PIP assessment ? Bit confused.

[Vintageroses]

Ds2 had a lifelong condition diagnosed when he was 13 and is now 25. He has been receiving pip with me as his appointee. His claim was until August 2025. When the review form arrived ,
I sent it back saying he wished not to be reviewed and wanted to voluntarily end his claim. This was what he wanted.

I had a phone call from dwp and explained why. I was told by the guy I spoke to that he would speak to someone else as to see when the payments should stop and I’d get a letter.
I’ve not had a letter. I’ve had a
text from haas saying they conduct the assessments , are managing his assessment and will look at the evidence and contact us again with an appointment for assessment if it’s needed.
Part of the reason he wanted to end the claim was that he doesn’t want to be assessed and scrutinised anymore .
They have still sent his money aswell.

i know it’s probably quite unusual to NOT want the money but I dont understand what’s going on.

It is possible they’ve done a paper based assessment and decided to continue the claim. They often do this for life long complex health conditions - they did it for me. I’ve never had a face to face assessment or any sort of assessment. They went on what was on my form and my medical evidence. I was given the highest rates of both elements indefinitely / ongoing. If you really want the claim to end you are entitled to do this but if they have decided to do a paper based assessment it may be worth calling to ask if this is the case as it would be a shame to miss out on the money. It really helps.

If you’re his appointee then it’s you who should be dealing with the claim. There is no need for him to be stressed about assessments as you should be the one doing them on his behalf.

DWP may believe you are no longer acting in his best interests.

I had to respect his wishes that he doesn’t want to be on benefits. He’s lucky enough not to need the extra money. I told them he feels there’s a stigma etc and wants to end his claim. I wouldn’t if it was me but it’s how he feels.
surely if someone is saying they don’t want it that’s an end to it.
when so many people are deserving and dont get it , seems crazy that they arent just stopping the payments !

He’s a vulnerable person that cannot handle his own affairs. It’s right and a good thing that the DWP isn’t just ending his claim on your say so.

Yes - completely unfair. If he needs an appointee part of that is around making money and budgeting decisions and thinking long term.

He doesn't have to attend an assessment. The money can go to your account. You could save it for him for when he's older.

I wonder where he's got this idea from.

I'm not surprised they're looking into it tbh.

He did sign the form and letter we returned.
tbh he’s become more capable of managing his own money over time but wanted me to continue as we were as it was one less thing to deal with. I really should have thought more about this and told them this was a change ?
life has been difficult and I’ve not really thought about all this until now.

I’d say he’s capable of making his own decisions apart from being impulsive with money.