Have you experienced pregnancy loss since January 2014? Please help MNHQ by completing our survey. NOW CLOSED

[AnnMumsnet]

This is our regular two-yearly survey looking at women’s experiences of miscarriage care in the UK.

The Mumsnet Miscarriage Care campaign has run since 2010 and its aims are to ensure that all miscarrying women, and all women experiencing other forms of pregnancy loss, get the good, respectful, empathetic care that they need. You can read more about the campaign here. In the past we’ve had successes such as getting the post-miscarriage surgical procedure renamed, after lots of you said that you found the old terminology upsetting. But, of course, we want to keep the pressure on for better services and care.

Although our campaign is principally about miscarriage care many aspects also apply to other forms of pregnancy loss, such as ectopic pregnancies that are ended by medical treatment, or stillbirths. Women who have experienced these since January 2014 are very welcome to fill in the survey; apologies in advance if some of the questions aren’t appropriate to your situation, but there should always be an option for you to say that something isn’t applicable to you.

Because the aim of the survey is partly to compare results with previous surveys and see what (if any) changes there have been, we’re asking only women who have experienced pregnancy loss since January 2014 to fill this one in. (Apologies to those of you who are excluded by this - your input is still hugely welcome on other aspects of the campaign and we will tell you more about how you can get involved soon.)

We know that pregnancy loss can be a difficult thing to talk about, so thank you in advance for sharing your experiences in the survey. We’ll use the results to inform and update the campaign.

A note about language: we’ve tried to be as sensitive as possible in choosing our words here. We hope we’ve made the right choices, but please do give us your feedback if you think something isn’t right.

Here's the survey link: www.surveymonkey.co.uk/r/92MBXYH

Thanks
MNHQ

Completed. It's interesting to see the variety of help that IS out there - I was offered nothing post-surgery other than the number for a helpline. The other thing was the options for how long you had to wait for surgery - the highest was 4 days but I waited almost 2 weeks and even then I only got taken in because there had been a cancellation. That was the worst bit for me, that wait.

Done

Done, my experience was full term stillbirth so some of the scan questions weren't quite relevant but I've completed it as best I can.

for all that have suffered losses of any form. It's truly awful.

Done, unfortunately made me realise that whilst it was good we were referred to a specific EPAU, many aspects of my care were downright awful. Very sad :(

I can't complete the survey as I didn't have any contact with midwives or my GP for either of my miscarriages, because BUPA covered my miscarriage care, but to everyone for their losses

Done. I got a lot of support from my colleagues at work (felt right to tell them why I suddenly bailed out of stuff) - not one of the options for the 'who you told' question. Just a thought for when you design the next survey.

Agreed with spindella. My bosses knew and were incredibly supportive. I didn't tell my family as I felt it would be an omen always hanging over me with them - my mum would always be wanting to talk about it etc and I just needed to deal with it in my own way. I feel I made the right decision there. But my bosses and close colleague were a tremendous source of support for me.

Also completed the survey. Mine was a missed miscarriage where we went for a private scan, hoping to share news with family members who were emigrating before 12weeks. Unfortunately my body caught up with itself that night. As it was private scan I had no information nothing. Went straight to a&e who confirmed it and told me to come back in two weeks. Very little information as to what I may see, what I may feel. they were nice enough, but I was ill prepared for spending the night In the absolute agony that I was in and seeing what I saw.

Spindelina sorry!

Thank you all so much for doing the survey and for your thoughtful feedback. It's tricky to capture everything but y'all have made important and interesting points here and we'll feed them in to the next one.

for all of you