Hello x
I have twin boys, I'm 22+3 weeks and earlier today I was diagnosed with TTTS I don't know what stage but the notes I have don't make for good reading. One twin is surrounded by too much fluid and the other twin is 'adhered to the uterine wall' and bladder wasn't seen. I have had no signs or symptoms other then one side of my belly appeared a little larger and I mean a little bit, but it didn't appear to be all the time. Also pretty much as soon as I got 21 weeks, I was feeling quite a lot of pressure in my lower abdomen and under my rib. All pretty normal for pregnancy and especially twins I would have thought.
I already knew about ttts as of course as soon as I found out I was having mo/di twins I did all the reading (Googling) I could possibly do...well, you do don't you!
Everything was going excellently until I had my 22 week scan earlier today and the sonographer went quiet after she saw the heartbeats and didn't say much except for the fact there was more fluid around one baby (the donor) and that was pretty much it. I saw the consultant, a different consultant, each time I've seen a consultant it's never the same one. This is the 4th time and is actually the consultant I should have been seeing all along really...she explained it all and we had to go home and sit and wait for a call back as they were trying to sort an appointment for me at Birmingham Queens.
I was so distracted I booked the wrong date for the hotel which tried to charge a £65 cancellation fee 
which my husband luckily got them to cancel for nothing and we ended up in a different hotel.
So, one bus-train-taxi-takeaway later I'm sat in this 'lovely' hotel. Thankfully the people next door only had very noisy fun once so I don't have to listen to that all night long. My husband and toddler are asleep and well, I can't although I know I need to soon.
Appointment is at 10am tomorrow and I'm trying not to worry too much, I've just been googling medical papers and ttts stories which are a mixed bag of course.
I don't know why I've written it all out, I'm just so apprehensive...and tired :|
When do you start showing with twins? What is life with twins like? Join the conversation on our Multiple Births forum.
Multiple births
Just been diagnosed with TTTS
SmellySphinx · 11/10/2018 01:20
Cheers Borris Xx all welcome haha
Yes I just cannot comprehend why anyone would say that? I'm having surgery, prem babies, we don't have access to instant transport and should something go drastically wrong...I don't even want to think about how stressful that would be for everyone especially the kids.
They can stuff their attendance targets up their arse, I couldn't give a toss right now!! We've had to deal with alsorts in the past 3 years, suicide, 3 deaths in the family. I just can't deal with people who know all this making idiotic suggestions. We've already explored the options to get them into school and sometimes it just cannot be done!
Sorry I will stop going on now because it really gives me the RAGE! 
Hi OP,just read your thread and wanted to wish you luck and say how very brave you seem.I will be keeping everything crossed for you and your babies.
Just got back from the scan, again lol! The mca readings were slightly lower but the TTTS is back again, anemic babys fluid is reducing. I had ecg monitoring and those readings were fine eventually anyway, they were wriggling around so much it was very difficult to keep contact!
They said I could go back to the hospital later on for extra monitoring if I wish to.
Oh and the washing machine door hinges have just bent, snapped and fallen off LOL!!!! I don't even care anymore.
Bloody hell universe, want to throw anything else at me!?!?
DON'T ANSWER THAT PLEASE!!
Haha thank you BigHairyHollocks!!
I don't know about bravery, I'm just going with the flow. There is literally nothing else to do 'cept go into melt down, that is not an option xx
Plan is still the same Sammy xx
Booking at St Marys late afternoon then the fun starts.
Magnesium drip for 4 hours, chat with the anesthetist, starved at 10:30. That time isn't set in stone, as far as I'm aware from then on it's wait and see time as to when they're going to perform the c-section for Tuesday and where it will be in relation to cot availability.
When I got home yesterday afternoon I was a little on edge as the babies movements, notably twin 1s, were softer and not as vigorous. It was anemic baby who was worrying me the most as the deepest fluid pocket was noted as 1.7mm (oligohydramnios -very low fluid). I had to weigh this up with a sensible head as twin 1s fluid wasn't noted as polyhydramnios. Their levels have fluctuated and 2's decreasing BUT twin 2's levels have gone up and down at different scans... I spent a good few hours trying different positions and drank water regularly to stay hydrated and hopefully to up the fluid level. Not hugely proven to change things but it could help and won't do any harm...
I suspected that he had changed position as they've done regularly and that was causing the softer movements, plus anterior placenta. I kept checking the heart rates because I know what's normal for them both. 1 is 130-135 and 2 is around 140+.
I decided not to go back for more monitoring as I noted enough soft/hard movements to keep me satisfied it was nothing more than different positions.
Obviously I have to say that if anyone else happens to read this experiencing the same issues that none of this was recommended to me, it's what I chose to do considering previous experiences and I had already had a scan and been monitered. They were moving, hearts beating etc...all individual to me and my circumstances. Plus I am booking in tomorrow anyway.
I just woke up randomly at 3:30 and here I am lol, babies are wriggling.
If I become concerned again later on this morning I won't hesitate to go back to my local hospital for more monitoring, best to keep an eye on things.
Oh washing machine is years old and has been good to us. It was already here when we moved in and Landlord said use it but if it buggers up or leaks then we're responsible for it. I had already bought a replacement catch for the door years ago when that snapped so it's done its job Could have picked a better bloody time to break though!!!! No matter, at this point I'm not sodding bothered in the grand scheme. We'll have to use a laundrette if things get desperate and whack a cheap new one on the credit card.
You know those people who have the incredible misfortune to get struck by lightening more than once in a lifetime? I can relate to them right now!!
Don’t want to miss threads like this?
Weekly
Sign up to our weekly round up and get all the best threads sent straight to your inbox!
Log in to update your newsletter preferences.
You've subscribed!
To comment on this thread you need to create a Mumsnet account.