follow all the guidance in the OH report in light of my diagnoses which she had also listed. This was hard as I struggle to vocalise my feelings and I do find social meetings / eg face to face really hard.
I took these to the woman who had sent me the email and who allocates the parking permits. She was very nice and said the documentation was more than enough to prove yes I was disabled and qualified.
I had some time at lunch today and I phoned my Autism mentor (that I pay privately for counselling and have been for a while whilst I grapple with my diagnosis) and I found that useful and might apply for a blue badge both the lady at work and my mentor said I didn’t need to but I probably qualify for one and might find it useful.
So I am going to apply for a blue badge and if anyone has any advice please let me know. In the meanwhile the woman who allocates the permit has entered on my file that I am disabled and she has seen evidence.
For some people to understand my workplace is so hard for someone with my condition - I am good at what I do but it has a high impact on me personally, health wise, medically and a lot of it is ‘hidden’. But I can drive to Tesco panic that I can’t park where I normally do and literally come home crying. I have strategies to cope like most people I have methods and things that work for me. Eg I work silently through lunch to cope with my work load and do not go to the canteen as that would be too overwhelming for me.
It is not a physical disability but I have had various people say stuff like - oh that’s really noticeably an autistic thing you do (?) can you stop doing it and if you stop doing it will that stop you being so autistic(!) and yes this is people I work with and this was because I like everything ordered on my desk, I have had comments such as - but you can’t be autistic you are good at your job (?) various OH reports have suggested the workplace need to do more training on inclusivity and ND understanding but so far nothing has happened.
Oh and I did fill in the form for distance etc but Q1 was what is your name Q2 was are you disabled Q3 what days do you work and so on…. So I would probably still have got a parking allocation one on distance. It was more the email saying ‘you aren’t disabled, or have any disabilities - HR say you aren’t and have no disabilities etc can you prove you are disabled or have disabilities’ which when you have repeatedly given them in writing to HR and done OH assessments that say you aren’t it felt overwhelming yesterday! Sorry!
I braved a fear and went to see someone face to face which is hard for me! I am usually pretty silent at work and just get my job done even if it means like tonight I didn’t get home until 7.30 pm but at 55 please don’t tell me to change the anxiety and social overwhelm as I can’t.
Many thanks to all the posters who were supportive and did get it they were helpful