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Could I have asd?

28 replies

imwithspud · 15/02/2016 22:50

I hope it's okay me posting here, a thread about adult women with asd came up in active threads a few days ago, and ever since then I've been doing some reading and it's like I've had a bit of a light bulb moment. I think I might be HFA. I've yet to discuss this with dp or anyone in real life yet because there's every chance that I'm NT and I'm making completely normal aspects of myself into something they're not or I won't be believed as I seem to function (mostly) in every day life. So I'm just looking to hear what other people think. Sorry in advance if it's long, I'm sort of thinking out loud.

I've always felt 'different' throughout my whole life. Yet no one else seemed to really notice, I just assumed It was in my head and that I was just the same as everyone else really.

Eye contact has always been a difficult one for me, I don't seem to know what is an appropriate amount of eye contact to make, I end up either avoiding it completely or doing it too much, or making eye contact, but not being able to hold it. I feel like everyone else manages this fine but I can't.

Food has always been an issue. Growing up I pretty much lived on a diet of chips, spaghetti hoops and toast, gradually expanding to things like pizza and chicken nuggets as I got older. I am loads better now as an adult but I'm still funny about textures and tastes that most people are fine with. I thought it was just me being fussy but maybe it's linked in some way. I do try new foods, but it has to be on my terms, when I feel 100% comfortable. Sometimes I go off certain foods completely for a while for no real reason.

I struggle with change and unexpected events. Unexpected guests spring to mind, even if it's my DM or PIL, it makes me feel unsettled and massively inconvenienced although I'm sure that's not uncommon anyway.

I hate loud noise and crowds. Even the tv being up too loud makes me snappy and I literally feel like I can't hear myself think. I get (inwardly) annoyed in busy shops with people being in my way and being unable to just get to where I want to be without hassle.

I was always a 'tomboy' growing up, still am now to an extent. Never really been into traditional girly things, although I did try on occasion in my youth in order to try and fit in.

I twirl/mess with my hair, usually shorter pieces of hair at the front in my fringe and around my hair line, I don't even realise I'm doing it but I find it comforting I guess?

I'm far to serious sometimes and I take things personally. Dp will poke fun at me, nothing mean, just light hearted stuff and I will be offended by it. Always been this way, again in my youth I learnt to laugh it off even if I wasn't finding it particularly funny.

I struggle to contain my emotions sometimes, have on occasion lost my rag during a 'bicker' with dp and ended up shouting and storming off, really embarrassing teenage-type behaviour for someone who is supposed to be a mum of 2. Always tell myself I'm going to keep my cool but sometimes it gets too much too quickly and I feel 'overloaded'.

I rarely get enough sleep at night because I prefer to stay up.

I can get very set in my ways, I don't like people telling me how to do 'x' when I already have my own way of doing it, even if their way is a better or more efficient way. This drives dp mad as I can be so dismissive in a "thanks but I like doing it my way" way.

My interests are a bit 'different'. I'm not massively into a lot of the mainstream stuff that lots of people I know are into.

I find it hard verbalising thoughts, feelings, opinions etc. I find it much easier to type or write things down.

Pretty sure I have undiagnosed depression, struggle some days to get every day tasks done. Dd's are always taken care of but some days basic housework can be a struggle. If I force myself to get up and do stuff, I feel tonnes better but some days I just don't/can't.

I'm quite forgetful. Even on this post I'm thinking of the next point, then as I'm finishing typing my current point I forget it.

Never really had friends until late primary/secondary. When I must have started becoming more self aware and trying to fit in more. I mainly just tried to act 'normal'. In fact I'm sure I remember writing a diary just before starting yr7 where I said I was going to turn over a new leaf.

I remember random things that most people forget about. I also talk about random or pointless things, and end up going into far to much detail, that most people don't care about.

Repeat myself, either because I can't remember whether I've said it or not, or I feel that the person/people didn't take it in or acknowledge what I said first time round even though they have.

Hate talking over the phone unless it's one or two specific people I feel comfortable with. Will only make phone calls if I absolutely have to I.e if I need to make a doctors appointment for one of the dc's.

I find dd1 (3) especially really difficult to cope with at the moment. The demand for constant attention is just draining and difficult to cope with. The constant questions which I sometimes struggle to find an answer for, the constant climbing and cuddles and kisses whilst lovely, are also a horrific invasion of my personal space.

I'm sure there's probably more but that's all I can think of for now. Does this sound like it could be anything? Or is it how things are for everyone. Hope I haven't caused any offence posting here, I feel a bit silly and embarrassed posting this but guess I'm looking for answers really.

OP posts:
PolterGoose · 16/02/2016 17:49

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imwithspud · 16/02/2016 18:38

Thanks for the reply Polter. I will check out the support thread. Have done a bit of reading on women and asd over the past week or so but I'm still learning a lot. Some of it really resonates with me and when I think back to things that have happened in my life it sort of makes sense now whereas it didn't before. Will check out Tanks Marshall and Sarah Hendrickxs.

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PolterGoose · 16/02/2016 18:59

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imwithspud · 16/02/2016 19:24

Whoops! I think I'm more embarrassed that I didn't realise it was probably a typo Grin Blush

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PolterGoose · 16/02/2016 19:26

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Cookingwine · 16/02/2016 20:00

You sound really similar to me OP. Dd1 (10) was assessed and diagnosed last week with ASD, and during that 2 year process I realised I have so many traits of ASD too it was disturbing. DH has also lots of traits. Before knowing about ASD years ago DH used to joke that DD1 had inherited the worst of us while our other 2 DCs were the lucky ones. I have good days when I think I barely touch the broad autistic phenotype and bad days when I think I have the full blown condition. I have read Sarah Hendricks (and quite a few others about girls and women on the spectrum) and found them so interesting. I am more gentler with myself as well and give myself some slack. It is really difficult with small children, try to get as much me time as you can!

imwithspud · 16/02/2016 21:01

Thank you Cooking It's great to hear others experiences. It's all still very new to me, I'm going to be doing a lot of reading I think. It's literally never occurred to me that I could be on the spectrum, but all the little things here and there, seem to come together if that makes sense? The behaviour that has baffled both me and DP over the years, now sort of makes sense - there could be a reason for it now. I thought many things were just 'me'. Me being depressed, me being anxious, me being lazy, me being forgetful, me being bad at socialising, me being a horrible person, me being a fussy eater etc. Until I started reading about how women with ASD can present differently I didn't think any of those things could be connected.

I'm still unsure what to do next, I'll be interested to hear what DP thinks when I bring it up with him. Not sure whether I'd try to get a diagnosis or not although if I do have it, it would help me and others realise that there's a reason for X and it's not just me being a shit person or what ever (not that I'd use it as an excuse to be a shit person but you get the idea). Then again if it's true that female ASD isn't as broadly recognised as 'traditional' ASD especially within the NHS then it might just be a big waste of time anyway. I think I'm going to have a read of the support thread.

OP posts:
PolterGoose · 16/02/2016 21:37

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Cookingwine · 16/02/2016 21:41

My self esteem is better now that I understand why I am so rubbish at socialising and enjoying what most people like. It is not because I am not a nice person, IYSWIM. At the moment though I don't feel like going through the trouble of getting a diagnostic, as I am not sure it will bring anything. My mum was interested and she also reckons she is on the spectrum which I think is boosting her morale right now, the most interesting for me was to revisit past experiences that were confusing with that lens on and it is really nice to finally understand my life Smile

imwithspud · 16/02/2016 22:37

Polter thanks for all the advice, you certainly know your stuff. Those are definitely some routes I will look into. I kind of feel like I 'need' a diagnosis as proof to myself and to others - having it 'on paper' so to speak would make it seem more real to me, and not just something I've decided iykwim. But I'm also scared, just in case it comes out that I don't have asd and I look like a fraud or something.Blush

I'm also planning on going back into education at some point, so although I don't think I'll need any extra support with that, it would be nice to know that the college knows so that if I do struggle they will know why and can help accordingly. I never needed any extra support through school, but I did lose my way during 6th form college and ended up dropping out with nothing to show for it.

Cooking I am hoping I am able to be kinder to myself, I am my own worst critic, it's terrible. I have spent lots of time throughout my life hating myself and beating myself up over things. Lots of things I've still yet to get over or make peace with. Hopefully I can now though.

I think talking with my dp, whilst armed with information to help him understand where I'm coming from will help me. If he, as a person on the outside looking in can see the connection I'm making then it will seem more real and not just something I've created in my own head, (not asd itself, but the fact that I may have it) if that makes sense. Just not sure how to bring it up "so today I've decided I'm on the autistic spectrum" seems a bit too upfront.

That's another thing I struggle with. Bringing up certain topics of conversation. Instead I just avoid them in any way possible.

And this is really random but I've always hated the feel/texture of velvet/velour type material. When I touch it, it makes me cringe and sends shivers down my spine. Especially if i stroke it the wrong way. I don't have this problem with any other fabricBlush sorry that was completely unrelated. Just popped into my head just then, I figured if I have all this stuff written down somewhere, I can find it at some point should I need it for what ever reason.

OP posts:
Cookingwine · 17/02/2016 07:07

Good luck in your journey. DH was not really interested at first, then acknowledged it and moved on quickly, while ASD became my new special interest IYSWIM Wink

FaithAscending · 17/02/2016 14:58

I was in your position 18 months ago. I read the Tania Marshall list after seeing a thread on MN. I had the lightbulb too. After some deliberation, I asked my GP for a referral. I went round in circles while waiting for assessment. I did online quizzes, decided I probably had ADHD/Dyspraxia/Bipolar and not autism. Except I do! My assessment confirmed that I do have ASD. I suspect there's attention difficulties and co-ordination problems related to that.

I'm glad I got diagnosed because it's helping me to understand who I am and why I do what I do. I've also disclosed to Occ health because I'm having issues with work and looking for an alternative position in my company. For some people, self-diagnosis is enough, I needed a diagnosis. Do come and join the running thread though. It's very helpful.

SENMumoftwo · 17/02/2016 16:19

I have finally booked my (private) Autism assessment .......... eek! It's taken me about 4 years of putting off asking the Dr for a referral, for fear of them thinking i'm questioning (I have this questioning authority thing going on) them! Blush

Everything you've described is so familiar to me. I just can't get across what I need to sometimes and get so frustrated with myself. I just need to know either way now I have definitely decided, and have the funds to do it.

PolterGoose · 17/02/2016 16:21

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SENMumoftwo · 17/02/2016 16:25

Thank you PolterGoose Smile

imwithspud · 17/02/2016 18:45

Good luck SEN and thanks for the input faith.

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SENMumoftwo · 18/02/2016 12:41

Lots of luck to you too imwithspud - Have you had anymore thoughts on chatting to your DH etc?

imwithspud · 18/02/2016 16:22

Thank you! No not yet, I'm not sure what I'm afraid of really. Maybe that he might not take me seriously, I just need to figure out how to say it iykwim.

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SENMumoftwo · 20/02/2016 11:39

I completely understand that. I really struggle to initiate things and I got round it another way. And when I try to talk about me and any of my difficulties, I stutter, forget the words and completely avoid eye contact. I was also convinced my DH would leave me too!

imwithspud · 20/02/2016 12:15

It's so hard! But I'm glad I now feel I have a reason for why I struggle with certain things and I'm not just odd or socially inept like I thought I was!

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PolterGoose · 20/02/2016 12:16

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PolterGoose · 20/02/2016 12:18

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Cookingwine · 20/02/2016 12:42

I like that Polter, very well said!

PolterGoose · 20/02/2016 13:10

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Ineedmorepatience · 20/02/2016 13:10

Well said polter! That is a great way to think! I am crap at being neurotypical because I am not neurotypical!! I love that Grin

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