Pregnant with ID Twins with IUGR - looking for experience shares

[mumtobe789]

Hi guys,

I am pregnant with ID twin girls and at the 18 week scan our OB suspected TTTS.

I was referred immediately to Queen Charlottes Fetal Unit. Upon further scanning they confirmed one of the babies is smaller by 28% than the other and that it is IUGR. I will be scanned weekly to ensure growth progression and whether any intervention is required.

I would love to know if anybody has experience shares on twin IUGR as I am anxious.

What week did you deliver?
Did you require laser or any other treatment?
Did your IUGR turn to TTTS?

Thank you :)

Hi mumtobe,

I'm in the exact same position! Due in October with ID boys diagnosed with sIUGR at 16 weeks. Like you I'm being scanned weekly. I'd be interested to hear other peoples experiences with this!

Hi both,

Long time lurker but I’ve just made an account to reply to you as I remember the stress!

My twins were diagnosed with SIUGR when I was 18 weeks pregnant. I was referred to London and had weekly scans until I was 29 weeks pregnant. Nothing really changed and my smaller twin was always smaller with intermittent blood flow (their difference started at 25% difference ended up 31%) I didn’t have any treatment at all: Just the scans.

At a routine scan it looked like the blood flow through the cord to my smaller twin was reducing and I had a c section at 29+2. My twins arrived (900g and 1400g) and had undiagnosed TTTS but seemed mild and didn’t require any special treatment (one was bright red!). They spent 9 weeks in hospital which was difficult but the staff were amazing. My smaller twin had 6 months on oxygen at home (which was way easier than I thought and caused no problems for us or them)

They’re now 3 and have both caught up with their peers generally though both are slow to speak which is common for all twins: prem or not.

Please let me know if you have any specific questions (feel free to PM or reply) the best advice I can give is resist the urge to google. In my case it didn’t make me feel better. Save up your questions and ask the specialists at hospital who will provide information for your case. Not worst case scenarios from 10 years ago (this is all I found!)

Good luck!

Thank you for sharing that Orangecloth, and your advice!
I did google far too much when the twins were first diagnosed a few weeks ago. But I have banned myself now, and just take each week as it comes :)