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Being assessed for ASD as an adult-please could you tell me your experience

9 replies

Adultasd · 19/05/2021 10:57

Hello, I'm being referred for an ASD assessment and would really appreciate hearing from others who have been diagnosed as adults.

I was considered awkward, difficult, and different as a child. To me I was just me. I wouldn't open gifts in front of people, hid under the bed at my own party, preferred one to ones and didn't like groups, felt overwhelmed and sad and angry on a regular basis and like I was on always on the outside of family, friendship groups. I didn't fit in anywhere.

As a teen and young adult I had an eating disorder and was depressed, a school refuser and very anxious.

As an adult I don't have close friendships and those I have had haven't lasted due to me gravitating towards troubled people who have turned out to be two-faced and unreliable. Two things I can't bear. I have huge sensory issues. My hearing, sense of smell and touch are very sensitised. I wear sunglasses on full, cloudy days all year round, can't bear the sound of people chewing, swallowing, sniffing, clearing their throats, clicking keyboards, clicking heels, you get the idea. I can't stand the feel of certain things or certain clothes. I'm told my face is giving dirty looks but I'm not aware of it, I struggle with taking turns in conversations and always seem to interrupt or talk over people and if in a group I don't know where to look or when to talk. Eye contact makes me uncomfortable. I do it but I don't like it. I find people perplexing. I have good empathy and feel emotions very intensely.

Does this sound familiar to anyone? Have you find ways to cope with things?

OP posts:
gettingusedtothelimelight · 19/05/2021 10:59

Sorry no experience but my daughter (16) sounds exactly the same as you so I'm interested in replies.

TwittleBee · 19/05/2021 11:02

Also interested in the replies as sounds similar to me, although I've just been diagnosed with ADHD I've always wondered if I should consider ASD.

The eye contact feels like it actually burns my eyes. I do it but it's so so painful that I can't maintain it.

Adultasd · 19/05/2021 14:36

I wonder if I have ADHD too. My mind is like a kaleidoscope most of the time. I read and JW e no idea what I've just read. Flit from chore to chore rarely completely one of them, and find la know stimulation uncomfortable so I'll seek out tv sometimes but read at the same time (on here usually) and not concentrate on either. I drive myself mad.

OP posts:
BeastOfBODMAS · 19/05/2021 15:12

My experience of an NHS ASD assessment is that once it was completed and I was declared autistic, I asked what support was available. The assessor handed me a leaflet for a weekly meet-up support group that was on a Wednesday mid afternoon.
“But I work full time, is there anything available out of working hours?”
“The friends-and-family support group is in the evenings but no, there’s nothing for you as they don’t really expect people like you to hold down a job”. Shock

For me, the diagnosis has been a useful shorthand to explain myself to employers, family etc.
I haven’t found any miraculous solutions or stopped having eccentricities but I do use a lot less headspace worrying about WHY certain things seem so much harder. I am better at setting boundaries and not putting myself through situations e.g. a work social or a busy supermarket, that will just cause unnecessary stress.

Lots of your OP is familiar to me and I am happy to share specific coping strategies I have but don’t want to drone on Smile

TwittleBee · 19/05/2021 15:29

OP, that's exactly me. I'm also one of those people who attempts to be organised, I've a mew Method of organisation every week but it never lasts a day.

My husband believes I may have ASD but rest of my family thinks it's laughable. In fact my mum refuses to acknowledge my ADHD as she believed I haven't any of the traits but that's because I've been having to mask hard around her since I was small for fear of harsh discipline.

@BeastOfBODMAS - it doesn't surprise me that's the attitude sadly. How have you found it in terms of helping it explain your behaviour to others? Has it made it easier to receive understanding?

BeastOfBODMAS · 19/05/2021 15:47

@TwittleBee I can’t really say whether it has made it easier to receive understanding, as reading others’ social cues and inferring what they might think or understand is not one of my strong points!
It has made it much easier to state “this is who I am” and crack on with my day. I experience a lot less social anxiety as I’m not so concerned with fitting in, beyond politeness and good manners which (I think) I can generally manage.

Adultasd · 20/05/2021 08:33

Would this be better in another topic @MNHQ

OP posts:
Melangel1978 · 25/10/2023 14:21

I'm very similar and waiting for an asd assessment I'm 45

duffed · 30/10/2023 10:21

I've been on a waiting list for 4yrs, have just received my diagnosis for autism in my thirties - I think a lot of women get diagnosed with other things first like OCD, anxiety, eating disorders, borderline personality disorder, depression.. and then suddenly someone thinks to loop all those problems together. Even if there's no support in your area, there are support groups and networks online and through charities so its well worth knowing about.

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