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Understanding dementia - Join webchat with author and journalist Sally Magnusson and Dr Bahbak Miremadi of Red and Yellow Care, 8-9pm Wednesday, 29 January

5 replies

RachelMumsnet · 23/01/2014 14:31

Dementia affects around 700,000 people in the UK, 15,000 of whom are under 65. Next Wednesday evening between 8 and 9pm we're running a webchat to discuss the issues surrounding the condition and share experiences.

We'll be joined by journalist and author Sally Magnusson. Her book Where Memories Go: Why Dementia Changes Everything chronicles the sadness and loneliness and unexpected laughs and joys of caring for her mother as dementia began to overwhelm both their lives.

Also joining us is Dr Bahbak Miremadi, director of Red & Yellow Care, a group of clinical dementia specialists who offer integrated care and support for people living with dementia. By treating the whole person, not just the condition, they aim to help people with dementia and their families enjoy life beyond diagnosis. Dr Bahbak trained as a psychiatrist and left the NHS in 2009 to found Red & Yellow.

Join the webchat with Sally and Bahbak, and other Mumsnetters affected by dementia on Wednesday 29 January between 8 and 9pm or post a question in advance.

Understanding dementia - Join webchat with author and journalist Sally Magnusson and Dr Bahbak Miremadi of Red and Yellow Care, 8-9pm Wednesday, 29 January

RachelMumsnet · 29/01/2014 19:58

We're delighted that Bahbak and Sally are with us at Mumsnet HQ and ready to start the webchat. They'll aim to get through as many questions as possible over the next hour.

RachelMumsnet · 29/01/2014 21:13

@Tensmumym

Hi Sally(and Dr Bahbak Miremadi) I heard you on Midweek this morning and can't wait to read your book. The positive suggestions you have made - such as the use of music as therapy - are among the very few positive things you hear in relation to dementia. "Contented Dementia" by Oliver James covers similar areas and is a very good, heartening read for carers. My 84 year old mum has a probable diagnosis of Alzheimer's - not 100% as she hasn't had the brain scan yet. She has expressive aphasia where she has word loss. My question is regarding the aphasia - are there websites you can recommend with effective exercises/treatment? Most of the information I have read seems to suggest that treatment is effective for stroke patients and I wondered if this applied to those who haven't had a stroke? Many thanks.

Bahbak suggests you look at this aphasia support group

RachelMumsnet · 29/01/2014 21:22

We're afraid we're going to have to wrap up now. We're sorry that Sally and Bahbak haven't been able to get through all the questions. We hope that even if your question hasn't been addressed, there may be something useful in some of their other answers.

Sally's book Where Memories Go will be read by Sally on Radio 4's Book of the Week next week starting Monday at 9.45 am daily. Sally's charity that she mentioned earlier is Playlist for Life which encourages every person with dementia to have access to a playlist of personally meaningful music delivered at any time of the day and night on an ipod - and explains how best to do it.

Bahbak and the Red and Yellow team offer a comprehensive specialist dementia service, currently within the M25, offering a single point of contact for life. See more at the website redandyellowcare.com

RachelMumsnet · 29/01/2014 21:30

@Tensmumym

Thanks Dr Bahbak. www.aphasia.org/content/communication-tips looks really useful. Thank you Mumsnet - most useful webchat. Would it be possible to have a Dementia section on the Talk site?

It's great to know this webchat has been so useful to people and we'll certainly discuss the possibility of a dementia section on the talk boards - we'll keep you posted on this.

RachelMumsnet · 29/01/2014 21:39

Just a final mention that Bahbak recommends a book by Dr Nori Graham, who has been helping out during the webchat - Understanding Alzheimer's Disease and Other Dementias

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