Selective intrauterine growth restriction

[nicole2398]

I went too a scan yesterday and they diagnosed one twin with selective intrauterine growth restriction. The other twin is healthy and growing at 50th percentile. They asked if I wanted a selective termination of the affected twin however there would be a 30% chance of the healthy twin also passing due too having MCMA twins. I feel lost and like I just don't have any answers my heart hurts soooo badly. I just want my babies too be ok. Has anyone had this before too?

Hi Nicole,

So sorry to hear you’re going through this. I don’t have any advice but you could try calling Twins Trust for some support? There is a contact number here: twinstrust.org/who-we-are/about-us/about-twins-trust/contact-us.html

And hopefully someone else will be along to offer some advice on here soon. You might have more luck posting on the Pregnancy board, it seems to get a lot more traffic than the multiples section.

Good luck and I’m thinking of you x

I had this with my twins. They were diagnosed with it at 16 weeks and I was referred to a tertiary centre in London and the plan was weekly scans until 29 weeks when there was some deterioration in the placenta and I had an emergency c section. Happy to report after a long stay in special care they’re both thriving now.

@nicole2398 I had this too, my twins are now 12 weeks old and healthy. I'm sure things have moved on with you so this post might not be useful any more but I still wanted to try to help.

Do you know why they suggested selective reduction? That's not normally necessary with sIUGR but it's possible there is some additional factor in your case that made it an option. In particular, do you know what type you are? The outcomes depend on the type, and the type is about the blood flow to the smaller twin. If blood flow is positive, outcomes are really good!

Are you being scanned at least weekly, with dopplers being done to check the blood flows? That's what should be happening but sometimes you have to fight for it.

Let me know if you have any more questions. There is a Facebook group called MoDi & MoMo Twins: Monochorionics. I'd recommend joining that, the admins on the group are really knowledgeable and can give you advice on any decisions, I found it really valuable.

Thinking of you and hope it goes well.

[quote RosettaR]@nicole2398 I had this too, my twins are now 12 weeks old and healthy. I'm sure things have moved on with you so this post might not be useful any more but I still wanted to try to help.

Do you know why they suggested selective reduction? That's not normally necessary with sIUGR but it's possible there is some additional factor in your case that made it an option. In particular, do you know what type you are? The outcomes depend on the type, and the type is about the blood flow to the smaller twin. If blood flow is positive, outcomes are really good!

Are you being scanned at least weekly, with dopplers being done to check the blood flows? That's what should be happening but sometimes you have to fight for it.

Let me know if you have any more questions. There is a Facebook group called MoDi & MoMo Twins: Monochorionics. I'd recommend joining that, the admins on the group are really knowledgeable and can give you advice on any decisions, I found it really valuable.

Thinking of you and hope it goes well.[/quote]
Thank you for your reply , you see the twins were type 2 baby A had positive A wave and one of his EDF were absent causing the problem. The other twin was completely fine. Because the A wave was positive and he was growing just very slowly they had a small amount of hope for bows unfortunately
Within days he passed away in my womb and his brother had been thriving ever since and they now are checking his Dopplers every scan. All up to now (weekly at first then this week was 2 weeks) they have been so happy with his progress that I'm now going into 4 week checks. I'm now 22 weeks and am very scared of losing this boy too but he's doing soo well.