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Original poster

Pip change of circumstances advice

14 replies

Mummyemx · 30/10/2023 19:35

Hello, I applied for pip back in November 2021, it was refused and so was my mr. I had to go to tribunal which was in January this year. I was awarded enhanced care and standard mobility. I have recently been diagnosed with autism and adhd and also awaiting a bpd assessment. Even though I have sensory issues and knew I had traits of autism/adhd I didn't include any of this on the forms due to no evidence. I would like to do a change of circumstances for the mobility side as I can't go out on my own due to panic attacks and also I get sensory overload, overwhelmed and aggressive. My husband is having to have a lot of time of work or I need to have a family member come to my house to go out with me. If I done a coc can I ask just for the mobility side to be looked at again or will they look at the whole claim? Is it likely I will lose my current award? It ends in November 2025 or I would have waited for my renewal. Thank you in advance for any advice x

OP posts:
SuperLoudPoppingAction · 30/10/2023 19:37

I'm not sure that I know anyone with high mobility for autism and adhd.
I think they would look at the whole thing again. If it were me, I would send it the next time there is a renewal.

Babyroobs · 30/10/2023 21:16

It's a risk as they look at the whole situation again. You would also need excellent medical evidence as to why you feel you meet the enhanced rate criteria. Reviews are also taking a very long time at present.

Flopsythebunny · 30/10/2023 21:32

They would look at the whole claim again

nokidshere · 30/10/2023 21:33

If I done a coc can I ask just for the mobility side to be looked at again or will they look at the whole claim? Is it likely I will lose my current award? It ends in November 2025 or I would have waited for my renewal. Thank you in advance fo

nokidshere · 30/10/2023 21:37

Sorry....

Enhanced Mobility probably won't change because it's mostly based on how far you can physically walk. If they've awarded you mobility they've acknowledged that you need extra help in order to do everyday things, but for enhanced I'm (fairly) sure you would need to have difficulties in physically getting around.

And yes they look at the whole claim but that doesn't mean they will reduce what you already have.

platypuspart · 30/10/2023 22:21

That's activity 11 - planning and following journeys, which as I suspect you know forms one of the two activités which make up the mobility component.

Of course people with ADHD and or autism can get points for activity 11 (response to a PP, not you OP).

What you will need to do is get your decision notice from your tribunal (unless you know what points were awarded)... and on the relevant activities on the AR1 (review form) which you were awarded for write "no change, I still struggle with ? due to my ? and require an aid/ prompting/ assistance (delete as appropriate).

DWP have to demonstrate evidence of improvement if they are going to remove points from you. Your form shouldn't evidence and improvement if you follow my advice on how to fill it in. However, what you tell the Health Care Professional when you have your next medical assessment (which the AR1 will trigger) could cause problems.

What I would be questioning here is why none of this was mentioned before in your original claim? Having a diagnosis is irrelevant as i would assume these conditions were functionally restricting you. There would potentially have been some inkling to it in the Health Care Professional Assessment report. Did the tribunal explore activity 11 in your hearing? What has changed for you? Yes, you've had a diagnosis - but two of the conditions you'll have always had. What has happened to cause you issues with going out? Is it more the BPD perhaps? What you will need to do is reflect this in the AR1 under activity 11. You will absolutely need medical evidence and I don't mean confirmation of diagnosis. What I mean is a letter from a health professional evidencing your restrictions in going out alone. It will need to be their observations rather than "x tells me she can not go out unaccompanied."

Your difficulties in going out must have been going on for at least 3 months.

I think you will have a difficult job to get points for 11, but with the correct evidence, it'll be fine. There is always a risk with PIP unfortunately. However, you are aware of how to challenge a decision, and if you lose your award you can and must challenge the decision.

Original poster
Mummyemx · 31/10/2023 16:43

Thank you for all your advice x

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Original poster
Mummyemx · 31/10/2023 16:51

@platypuspart thank you. In my Original formed I did explain about my social and communication struggles. But I focused on my other disabilities as I had evidence and I wrongly thought I needed evidence to include any other problems. I got 10 points for 11-d. I explained at my tribunal I could do the school run which is 5 mins away on my own which I was doing. But in the 2 years since I sent off that form my mental health is worse, I am under a mental health team now and have a mental health coach and I can’t go out without someone with me. I think I will leave it for a while. Thanks x

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Gingerkittykat · 31/10/2023 17:11

How many points do you currently have for mobility and was it based on physical needs?

When I did my appeal I had 8 points for physical needs so only needed 4 more points for enhanced mobility. My representative asked for them just to look at the mobility and daily living was not mentioned at tribunal.

I think the biggest factor is having medical evidence to back up your appeal.

Starlightstarbright2 · 31/10/2023 17:26

In all honesty it is a gamble not one I personally would be willing to take .

my Ds gets enhanced care and mobility but if awarded standard I would have took it rather than go through the stress of potential MR and tribunal ..

These forms assessment’s take a lot of energy emotionally , I would try and focus on finding van way forward to increase your quality of life .

KathieFerrars · 31/10/2023 18:08

I would leave it as it is.

Lougle · 31/10/2023 18:18

Plenty of people get enhanced x 2 for ADHD/ASD. You don't need any mobility problems.

If you have mental health letters and can get a supportive letter from your mental health coach, that would be good.

Original poster
Mummyemx · 31/10/2023 23:47

@Gingerkittykat hello, I currently have 10 points and no it was based on needing someone with me on unfamiliar journeys. I will see if my mental health coach can help with some extra evidence. Thanks x

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Original poster
Mummyemx · 31/10/2023 23:49

@Lougle Hello, I will speak to her and see what she thinks and if she can provide me with extra evidence. Thanks x

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