Any other MNetters with cerebral palsy here?

[Duetorain]

With the new board thought I’d start this. I have spastic CP right hemiparesis. Also sight issues. I have ASD and need to rest a lot. I’ve never really thought but maybe part is physical as well, just general life takes a lot (and I don’t even have children)

So hello

I haven't but my son has and I would love to be able to ask adults with cp questions as and when things arise if that would be ok?

My adult dd has cp. she is severely affected.

DS (13) Has dyskinetic CP. He is severely affected but tires very easily. I know the people with cerebral palsy use far more energy than NT people, so need to rest more and pace themselves.

I guess good diet and good sleep would help.

I've got Spastic Diplegia. I'm 43 and I'm married with 2 boys aged 13 & 8.

Hi
I have the same as you op, but mine is left Hemi

Hi @Powerchaircrazy can I ask how long you have had this? I think I may have this am waiting to see podiatrist Thursday , I have pvl and had no other symptoms but over the eeekend I've lost balance and my feet have started to turn inward and my leg was shaking like I was having a fit it was really scary and this is what I've ended up reading about could you tell me more about how it affects you please if you don't mind thanks x

Hi, I've had it since birth. I was born 10 weeks premature so it was most likely caused by oxygen deprivation during or just after birth.
It's not something that you can develop later in life, although a brain injury can cause similar neurological issues x

Oh wow! Do you have pvl also? I think this is what's causing the troubles from the nerve damage but my feet going sideways now and my leg and arm have started like having a fit and I've been reading about it all being linked and just wondering what it could be and pvl is closely related to my brain injury , can I ask how cp affects your movements please if you don't mind sharing?

Hi all,

I know this is an ancient thread but I have left hemiplegia. I am 41, married with two kids. I do wonder if there's also something ADHD-ish going on but it wasn't a thing when I was younger so everything focused on the physical side.