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Mumsnet Miscarriage Code of Care campaign: Let your local healthcare trust hear your experience

12 replies

RowanMumsnet · 17/02/2014 14:12

Hello

As lots of you will know, three years ago we re-launched our Miscarriage Code of Care campaign, which grew out of Mumsnet posters' experiences and concerns about the care some women receive when undergoing treatment for a miscarriage. And we know that there are still lots of you who are having tough times, and receiving care (whether in or out of hospital) that is less than ideal.

So to help us to plan the next phase of activity on the campaign, we're asking MNers to share their stories of what how they've been treated during their recent (within the last two years or so) experiences of miscarriage.

When we carried out a Freedom of Information exercise in 2012, lots of hospital trusts seemed to be saying that they had implemented many of the terms of our Code of Care - but some recent threads on MN indicate that lots of you are still experiencing poor treatment and care. And where this goes against the stated policies of hospital trusts, we think the management of the trust should be held to account.

So we've decided to trial the idea of working with the website Patient Opinion, an independent health service feedback site which aims to 'pass your stories on to the right people to make a difference'. You can see more information about what Patient Opinion does, and how it works with people's information, here.

We're asking Mumsnetters - where they are comfortable doing so - to post accounts of their experiences, good and bad, using this link. Obviously we realise that this is a very sensitive area, and lots of you will have anonymity concerns, so read on to see how it all works.

If you submit your story, it will be published on a dedicated Mumsnet page on Patient Opinion. Whenever a hospital trust responds to one of the points our users have made, that will be flagged up as well. Accounts of miscarriage-related experiences from other Patient Opinion users will also be shown on this page.

You can choose an anonymous username on Patient Opinion, so nobody will be able to link your account on there to your account on Mumsnet.

Being able to track what sorts of issues people are flagging will hopefully be a powerful tool for us at MNHQ, enabling us to see what sorts of problems are still occurring, and how responses from individual trusts measure up against their Freedom of Information responses. The information will also be really useful to us in deciding where best to concentrate the next phase of the campaign.

So for those of you who feel able to help, do please get posting your experiences. Once we have some published stories (and, hopefully, constructive responses from the trusts) to share with you all, we'll come back with a link to the page where they can be seen.

Thanks - as ever, do please let us know what you think.

MNHQ

RowanMumsnet · 18/02/2014 09:16

@HoratiaDrelincourt

Can't complete this. There is something wrong with the formatting. Once you've put in your details in the first few boxes you can no longer get to the "Sign and send your story" bit. Kind of crucial...

Oh no! We'll have a look now. Anyone else having trouble?

RowanMumsnet · 18/02/2014 09:18

Hmm it seems to be working for me (desktop site on Chrome) - which device/browser/site version are you using, Horatia?

RowanMumsnet · 18/02/2014 09:31

OK, apologies Horatia; we've spoken to Patient Opinion and it seems this might be something to do with a technical difficulty with the way we've embedded their form. It shouldn't affect most people but unfortunately it will affect some.

Could you bear to post it again using this link please? We promise it'll work this time.

RowanMumsnet · 18/02/2014 09:33

@Fishandjam

Will do (though mine was Aug 2011 - is that too long ago?) I had a very good experience.

We're very happy for people to post up good experiences (and we're really pleased to hear you had one), but ideally we're looking for accounts from the last two years or so. But of course if you'd like to go ahead and post anyway, please feel free.

RowanMumsnet · 18/02/2014 10:25

Me again... we've altered something technical (widget height, fact fans) in the story-telling link, so nobody should have any problems now; do please let us know if you do.

RowanMumsnet · 18/02/2014 13:32

@Chacha23

I'm having some issues, the "next"/"submit" buttons appear and disappear at random.

Also, I can't seem to be able to sign my story, even though I'm entering my mumsnet email, password and tried various usernames - not sure what I'm doing wrong?

Argh. So sorry Chacha23. Could you bear to try again using www.patientopinion.org.uk/youropinion?cc=mn1 instead? It should definitely work on there.

RowanMumsnet · 19/02/2014 09:46

Thanks so much to everyone who's shared their accounts. The tech difficulties should be well and truly sorted now, whether you post using the MN link or the www.patientopinion.org.uk/youropinion?cc=mn1 link, so please do get posting if you feel able and wiling to do it. Many apologies to anyone who had to do it twice Blush

Some stories are already coming through; we'll post up the link soon.

Thanks
MNHQ

RowanMumsnet · 19/02/2014 17:39

@Keely19

I had two miscarriages after my first child. My first pregnancy was normal so I didn't expect any problems next time so when I started bleeding and didn't feel normal I called my midwife who referred me to the hospital straight away. I was told it looked as though I was having a miscarriage and to go home and see how I went! I didn't know what to expect how much I should bleed or for how long, unfortunately I passed the foetus so knew I had miscarried but really didn't know what else to expect so called the hospital who said they didn't have time to speak to me I then called my gp who said it was all normal and couldn't understand why I was so upset/angry! When I got pregnant again I had changed drs & the hospital were really helpful although I did know more what to expect. Then I got pregnant again & the hospital were great lots of early check ups & scans and now I have a lovely 2 year old but def more pregnancies, can't go through that again!

We're sorry to hear about your experience Keely19 - the Better Miscarriage Care campaign is all about asking healthcare professionals to have empathy and respect in their dealings with women who are miscarrying. Congratulations on your two-year-old though!

RowanMumsnet · 24/02/2014 09:36

@Armadale

Hi Rowan, did you see my enquiry upthread? I'm really keen for my experiences to be counted as I entered them on patient opinion just for this appeal, and am not sure now if they will be...

Sorry we missed this Armadale. Your story should be in the mix anyway hopefully, but do PM me with your Patient Opinion log-in details if you like and we'll check with the team there to make sure.

RowanMumsnet · 24/02/2014 09:40

@Dildals

What about doing something similar for parents experiencing a stillbirth?

Thanks for the suggestion Dildals. Do please use the same process for posting on Patient Opinion, but using the appropriate tags for your experience - we'll see if we can look at those stories at the same time and pick out the common themes.

RowanMumsnet · 24/02/2014 09:48

Thank you to everyone who has shared their story here. If your experience of miscarriage was within the last two years or so, please do post it up on the Patient Opinion site as well; it will help us to pick out any trends, and it should also (hopefully) mean that someone from the relevant hospital trust will read your account.

We're really sorry the posting process didn't work, BunnyTamer - please let us know if you have the same problem again.

RowanMumsnet · 04/03/2014 14:46

Hello

Just wanted to say a big thank you to everyone who's posted their experiences up so far: do please continue to do so if you haven't yet.

You can see a record of recent accounts of miscarriage experiences on Patient Opinion here, and as you'll see, there are responses from members of staff on some of them.

We'll be reading through all the accounts and seeing if we can spot any overall trends that will help us to think about the next phase of the miscarriage care campaign.

Thanks again
MNHQ

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