Meet the Other Phone. A phone that grows with your child.

Meet the Other Phone.
A phone that grows with your child.

Buy now

Please or to access all these features

Mumsnetters with disabilities

Please see our webguide of suggested organisations for parents to support children with learning difficulties.

Am I entitled to adult disability payment

2 replies

Shyfrog · 28/09/2024 13:00

I have severe mental health issues including agoraphobia and I am autistic. I know that these things affect everyone differently so before I start, I don’t want to be judged based on what another autistic can manage.
I usually have just about enough energy and focus for the basics. If I spend energy on anything else including trying to socialise with ANYONE including anyone like my mental health support workers, that causes me to feel drained and I lose some of my ability to function for days, or a week. I need to decompress and recover doing nothing and essentially being a vegetable to get it back and I can no longer function completely. If I continue, I lose my ability to function at all. for example the things I lose are the ability to remember, including issues with memory and listening and paying attention to what someone saying to me, I lose my ability to read. I lose awareness of my surroundings and am more likely to walk out infront of a car. I lose my concept of time. I lose my spatial awareness and ability to cook safely etc etc. I essentially become a low functioning autistic person, I get dark thoughts and I can’t control my moods or behaviour until I can think straight again.
I get adult disability payment but if I spend a month or more able to function and am not effected by these issues because I am not socialising with anyone, am I still entitled to my disability payments? Or am I counted as not able to do these things because I have to trade in speaking to anyone to do them?

OP posts:
SuperLoudPoppingAction · 28/09/2024 13:11

If you've been assessed as eligible for it, you've provided evidence, they've reached out to your GP etc and you're eligible.
You can't suddenly cure autism. You might learn coping strategies but I find I still meet the criteria even when I feel like I'm doing better than average.
Part of the criteria is the impact it has on you of you do something. Not just if you can do it at all.

ballybooboo · 21/10/2024 01:59

I know this is an old thread but not socialising at all has a massive effect on your quality of life and I would think matters a great deal. I've never seen a PIP form (waiting for mine to arrive) but I suffer the same burnout from socialising/leaving my house.
Personal Independence Payment, if you can't interact with the human race then that's not very independent and therefore you need support or to buy in this support?
I have always had this, but the extent has become ridiculous. There's no point to my life unless I get some help to feel less overwhelmed with the tiny everyday tasks like washing and dressing (I WFH) so I can go get my hair cut/meet a friend for coffee etc

New posts on this thread. Refresh page
Swipe left for the next trending thread