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MNHQ

SURVEY NOW CLOSED Do you have a child with any diagnosed special need - please complete a survey for MNHQ

6 replies

AnnMumsnet · 16/11/2012 11:37

Hello - here at MNHQ we are talking to the government about various issues and want to canvass opinion about a number of topics.

This survey is open to any Mumsnetter who cares for at least one child with any form of diagnosed special need.

If this is you please answer the survey questions by clicking here.

As well as our eternal thanks - if you complete the survey and add your details at the end we will enter you into this months MN comps. (NB: It's one entry per MNer per comp only so if you've already entered we will de-dup the list when it comes to selection time).

Here's the link again

thanks, MNHQ

PS if you've already done the survey via the panel this week please don't do it again.

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MNHQ

AnnMumsnet · 16/11/2012 12:24

Hi hazeyjane and WhoKnowsWhereTheTimeGoes (who does know?!) - it's because the questions are all about support following diagnosis for this project - however we do take your point about undiagnosed need and we recognise that this is an important issue; we will do our best to address this in our ongoing thinking.

thanks

MNHQ

RowanMumsnet · 16/11/2012 13:00

Hi lougle

Many thanks for that and we do completely take your point.

What we're trying to capture is how much information is freely given by LAs, organisations (specialist or not) and HCPs to parents who are non-expert, relatively new to the process and may not have access to the kind of advocacy and advice that this board is so good at giving.

So I think what we're looking for is whether or not you were signposted to sources of services and support WITHOUT you having to prompt someone for a specific service or item that you already knew about.

In terms of your list, I'd say we'd want to hear about a), b) or d) (if d) is referring to organisations, LAs, education or health staff), but not c). And we're not looking (in that question) to capture the advice given by other parents or on this board (we already have plenty of evidence of how fearsomely effective our SN posters are) - we're trying to find out whether parents who don't have access to things like Mumsnet SN are getting the 'official' signposting and advice they need at the moment.

Does that make sense? Sorry for being unclear.

It sounds from your account (Shock at that by the way) as though your true answer should have been 'no'?

MNHQ

RowanMumsnet · 16/11/2012 13:44

Thanks very much for the input (honestly - with a couple of exceptions we're not experts here at MNHQ and this sort of guidance is really useful)

Do feel free to use this thread to post up qualitative info about your experiences; with your permission we might well be able to make use of that too (anonymised of course).

Thanks to all who've taken the survey btw.

MNHQ

AnnMumsnet · 16/11/2012 19:08

As Rowan has said earlier...she will (honestly) take all this feedback on board.....thanks.

MNHQ

AnnMumsnet · 17/11/2012 12:04

HotheadPaisan - our research panel - Q&A and to sign up (you can leave when you like) here

MNHQ

RowanMumsnet · 19/11/2012 21:21

Hello

Thanks so much for all of this - honest. (I think one of our 'learnings' here is - next time, start a qualitative thread as well as a survey.)

First off, we didn't mean to imply that our entire proposal is going to be based on data provided by this survey - it's really not. We just wanted to capture a fairly simple (we thought!) point about whether parents/carers who are new to the SN world get comprehensive advice and input at the outset - wherever the outset happens to be (and we fully take your point that that may not be diagnosis; sorry to have got that so wrong.)

We're going to have to be a bit frustratingly cloak-and-dagger about why we're doing this, and exactly what we're doing. We're really sorry about this - it's not because we don't want to share more details with you; it's because we really can't.

But all of the info you've provided here is immensely useful and will inform our thinking hugely. And (if we've understood you correctly) there seems to be a need for a comprehensive directory of what services and targeted support is available in each geographical area (however defined) - is that right? Also take madwoman's point about CAF possibly already having done some of this work.

Plus, also fully take on board Starlight's point (backed up by many of you) that even when support is available, it may be of insufficient quality.

@claw4

Even though this thread is not about support from other MNers, i think this support is far better than any changes you are likely to make with regard to parents receiving advice from professionals at dx.

We don't doubt that, and we're not in any way trying to replace what's provided on this board! Please rest assured that anything we do in this area will always involve directing as many parents/carers as possible to the MNSN boards.

@claw4

Also whether MNHQ were asked by the Government to conduct the survery?

Nope

@StarlightMcKenzie

Unless of course it is the intention of MN to change the profile

That's a 'no' as well - we'd be idiots to try to change this board (and let's face it, very unlikely to be successful even if we tried Grin)

@madwomanintheattic

if you want to make any headway with improving information dispersal and provision, you need to join forces with an existing organization

We are on that, madwoman - this isn't something we're considering doing on our own

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