PIP Assessment

[Lynzmumof21979]

Hi everyone
Just looking for some advice please.
I have received a copy of my PIP assessment and surprisingly it was completely correct. The assessor listened and also read my medical evidence in full, so was lovely during my assessment and I'm very grateful that she was honest on the report.

I have added up the descriptors and she has recommended 15 on daily living and 20 on mobility.

Could anyone advise if the decision makers normally go with recommendations?

I'm so anxious.

Thank you in advance

@Lynzmumof21979 i did send lots of copies of medical evidence, one being everytime i stnd or move around my heart reaches nearly 190bpm and letters for other diagnoses. Letter before being diagnosed and all my symptoms i was getting x

Yes, agree with examples. Write things down so you don't forget - a list of all the aids you need.
i.e.
shower stool
Raise/lower bath seat
grab rails
Raised toilet seat
walker, walking sticks
help to put on shoes & socks
memory foam cushion to stop pain whilst sitting
a spinning cushion for getting in/out the car
Dosset box for helping you take the correct medication
Any special clothing/shoes/supports you wear
Needing someone with you to open/close doors, help you up & down steps.
Light sensitive glasses
Etc, etc.

@Lynzmumof21979 thankyou , it is horrible as i cant be a mum to my little girl. I watch everyone around me doing such fun things and i cant. I cry everyday over it as i miss who
i was sooo much and i hope one day ill feel like myself again :( i will be honest with them. I havr worked myself up sooo much! But i just cant deal with someone being horrible when i get upset talking about it . Xx

Try not to panic. The lady I had was brilliant and it was 2.5hr telephone call! She she wanted to give me a.massive hug!
As said before have a drink ready and make sure you have your phone fully charged with a charger to hand. I had tissues aswell because I knew I'd cry x

@Lynzmumof21979 thankyou! Youve made me feel alot more relaxed about it.
ok i dont want to cry , i hate crying to anyone but talking about it just brings it up how
shit it realy is. Did you get breaks? And you say it allas its your worst days xx

I had my assessment on Wednesday. My assessor was lovely and have to wait up to 8 week for my decision!

@RadioGaGaRadioGooGoo im so
glad it went well :) do you work?
im worried cause i work prt Time i wont get it xx

@Starrrz I am so sorry. You are so young to be dealing with this.
Mention the loss of independence, needing constant help.
It's hard to go through.

There are days I could cry. But then I think enough. Get on with it. You have to be determined/stubborn/bloody minded. Your body is letting you down but you are the only one who can deal with it.
If you want to pm me I am more than happy to listen. Time is something I have plenty of.

@CoffeeBeansGalore thankyou so much! I feel like i cant keep
going on to people as they think same
old with me. I used to be sooo happy and positive! Now im the total opposite.
if you wouldnt mind id really appriciate that xx

I did my Ds’s migration from Dla to PIp .
I was on the phone 1 hour 50 minutes .

i asked for copy of the report it never arrived .

he was on middle rate care and low mobility on Dla - he got enhanced on both for 6 years on Pip .

I just answered honestly - just told her I was thinking if I didn’t have a clear answer .

Gp had said no issues with activities if Daily living but said she needed to understand why he could physically but didn’t .

@Starrrz yes I work full time - a few people I work with also get it.

@RadioGaGaRadioGooGoo do you mind me asking what you do?
i dont know anyone who gets it personally so i cant ask questions.
i mean a lot probably do but dont say xx

@Starrrz I work in an admin based office job, In the office 2 days out of the 5

@RadioGaGaRadioGooGoo do they get hold of your workplace?, x

You can state your worst days but they will want to know how often you have a worse day. I separated out worst days, average days and good days and roughly how frequently they occur.

@Starrrz no, I didn't tell them which company I worked for of the address or anything just that I work full time split between home and office. I was asked about if I had any thing at work to help me which I do so o explained all that to her.

@RadioGaGaRadioGooGoo ok good x becauae if my manager knew the whole worklot woupd know and i want it private . Drs knowing is different x

Just thought I'd update to say I got my text this morning to say I've been awarded pip - obviously not sure which levels but I am happy I have awarded this.

Oh I usually get my decision before I get my assessment (been through it twice now).

@RadioGaGaRadioGooGoo thats amazing!! Well done !! Thats positive:)
do you drive ? As i do any worry will go against me? Only to work (8min drive) on good day x

@Starrrz yes I drive, I drive to work which is about 20 minutes away but that's the most I drive, if I drive any further I then can't do anything when I get there

Congratulations! If you ring up they should be able to tell you the rates and also what backpay you'll be receiving x

@Lynzmumof21979 oh really? I didn't know I could do that. Thanks

Been awarded the standard rate for both which I'm obviously happy about as it will help loads but I'm going for my letter and see what the report says as to how many points I've got

@RadioGaGaRadioGooGoo thats great ☺️ I have mine tomorrow so VERY nervous!
so when i speak to rhem they will ask me about work. Will they know the work place etc and they are just confirming it ? X