PLEASE DON"T SKIP THE AUTISM QUESTIONS LIKE EVERY OTHER WEBCHAT MP HAS
Autism is worth up to 6 million votes (number of children, families and friends affected by autism)
If David Cameron can spend £50k on a cancer drug for someone with limited life expectancy - why can't we afford 2-3 years of intensive autism intervention for a healthy pre school child with a normal life expectancy? Or is it just that more people with cancer can vote?
What are your views on early intervention for autism? Despite your avalanche of initiatives (Early Support, every Child Matters, Together from the Start etc etc) I can tell you that nothing has changed on the ground. Local Authorities still block costly (but effective) interventions for children and drag out the SEN process until children are 5 or older.
What is the point of getting an autism diagnosis at 2 if there are no services until 5?
Why are you letting LA Autism Outreach teams and Special Schools pursue eclectic /TEACCH approaches for autism when all the research shows they have the least evidence to support them compared to behavioural / ABA models? The ASD Guidance was based on pre 1998 research and is now obscenely out of date. Behavioural methods particularly for under 5's have been upheld again and again as the most effective.
Why can't we have NICE type guidelines to set a minimum intervention level for autism eg 25 hours a week (as in USA) and 10,000 hours in 2 years (as in Australia)? Surely deciding on expensive (but in the long term probably economically sensible) autism programmes should have national guidelines not be left to local councils. Indeed why can't you leave our children in the NHS until they are 5 rather than try and shoehorn them into an education system which does not want to pay for them and causes unnecessary delay. Why can't we have autism developmental paediatricians who can write a prescription of intervention for our children based on clinical evidence and best practice? And start intervention from first suspicion not from diagnosis. Its not uncommon to wait 18 months for any help to start.
Has anyone ever actually monitored whether eclectic / outreach model common in UK has improved outcomes for children with autism? Do you consider that 1 hour access to a specialist autism teacher per term is effective early intervention for a barely verbal non social 2 year old? This is what Outreach means in practice. Untrained 20 year old nursery carers left to get on with it.
When the best ABA programmes in USA say that less than 5% of moderate / severe autistic children leave their programmes unable to speak; are you ashamed that the figure in UK (if you bothered to count) is more like 50%?
Why is only 3% of autism research money spent on assessing intervention treatments? What parents want more than anything else is effective evidence based treatment.