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Original poster

What are the chances of me being move from LCW to LCWRA?

7 replies

sprinklesandshines · 09/06/2025 22:39

30 no children, live with my parents. Hand in money to them. On UC, LCW AND ADP

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Hi guys. So when I first went on UC 5 years ago when I was 25, I explained my medications I was on and conditions. One of them is epilepsy meds. My seizures were controlled by my meds back then. I had small focal seizures but no tonic clonic ones. I hadn’t had a tonic clonic seizure since I was 13. I believe I didn’t mention the focal seizures to the job centre as I felt like I’d be kicking up a fuss plus my dad did my application while I just sat there as I wasn’t good on the phone . I wasn’t on ADP (Scottish PIP). I am also autistic. I was awarded UC with LCW. I have diagnosed depression (was on Prozac) and I am on methadone prescriptions as through my doctors prescription I got addicted to heavy opiate painkillers. I never bought anything off the street, never did heroin please don’t judge me. I’ve since weaned down a LOT on the methadone- was on 40ml then and now on 14.

fast forward to 2022 and my seizures came back. I was hospitalised twice for tonic clonic seizures that resulted in status epileticus once in 2022 and once in 2023. I haven’t had a Tonic clonic seizure since late 2023 however my focal seizures are a bit worse. Me and my neurologist are still trying to figure out the right dose of my new medication which I went on in 2022 after my TC seizure.
I don’t get hospitalised after my focal fits so no way of proving them but I have a note from my epilepsy team saying that’s why they are still changing my dose about to attempt to stop them, but it hasn’t worked thus far.

I am no longer on antidepressants and haven’t been for about 8 weeks as they were making me have bad urine retention, and I’ve exhausted all the different kinds I can take with my epilepsy meds. I still haven’t updated them on this however I am still diagnosed with depression

I didn’t inform the job centre my seizures came back as I didn’t realise LCWRA was a thing.
i applied for ADP (Scottish PIP) in 2023 and was awarded it in 2024. Lower daily living amount, higher mobility amount. I have a bus pass however tend to use Taxi’s to medical appts incase i risk having a seizure on the bus. Cannot drive due to epilepsy/still having focal fits.

anyway, I’ve applied for LCWRA and I just want to know what my chances are. The money would really come in handy for the travelling to frequent medical appointments and when I need to travel to pharmacy to get my medication as well as other stuff. I struggle financially so please don’t judge me.

I realise I should’ve informed the job centre when my fits came back but I just didn’t think.
please don’t judge me

I will say I got some online volunteering work from home in my bedroom (my work coach urged me to get some) however I have struggled to do it due to my many hospital appointments and unpredictable focal seizures I’ve barely started the online training . So I’m aware I might not get it as I was considered ok to have a zoom interview

OP posts:
Bromptotoo · 09/06/2025 23:12

Have you looked at any disability related websites like Disability Rights UK or Benefits and Work?

Both have detailed pages on the assessment process which is superficially similar to PIP; you score points for what you cannot do.

TheLadyIsAVamp · 09/06/2025 23:23

Have you gone through the assessment questions and seen how you score? here

I will say I have a friend who wasn't awarded with epilepsy and autism despite being hospitalised several times whilst having seizures at work. They've had 4 in the last year and it's quite frightening for them, their colleagues and customers who witness it.

They work in retail so have full blown seizures on the shop floor but can't afford to not work, really unfair and I think due to their autism and other mental health issues they just don't have the capacity or energy to do a mandatory reconsideration, despite myself and several others offering to help.

Take the UC WCA test

Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments, reviews, appeals.

https://www.benefitsandwork.co.uk/universal-credit-uc/take-the-uc-wca-test

Bromptotoo · 09/06/2025 23:41

Once you've got the form to fill in speak to Citizens Advice (or other agency) and see if you can get help.

Original poster
sprinklesandshines · 09/06/2025 23:47

TheLadyIsAVamp · 09/06/2025 23:23

Have you gone through the assessment questions and seen how you score? here

I will say I have a friend who wasn't awarded with epilepsy and autism despite being hospitalised several times whilst having seizures at work. They've had 4 in the last year and it's quite frightening for them, their colleagues and customers who witness it.

They work in retail so have full blown seizures on the shop floor but can't afford to not work, really unfair and I think due to their autism and other mental health issues they just don't have the capacity or energy to do a mandatory reconsideration, despite myself and several others offering to help.

I will. I’m sorry about your friend, I will say that perhaps they didn’t take him seriously enough because he has a job thus they presume he’s ok. Which is very wrong I know.

OP posts:
Original poster
sprinklesandshines · 09/06/2025 23:48

TheLadyIsAVamp · 09/06/2025 23:23

Have you gone through the assessment questions and seen how you score? here

I will say I have a friend who wasn't awarded with epilepsy and autism despite being hospitalised several times whilst having seizures at work. They've had 4 in the last year and it's quite frightening for them, their colleagues and customers who witness it.

They work in retail so have full blown seizures on the shop floor but can't afford to not work, really unfair and I think due to their autism and other mental health issues they just don't have the capacity or energy to do a mandatory reconsideration, despite myself and several others offering to help.

Does your friend get PIP?

OP posts:
TheLadyIsAVamp · 09/06/2025 23:52

@sprinklesandshines yes he receives PIP, I believe enhanced on both. It really is terrible as his seizures are awful, he loses control of his bladder and feels incredibly embarrassed afterwards which has also resulted in him being signed off for periods of time over the years.

Original poster
sprinklesandshines · 10/06/2025 01:17

TheLadyIsAVamp · 09/06/2025 23:52

@sprinklesandshines yes he receives PIP, I believe enhanced on both. It really is terrible as his seizures are awful, he loses control of his bladder and feels incredibly embarrassed afterwards which has also resulted in him being signed off for periods of time over the years.

That’s terrible he can’t get LCWRA. He needs to challenge that for sure with his disability.

OP posts:
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