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How am I supposed to survive new benefit rules

153 replies

Canaryhead · 19/03/2025 14:19

Maybe I’m in the minority but I’m under 22. I am also severely impacted by parts of my autism, I have high and low functioning aspects.my executive functioning can become severely impacted depending on how many ‘spoons’ I’ve spent, and then I can’t care for myself. I can articulate myself, not always but I have had humiliating public meltdowns that have drawn attention to me. It also causes me to self harm. I know about the spoon theory and certain adaptions that can make things easier for me, but my needs mean it’s easy to push me over the limit.
(just a note to ask if there are any recommended books on preventing these episodes)
I am estranged from my parents, I left home at 16.
I was working with someone to get qualifications but the funding for it in my local area was shut down.
under the new universal credit rules, I will be £400 a month worse off if I don’t look for a job, if I’m honest I don’t think there will be anyone who would hire me.I’ll lose my rent element and I’ll lose the money I use to pay for my support worker.
So now I am worried sick

OP posts:
ByTicklishLimeBalonz · 29/03/2025 01:01

REDB99 · 19/03/2025 14:54

You’re under 22, are you suggesting that you will never work?? I really do hope you get the support you need and hopefully there are local schemes or initiatives to help you. You cannot at less than 22 years of age be suggesting that you will be on benefits your whole life? This is exactly why the system is being reviewed. Benefits should not be a life long thing. You should get support while you need it but you should not be resigned to a life living of the state (I accept that significant disabilities are the exception to this).

but then if companies dont want people like the op, then what else can they do ?

Igmum · 29/03/2025 18:28

Did you have an EHCP? There may be schemes to help ease you into work. There are also schemes for young people without who are NEET (Not in Education, Employment or Training). Given the government’s plans I suspect more schemes will be introduced. Speak to your care coordinator or your local Job Centre who may be able to help. Good luck OP

BobbyBiscuits · 29/03/2025 18:32

I'm sorry, it must be really stressful for you.
I think it's out of order to say younger people can't claim disability.
Have you spoken to citizens advice? If you're not able to work then you should be in the support group? I hope things improve for you.
Have you ever worked before? Do you think you could manage some limited work? The question is, where are these Uber flexible jobs that the government expects all disabled people to suddenly pick up? It's really harsh. X

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