DAE have a less than positive experience with being diagnosed?

[Tula99999]

Mine was one of shock and confusion. So many people describe relief, self acceptance and acceptance from others, but I honestly just felt defeated, broken and so very alone afterwards. And the feeling of being alone has lasted for years, as it feels like at least 95 % of people diagnosed had a better experience.

Please don't just tell me to be proud or have a positive outlook, I was hoping that there could be a space for venting/comfort/advice for those of us who share this rare perspective.

[BertieBotts]

What did you get diagnosed with? And in what circumstance? I think most people who feel relief etc have self referred so it might be that it's relieving because we've had suspicions all along.

[LIZS]

Diagnosis is only part of the picture. Were there any suggestions for coping strategies or signposting you to relevant groups or counselling.

[Tula99999]

So sorry for the late reply, haven't been logged in since.

One of the diagnoses considered "neurodiverse". Yes, I was very young and had little agency in my life, and you're right, it's probably very different if you're self referred.

I have just dipped my toe into support groups, and boards online, but I always feel a bit out of place there.